Which Type Do You Have, and When Were You Diagnosed?
By LadyLeene
@LadyLeene (584)
United States
February 19, 2007 3:49pm CST
I have Classical Ehlers-Danlos and was diagnosed 7 years ago, at age 16. You?
5 responses
@0122777528 (52)
• Egypt
22 Feb 07
OK, I am surgeon and that is bleedind disorder disease. So, you must take attention if you are injured because there will be much bleeding. If you are going to do any surgical intervention even minor operation, you must tell the anaethest and the surgeon to take care.
Best regards
Good luck
@LadyLeene (584)
• United States
22 Feb 07
It actually isn't really a bleeding disorder, so I doubt you are a surgeon. Ehlers-Danlos means you have trouble making collagen. Some people who have it are just hyperflexible....they type that I have, I am flexible, bruise easily, and am near-sighted, There can be complications with bleeding in the very, very severe forms; but in most cases, it is really not that bad.
@coolgal17787 (2)
• Singapore
14 Aug 07
Hi, I have eds. I have classical type. Makes me dislocate all my joints and led to me getting dysautonomia too. It really sucks.
@liquorice (3887)
•
27 Apr 08
Hi, I have Hypermobility Type Ehlers Danlos Syndrome (formerly known as Type 3 EDS). In the UK it's also known as Hypermobility Syndrome. (For anyone who wants to know about this disorder there's a great website at www.hypermobility.org)
I was diagnosed in 2001, aged 28. I'd been suffering from joint pains and weird sensations for years but were told they were just growing pains. People had always commented on how scarily flexible I was and so when I found out about EDS/HMS it all fell into place.
@sehgalskapil (1332)
• India
21 Feb 07
sorry bt i didnt understand wat u say...plz tell me wats that u mentioned.
@sandgroper1 (629)
• Australia
19 Feb 07
I have no idea what this is obviously it is a medical condition, please give more info about your condition so that others can understand, thanks
@JamesDeansBack (40)
• Netherlands
19 Feb 08
i have hypermobility without the pain lucky me! but still waiting for the results to come about my EDS test, they wanted to test me because of my hyper-elastic skin, and my arms that can twist 360 degrees round
