This is kind of strange
By Thoroughrob
@Thoroughrob (11742)
United States
March 22, 2007 10:46pm CST
For the last two years, we have been trying to get my son equipment that he needed to help him learn and get around! We finally have gotten all we have been trying for. It all came within the last 3 weeks. Three weeks ago, on the same day, he received his talking device, and touch screen monitor for a computer. Today, he has gotten his Power wheelchair, and a brand new computer. I am so glad he has it all now. It just seems funny that for 2 years we could not get anything and now we get it all in 3 weeks time. He should be in heaven. Isn't it funny how some things just fall into place all at the same time? We will definitely be busy!!
12 people like this
25 responses
@payingforschool (678)
• Canada
23 Mar 07
I know how you feel. It was like that for us, getting support, funding, and therapy. For years I couldn't even get a diagnosis for my son ... and every day was a struggle. Now, there are actually weeks when I look back and think, 'That was actually a GOOD week' ... becuase we finally have the support we need.
It just goes to show you - don't gve up pushing and advocating for what your child needs ... because eventually it comes. It feels a lot like that last piece of the puzzle going into place.
@Thoroughrob (11742)
• United States
29 Mar 07
It seems like such a long time coming. I have learned to talk the Drs. into getting some things he is going to need before he needs it. That way when we do, it is hear because it takes so long to get. When my son was 8 he was 50 lbs. and was easy to get around. In 3 months he gained 35 lbs. because of medication. We needed some things to help us in the bathroom and around the house. It took 6 months. We were in a mess.
1 person likes this
@brendalee (6082)
• United States
23 Mar 07
Wow, that is great news. I am so happy for you and your son. I hope that they help make your lives easier and happier. You know that saying..."Good things come to those who wait". I'm glad you wait is over.
6 people like this
@rainbow (6761)
•
23 Mar 07
Wow, finally your son gets the equipment he needs - fantastic, you must all be so excited!
How is he getting on with the speaking machine, you said it was a big help and he was getting better at using it before. The touch screen must be brilliant for him too. I cannot even begin to imagine how much a power wheelchair will help you all on trips out.
Have fun with his new gadgets, thay should make life easier too.
4 people like this
@Thoroughrob (11742)
• United States
29 Mar 07
We finally have started getting everything done on the device and we can't get him to put it up. Even at bedtime he has a fit. I am really trying to enforce the fact that it is not a toy and make him tell me what he wants and tell me things with it. It just is really cool and going to take a little while to really understand that he can talk to us.
2 people like this
@visitorinvasion (7709)
• United States
23 Mar 07
That is so cool, Rob. I'm really glad for you and your son. I'll bet his newfound freedom is making his life a lot more fun. Enjoy your new reason for keeping busy :)
6 people like this
@babyhar (1335)
• Canada
23 Mar 07
That is so very wonderful that these things finally had shown up for your son! I can only imagine how thankful you must be!
It must also help make your son's life a little bit easier because of these things that he will be able to use. It is always a nice surprise when things eventually fall in to place. I am glad they had for you, as well as your son! That is such wonderful news!
I wish you all of the best! xx
@sherrir101 (3670)
• Malinta, Ohio
23 Mar 07
Miralces do happen. And all in the time they are supposed to. Why, I have no clue. I am so happy for your family. I know it must be a blessing.
@JoyfulOne (6231)
• United States
23 Mar 07
That is so wonderful! I'm so happy for your son and your family, it will all make such a difference for him! He has *got* to be in heaven seeing all the new possibilities opening up for him and bringing him a whole new world. Kinda funny how it all came at the same time...the wheels of bureaucracy go really slow sometimes, don't they?! Much happiness to you and your family thoroughrob!
2 people like this
@claudia413 (4280)
• United States
23 Mar 07
It's nice to hear that your son finally got the equipment he needed so badly. It should make life so much easier for him and the whole family. It was a shame it took so long, but at least he finally got it. I know some of what you've been going through since my niece had many of the same problems with getting aid and assistance with her son who is now 11 and has muscular dystrophy, autism and some mental retardation. It's a rough road to go down for all concerned. God bless you and your family.
@Thoroughrob (11742)
• United States
29 Mar 07
I don't know why they think they need to make things hard for us, don't they think we have enough to deal with? I would love to let one of them take over for just a day, when they start giving us a hard time. Good luck to your neice and if I can be of any help let me know.
@ElusiveButterfly (45941)
• United States
29 Mar 07
I have never understood how insurance companies can even think to wait so long to approve a much needed piece of equipment for someone. They need to realize that the equipment will improve a persons life. It should be a no brainer when it comes to this. In my previous job, I received so many denials for equipment that would have improve a patients life. Many times the parents or patients would give up. Not me. I would get their permission to proceed with the prior approval and fight tooth and nail for them. Often times it would get approved.
@Thoroughrob (11742)
• United States
29 Mar 07
Why should we have to fight? We have enough on our plates. It seems like all I do is deal with Ins. and Medicaid, schools, Drs. and therapists. I spend at least 8 hours a week dealing with one of them. I think the parents just give up. They have to use their energy concentrating on the patient and they are just drained. There are times when I just have to put things on hold just to keep my sanity. It is so nice that you kept persuing for them.
@melanie652 (2524)
• United States
23 Mar 07
Great news! Yes, it is interesting how things just fall into place. I've decided that's how you know something is just meant to be. Keep us posted on his progress!
3 people like this
@hockeygal4ever (10021)
• United States
23 Mar 07
I'm so happy you've finally found the resources and ability to get him what he needs. It's difficult to help any child learn without the proper tools, with or without disabilities. Good luck with your new toys and have fun learning with him!
1 person likes this
@imadriscoll (2228)
• United States
23 Mar 07
Some people believe that God won't give us any more then we can handle ... I think that everything in this world tells us that it's not true. I believe that God gives us much more then we can handle so that we are forced to rely not on our own strength, but on His strength. I think He's blessed you with the arrival of all of your son's equipment at just the right time. I'm sure that you will be busy putting everything together, but in the end it will be so worth it. Congratulations!
@Thoroughrob (11742)
• United States
29 Mar 07
Thank you. It has taken a lot to get things working!! We have been quite busy.
@sigma77 (5383)
• United States
23 Mar 07
Sometimes it is the power of the universe acting to fulfill your wishes. I am happy that your son finally has everything he needs. I hope for you continued good fortune and hope that you are thankful for the last 3 weeks. It can lead to more good fortune.
1 person likes this
@byfaithonly (10698)
• United States
23 Mar 07
Oh what a blessing it sounds like the world is coming together for your son. I pray he will gain greatly from all the new equipment.
@dana234 (2114)
• Spain
23 Mar 07
Yes, sometimes it seems that all good things come together. That´s the better side of life. I´m glad that he´s got everything he needed now. Life will be so much easier for him now.
Blessings to both of you.
@cripfemme (7698)
• United States
13 Apr 07
It worked that way for me to once; my new power wheelchair speech software and my new manual chair came at once.
@jennybianca (12912)
• Australia
24 Mar 07
I am very pleased for you and your son. I don't know how old your son is, but I am sure he needs this equipment for a reason. And I am sure he deserves it.
Funny how thinga happen like this, all at once... almost.
@retardedrugrat (4790)
• Canada
23 Mar 07
I am so so happy to hear your son finally has all the equipment he needs in order to make your lives easier. I'm sure he must be loving his newfound freedom!
They say good things come to those who wait, and 2 years is a long time to wait!! But I'm glad that the wait is over.
Congratulations.
