Wheelchairs

@fay511 (43)
United States
March 24, 2007 6:28pm CST
Hi, I'm facing the possibility of having to get a wheelchair a whole lot sooner then I ever thought I'd have to. I'm finding this a very difficult thing to deal with. I feel like I'm losing the last of my independence and it's been a long slow yet in some ways fast trip down this road. I was always on the go hyperactive, a workaholic, on my feet, very independent person and this feels like a road to @@@. Has anyone else out there gone thru this? A relative? How did You or they handle it? Does it get better? Easier? I really am still looking for bright side of life and I know I have too much to live for, 2 kids and 5 grandkids, but sometimes it seems hard.
4 people like this
12 responses
• United States
24 Mar 07
My father landed in a wheelchair for about three years, he was eventually walking on his own again, but it did not last long. Being is a wheelchair is not all bad and does not mean you give up your independence, it just means that you redirect your independence. Don't give in to self pity for that will only generate resentment from your family members. You are still the same person you have always been just on wheels now. you may not be able to use your legs, but your mind and everything else works don't let that go.
@fay511 (43)
• United States
25 Mar 07
Hi, you're right. I'm just going through a temporary self pity phase I guess. I've had them before and come out smiling and I guess I will this time too but I'm really grateful for Mylot and these responses to remind me that even this isn't going to change me inside. Just the outside that the public sees, my family and friends know the real me and that's what counts. Thanks for answering my post and I wish you the best in all your endevours.
• United Arab Emirates
25 Mar 07
.. well said :)
@mamasan34 (6518)
• United States
25 Mar 07
Hi there! It seems you are already on the right track to finding the brighter side to life. A wheelchair can be restrictive if you allow it to be. Thanks to modern technology in electric wheelchairs, there is more to enjoy in life and independence. My friends mom has been restricted to mainly bed rest and wheelchair because of her hips. She has a mind that is sharp as a tack, but she limits herself to mainly bed rest and it is sad. She fails to realize that she is also limiting her sons independence as well. He is almost 50 and has yet to find someone in his life, he commits all of his free time to her. Which is admirable, but sad at the same time. She has given up physically and is waiting to die. Your grandkids and kids will certainly appreciate and be inspired by how you can overcome these challenges in your life currently. I am sorry that you are having these health issues though! You can still be all of those things you described, even in a wheel chair. Don't look at it as a road to $&%*, look at it as a new challenge! I know it is easier said than done, but keeping your mind in shape and spirits up is very important to the health of your body too. Don't give up like my friends mom did. You sound like a vibrant and vivacious person, keep that up and find new ways to interact, hurdles are meant to be overcome. I hope this helps.
1 person likes this
@fay511 (43)
• United States
25 Mar 07
Hi, I want to thank you for telling me about your friends mother, I certainly don't want to do that to my family! You've given me a kick in the butt that I needed to wake me up to realize it's not just me in this mess, it's my family too! I lost sight of that in my own self pity party and now is the time to grab my boot strings and pull myself up and get it back together. You're right I've never given in before & I'm not going to start now! Thanks So Much For Needed Kick In The Butt!
1 person likes this
@classy56 (2880)
• United States
25 Mar 07
dont give up hope,you can still have an active life even being in a wheelchair.an dont let the thought of a wheelchair bring you down.you life could be alot worse.so always look on the bright side.i know a wheelchair is something no ones wants to think about.but my nephew is in a wheel chair an he is doing just fine.an if a child can learn to deal with it.i quess i could to.i hope you dont end up in a wheel chair.but if you do.get a moble one.than you can race against your grand kids.kids loves doing that.i wish you the best!
@fay511 (43)
• United States
25 Mar 07
Hi, I'm not really giving up hope, I guess I'm just having a temporary self pity party. Between my back injury and fibromyalgia and chronic fatigue I just feel like I'm not me anymore and the wheelchair is like the last straw. I will find bright side again with people like you helping me. Your right if your nephew can do I can too. Thanks for your answer to my post. I wish you the best.
1 person likes this
@cripfemme (7698)
• United States
25 Mar 07
I've been in a wheelchair my whole life. I'm still happy and independent. I know it's a big adjustment and probably different if you've been walking in your life previous. But their are lots of people who can help you adjust. You can e-mail mail me and I will try to hook you up with resources and supports in your local area (I'm sure I know someone or at least know someone who know knows someone; I'm surprised you weren't referred to a support group by your doctor). You'll be back out there in the swing of life with your kids and grandkids in no time.
@fay511 (43)
• United States
26 Mar 07
I want to thank you for writing and your offer of help. You're the second person to mention support groups which hadn't even crossed my mind. I wil be checking into that. I may just take you up on yor offer to email you for other things though. Thank You for that offer. I tink it is different having been able to walk in the past but you definitly sound like you've had a very full and active life. I checked out your profile. I will be responding to some of your discussions too. I wish you the best in all things and will keep you in my prayers.
@Bee1955 (3882)
• United States
25 Mar 07
Do wheelies! - wheelchair
I know its hard to change. I miss climbing the mountains, going on country roads and a few other places I cant reach anymore. I used to hike and do primitive camping, but you have to look at it another way. You are not stuck at home, waiting for someone to help you or ask for help, and have mobility once again without dependence. You have to look that its a new possibility you couldnt do before your ability to walk was taken and count your blessings.
@fay511 (43)
• United States
26 Mar 07
You sound alot like me, on the go all the time. Yo've got a point though, instead of resenting the wheelchair it will give me the freedom to do things I haven't been able to do for a long time. Such as get back outdoors and just go for a long ride instead of a long walk, but at least I'll be back outside again! I can't stand just sitting still in one place unless it's a picnic or swimming etc. otherwise I had to be moving. The chair will give me that option back. I really hadn't looked at it from that point of view before. Thank you! I wish you the best in all things.
@pillusch (1147)
• Mexico
25 Mar 07
I'm in a somewhat similar situation, although I don't think that I'll end up in wheel chair. But I'm limping badly already, I'm starting to use crutches, and later, who knows. I'm trying to deal with this with the most magic of all formulas: acceptance. If you tried everything else to solve a problem, that's the key to 'solve' them all.
@fay511 (43)
• United States
25 Mar 07
I hope you never need anything more then the temporary use of the crutches. You didn't say what happened to you but I hope it's not permanent. What you said about acceptance is true though. I've had to learn to do it a lot over the past few years as my physical condition has worsened. If at some point you do need a cane don't let them shove an old ugly looking silver one at you if you find it disgusting to look at, let alone think about using. They did that to me & I resented that cane and refused to use because I felt like it made me look like my great-grandmother. About 2 yrs later they started sellling canes in catalogues that were decorated and I bought one. I was no longer ashamed of using a cane, I still wasn't thrilled about needing one but at least I used it! Anyway I will be taking what you said & putting it to use. Start accepting the fact that I do need it, instead of resenting it. Thanks so much!
@XuryaZ (479)
• India
25 Mar 07
If ur sick & Have some diabilities. Take the wheel chair. This wheel chair is the freedom. If u cant walk or is forbidden to walk for sometime.
@fay511 (43)
• United States
25 Mar 07
You know you're right. I didn't look at from that point of view before, but when I go shopping I always use the electric carts they have because it lets me take my time to find what I want & not have to just grab the first thing I find so I can get out of the store. Thanks.
@vanities (11395)
• Davao, Philippines
25 Mar 07
why you need a wheelchair? life doesnt end on a wheelchair..you must think positively..you can still do alot thingswhile in it...nope ..no relative whose in wheelchair
@fay511 (43)
• United States
25 Mar 07
I got hit by a car when I was 15 yrs old. I was walking across a four lane cross walk with the walk light when a lady floored it from the red light at the stop before where I was, they estimated she was doing 50MPH when she hit me. She hit me on the left side and hyperflexed my left hip out and I was told I flew 3 lanes over & landed on sidewalk on my right side. I don't remember anything except coming to on sidewalk. Back then they didn't take you to hospital if you could get up, which I did, and I walked 3 miles home. This wasn't a major highway wither it was a city street that had 2 lanes to go straight and 1 to go left and 1 to go right. The speed limit was 25 because it was right in front of the Junior High School that I was leaving. Anyway over the course of the years the damage from that accident has caught up with me. Thanks for your post and words of encouragement. I appreciate it.
@asteriskec (1074)
• Philippines
25 Mar 07
Please don't forget to look for support/help groups which you can join in. I'm sure there are a lot of people in the same situation who can help you greatly. Don't forget to pray and never become sad just because you're in that type of situation. I think what you really want to do now is to be more grateful that you're still alive and that you still have so much to live for. Take care! :)
@fay511 (43)
• United States
25 Mar 07
Thank you for posting! I almost feel like I've hit on a support group right here. The response has been great. The encourgement has helped as does yours telling me to look for support groups, which I will do, Thank You. I do pray and and will add you to my prayers also and you're right I do have a lot to live for!
@ElicBxn (63235)
• United States
24 Mar 07
I have a friend that has ended up in a wheel chair for any distance. She has been heavy since I've known her (31 years) and has only gotten heavier. I say that we've both doubled our weight since we met, but mine was only about 110 lbs, she was more like 200. I would start working on your upper body. Talk to the doctor about getting a "racing" type wheelchair that is easier to use than the "traditional" kind. If you have to get a "traditional" kind, make sure you can take the arms off before you accept it. I sprained my ankle really bad in the late 80's & borrowed a wheelchair from the office (it had a few donated by people that had moved on to new chairs.) I took the arms & feet off of it & it made it much easier to use. I rolled around the office in my office chair, but used the wheelchair for bathroom or breakroom visits.
@fay511 (43)
• United States
25 Mar 07
Hi, I didn't mention it in my post but I have fibromyalgia and it has done a lot of damage to my rotor cuffs so I'm going to need an electric wheelchair. Further loss of independenpendence I'm afraid. But your comments will hopefully be in time to help someone else from having the same thing happen to them too. Thanks for answering my post and best of luck to you & your friend!
@Grillmama (294)
• United States
25 Mar 07
I was in a car wreck almost 2 years ago where I almost had my right foot cut off and the heel got crushed. In addition to that I broke my left arm,broke left collarbone,broke several ribs and was badly bruised on other parts of my body. I was in a wheel chair for several months and it is a scary thing to have your independence taken away. You slowly adapt. I am back walking and driving miraculously but I still cannot walk long distances without help of a cane.I just have to be glad to be alive to enjoy my grandchildren. I hope this helps.
@fay511 (43)
• United States
25 Mar 07
Thanks for the words of encouragement. I guess you're right about slowly adapting I've slowly adapted to asking for help with a lot of things over the last few years. I so agree that having kids and grandkids are a great reason to be alive!
1 person likes this
• United Arab Emirates
24 Mar 07
Being in the Medical field one gets to see a much darker side of life .. Things like having to tell a 7yr old boys parents that he only has 3 more months to live or telling a mother how the little life growing inside her doesnt have a fighting chance ... When things in our lifes do not go according to plan.. its best to think that it happened for a reason and that its for the better :) You do have a lot to look foward to namely 5 grandchildren who are all beautiful and talented no doubt ... let them be your source of strenght,inturn be their of inpiration and courage . That no matter what the odds you came out strong and with a smile on your face :)
@fay511 (43)
• United States
25 Mar 07
Thank you for that. You're right. That is what I've always tried to do and am trying to do now. Thank you for the reminder, I NEEDED THAT!