Quetta

@Quetta (13)

United States • Age 43

Joined myLot 15 years ago

Discussions (7)

Comments (1)

Quetta's Comments

Today was hard!

Quetta @Quetta (13) • United States 2 Jul 09

I have a 4 year old with Monosomy 21. This has just been a hard day. I went in to check on her this morning and found that over night her escema had flared up. She was in pain. I bathed her and oiled her and gave her pain meds....

1 response

Quetta Because my daughters' condition is so rare the doctors are unsure in what to do. She has a PCP, 3 specialists, and a genealogist. She is on and off of oral steroids. Also oral steroids cause diabetes and we are trying to avoid any medical conditions we can...

6 Jul 09