Do you have a health condition no one understands?

As a fellow migraine sufferer, I appreciate your efforts to spread the word about the severity of this condition. I have a couple illnesses that I don't feel people understand, but one that stands out is fibromyalgia. I picked that one because a doctor actually once told me it didn't exist, and the disease was all in my head. Well, of course, I never went back to him, but it is frightening that other people could suffer with this, and be told they are simply lazy or making things up. If anyone wants to know more about this illness, they can go to www.fibrohope.org.

I have sarcoid, celiac and diabetes.Trust me, no one gets it at all.I sometimes have trouble understading it all, and I'm in here with it. http://www.csaceliacs.org/celiac_symptoms.php http://www.diabetes.org/about-diabetes.jsp http://noairtogo.tripod.com/sarcoid.htm I'm sorry you have migraines, the pain must seem intolerable.Stay strong!!

I have Fibromyalgia so I know what it is to have a condition that no one understands. It's not even classified as a disease because no one can figure out what causes it though most of us who suffer from it have a lot of similar stories. Most doctors who don't believe it exists use it as an umbrella term for any chronic pain condition. So when they figure out what's actually wrong.. ta daaaa.. they're cured. Those of us with true Fibro know that there is no cure. But because of those with faux-Fibro that get cured everybody seems to think there IS a cure. Personally I think doctors tend to not believe Fibro exists specifically because they can't figure out what's wrong or what to do about it. They feel helpless and that goes against the physicians ego, they just don't like being stumped, ergo it can't exist! LOL! Some logical thinking huh? I have had people tell me I was crazy, mentally defective, a hypochondriac, and say to me with a straight face that they can cure me. I'd like to punch each of them right square in the mouth. I think the biggest thing people have a problem with (non-medical persons), is the fact that we look perfectly normal. We don't look as sick as we are. I have learned to be an Oscar winning actress in covering it up and pretty much the only people who know I'm sick are my friends. Since they see me at home when I'm not acting they know how sick I am. Personally I think some poor woman way back when was responsible for the story of The Princess and the Pea.. it fits! Sorry that just popped in to my head for a second.. LOL. Here's a good site to learn more about it. http://www.fmnetnews.com/basics-symptoms.php I can sympathize with your migraines hon.

Well I use to have a very weak heart, and stress would almost easily put me in jeopardy. 4 years ago I was able to beat it. My heart was stronger and BP wasn't at weird levels. I still am cautious when it comes to stress even though my condition improved.