a life of pain....

United States
January 19, 2008 1:09am CST
hey all~ so i'm new here, first off sorry for the bad punctuation etc., its hard enough to type w/ the rsd in my hands so i say in advance i'm sorry. like i said i have rsd. in both legs/feet and both arms/hands. i've had it for about 4 years now and roughly 3 years ago my best friend, who dosent have rsd, and i founded a website that has since gone on to become a nonprofit org.! 4 years ago my life changed, i was hangin out at a friends house helpin him work on some computers and i tripped over a make shift childs gate. the way i landed on my foot was simply put brutal. i hyper extended all the soft tissue and had it eventually diagnosed as a 'severe plantars sprain' well 18 months and many many many dr.'s apt.'s later i was finally told i had rsd. the disease moved up the right side of my body then down the left side and has wreaked havoc on my life as i knew it. i was really into doing extreme sports, now i can just watch. i was in pretty good shape, not not as much. i used to sleep normal....not so anymore. i had a job, now i cant work any substantial amount, the pain and other symptoms get in the way. i do manage to help run a local youth center, and i also help w/ the website i helped found. so that brings me here....i want to know about your life in pain....maybe in sharing we can help eachother. we have a forum on my site and it has helped there...so why not here?!?!
2 people like this
4 responses
• United States
28 Jan 08
Hi- I do not have RSD, but someone I care for very deeply has it.My mother.In 2001 she was involved in a near fatal car accident that left her in a coma, she suffered several broken bones and a starburst fractured heel.They put a cast on,but never repaired the fracture.After she came through from the coma they prescribed months of PT, when she could no longer do the excersizes they had her doing, from the intense pain, they dropped her,saying basically that she had given up, and there was nothing else they could do for her.She went into a deep depression because of the pain, and doctors dismissing it.She finally found a doctor that diagnosed her with RSD,this gave her some hope...except the visits alone were 2000.00 a pop.She couldn't afford it,so has been going to just the pain specialists.I will be honest,I don't know if they are helping her or crippling her.She is still in constant pain and has just developed blood clots, from lack of movement because the disease has taken over.Is there a light at the end of the tunnel??? She seems to be giving up...if there is any information that you could give me I would appreciate it,maybe I could pass it on, or share it with the doctors that treat her, seems the disease is so foreign where we live.Thank you in advance._Heidi
• United States
29 Jan 08
Thank you for this information, we will definitely be looking into these sites ...Heidi
2 people like this
@Ann2407 (306)
• China
19 Jan 08
Hi ubuntujason,you live a great life,welcome to mylot.
2 people like this
• United States
23 Jan 08
Welcome to MyLot! I think all things considered, that you are a very blessed young man. Blessed with an abundance of friends and family and a lot of support. Keep up the great work! I am proud of you!
1 person likes this
@bamcee (15)
• Philippines
11 Feb 08
Hi ubuntujason! Sounds you are too brave to endure pains..not only physically but spiritually as well. I salute you for that. Keep it up. Bam
• United States
11 Feb 08
bam~ thnx for the encouragment! i appreciate it :)hope ur well ~j