Greetings! Osteogenesis Imperfecta

Canada
February 1, 2009 4:57am CST
Hello to all to the Osteogenesis imperfecta section of MyLot, I was born with type 111 OI (oi short for osteogenesis imperfecta), I am 26 year old female. This condition causes the people with it to be dwarves (although some mild cases doesnt affect height but thats rare) and many can not walk as well (im 4 foot and use a wheelchair), This condition causes fragile bones and some other things, but the fragile bones is the major part of the condition. Some symptoms for this are blue sclera. and if they are babies. non stop crying.. not a cry for attention but a cry. if you have had children you know the difference between what type of cries babies do. I cried non stop as a baby now we know why, fractures. If you suspect that your child may have this or have questions please let me know, this is why I created this thread. Because many times lil childrean are taken away from their parents when the fractures are discovered and parents are charged with child abuse when in the end it turns out they have this brittle bone condition, very sad. I was one of the ones this happened to. was taken away for 6 months till I was finally diagnosed. So my purpose of this thread is to help any parents that may suspect their child has this and to prevent what happened to me as a child to happen to others :) happy mylotting!!
1 response
@twoey68 (13651)
• United States
3 Feb 09
I've never heard of this before...so it's a form of dwarfism? Is it a hereditary thing? It must be awfully hard to deal with. [b]~~AT PEACE WITHIN~~ **STAND STRONG IN YOUR BELIEFS**[/b]
• Canada
3 Feb 09
as I stated yes its genetic.. as for being a form of dwarfism. in some cases. Mild cases of this can be "normal height" so its not always the case. have you seen the movie unbreakable? there is a character with my condition although I have to admit they made a few mistakes about it in the movie, but what do you expect from hollywood? lol
@twoey68 (13651)
• United States
3 Feb 09
Ah, so this is something that runs in your family. Well, at least it is something that if they know it's a family thing, they can watch for it. I haven't seen that movie but I might look it up when I can. Thanks for letting me know about it. [b]~~AT PEACE WITHIN~~ **STAND STRONG IN YOUR BELIEFS**[/b]