Endometriosis and laparoscopy

@beeeckie (803)
United States
March 22, 2010 11:15am CST
I have endometriosis and have suspected so for several years, and only just this past week did I finally get to have a laparoscopy to scrape out the offending tissue because I finally found a caring ob-gyn who understood the condition, and more importantly, took me seriously. I had been dismissed for many years as just having "normal" ovarian cysts even though they would happen every few months and would frequently make me ill for a few days with enormous pain. The chronic pelvic pain had been so severe in the few months building up before surgery that there were times I couldn't stand or walk without being in excruciating pain and I would often feel nauseous and not even narcotic pain killers were helping. (All they would do was make me able to get through a work day standing up, but still!) Now the surgery's done, my little stitches are healing, and I'm waiting for my follow-up and biopsy results. It looks like my future options might include depo-lupron to induce temporary menopause, and further down the road, possibly a hystorectomy. I am 28 years old, so either of these options are extreme. I'm old enough to understand the gravity of these options, but my girlfriend and I had also begun talking about having a child within the next several years, so these are big choices I am facing. We decided at the start that I would be the one to carry the child should we have one. There's always adoption, but that's a whole other topic. Do you or does someone you know suffer from endometriosis? Although I still have pain, I am very glad I had the surgery to remove the mass of tissue, cause it was getting so big. What did you do, or what do you plan to do?
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4 responses
22 Mar 10
I suffered the same after the birth of my son. I was very lucky that I had a sympathetic doctor and was treated very well in our local hospital. Unfortunately, because I had been suffering for a while, the only treatment they could offer me was a hysterectomy but having one child I was happy to take the advice of the doctor.
@beeeckie (803)
• United States
22 Mar 10
Thanks for your response. It's interesting you started having it after pregnancy, there's a myth that pregnancy cures it.
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22 Mar 10
Sorry to say, pregnancy is no cure,
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@beeeckie (803)
• United States
22 Mar 10
Yeah, endometrial tissue will just keep growing after the baby's born! At least treatments are becoming more accessible (if still imperfect) and it's now considered a disease of any age instead of just middle age.
• United States
24 Apr 11
I was diagnosed with Endometriosis through a Laparoscopy almost 15 years ago. I was 30 at the time. The Laparoscopy came after 4 months of constant pain that, as you describe even narcotic pain meds wouldn't touch. I also tried the hormone therapy that put my body in a temporary state of menopause. It helped the pain, but I felt like I was going crazy (think loose cannon on deck) while on that medication. I knew a hysterectomy was the usual course of treatment but the idea of being post menopausal at 30 really bothered me. I spent 6 years either worried the pain would come back when I wasn't in pain or worried the pain wouldn't go away when I was in pain. A few months before I turned 36 I stumbled into a raw food diet. I didn't give any thought to any benefits for the endometriosis. I was just exploring a new idea. I reached about 80% raw organic nuts, seeds, fruits and vegetables. There are some cooked foods that were just too yummy to give up. :) Three months after starting on a raw diet all the symptoms of the endometriosis went away. No more mood swings, no more pain. It was great. I'm not a doctor and haven't researched if any studies have been done. I can only share my personal experience. I stayed about 80% raw for two years and to this day I still have no endometriosis related pain. Some people ask me "Isn't that radical?" The only response I can give is "Which is more radical? Changing your diet for a little while or having a hysterectomy?" The other great thing about it is that if it ever came back, I feel empowered with the knowledge to heal myself. Endometriosis can leave you feeling very helpless. I hope you've found answers that feel like a victory rather than a compromise. Hugs, Aliana
@beeeckie (803)
• United States
18 Jan 12
Thanks for your responses! In brief, I got my left ovary removed this past October, 3 months ago. Turns out there was a large endometrioma inside it, which had been there for who knows how long. Lucky for me, removing the ovary removed has ended virtually ALL my pain. I hope it stays that way, and everyone keep pushing for your solution, living with pain is not fun and we all deserve better!
@cher913 (25891)
• Canada
22 Mar 10
i ended up getting a partial hysterectomy because of it. i had really wacky periods, 2 one month, a two week period another. i am glad i got it done!
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@beeeckie (803)
• United States
22 Mar 10
Wow, I wonder if you had fibroids also?
4 Jun 10
I found out that I had severe endometriosis a number of years ago. I had been back and forth to the doctors with terrible pain which had got so bad that I was often laying in bed in agony. Myself and my husband were also desperately trying for our first baby and after two years of no luck I was referred to the hospital where i underwent a lapparoscopy which they than found out about the endometriosis. They burnt a lot out though told me they had to leave certain bits as it was too dangerous to try to burn it out die to its position. They also said that it would come back and another op a little while later confirmed that it had and again a lot. It was then I was told I had only a 1% chance of ever concieving a child naturally. Obviously it tore my life apart. I was devistated as I desperately wanted a baby so we started going down the road of help via IUI as it was a cheaper option than IVF and couldnt afford it. As my husband had a daughter from a previous relationship we were told we couldnt get any NHS help which I found a little unfair as I didnt have any children but anyway back to the story! On the morning of one of our tests I randomly took a pregnancy test - something I did about twice a month at least in hope even though I knew there was little hope and by some miracle two blue lines showed up - I was pregnant! We now have a beautiful little two year old girl and have been trying again for two years for another baby with no luck and although it is upsetting to think I may not have another baby as my daughter was such a miracle though I am so blessed to have one when I was given such a small chance. I am due to have another op in the next couple of months to remove any scar tissue and such. During my preganancy it seemed that the endometriosis didnt grow and I didnt really suffer any pain until the later months when I developed SPD though I am not sure whether thats related or not. I wanted to say to those who do suffer endometriosis and want a baby - dont give up hope. I had a mere 1% chance of ever having a baby and a miracle came to me in the form of my beautiful daughter.
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