Suffering from Agoraphobia....Do u know someone who suffers from that as well?

United States
January 2, 2012 7:04pm CST
I recently found out from my Therapist that I am suffering from something called Agoraphobia. I have never heard of that before so he had to explain it to me. Here are the facts: (1)People with agoraphobia often will not leave the house (2)The exact cause is unknown (3)Most people develop agoraphobia after having panic attacks(4)Fear of being in a crowd, shopping, standing in line, or similar activities (5)Fear of riding in a car, bus, or train (6)Avoidance of situations that might cause a panic attack (7)Restriction of activities outside the home (8)Feeling of being safer with a trusted friend(or in my case, my husband) (9)Lack of interest in normal activities & (10)Becoming homebound. The list goes on & on. Fortunately for me I am not as bad as some. My Therapist said that some people who suffer from this will not leave their homes for any reason, so I could be worse. I will leave the house as long as I know the person I'm going out with well. I will only go to places I have been to before or know well. If my husband & I are going some place that I have never been to before I get very nervous which causes me to panic. Long car trips are almost impossible for me unless I take something to help me sleep & whenever I am in a place where there are large crowds I stick to my husband's side like glue. I never used to be this bad but as I got older my stress & anxiety got worse until it got to this point. I know for a fact that my husband loves me because any other man whose had to put up with what he's had to would have left me long ago. I thank God for having him in my life every day that I'm alive. Do you know anyone who suffers from this or something like this? How do they deal with it? I'd love to hear your thoughts on this.
2 people like this
6 responses
@MaryLynn321 (2680)
• United States
3 Jan 12
I can say I had something very similar, which started after my daughter was born. I also have something similar to IBS (irritable bowel syndrome), which I think is what caused the panic attacks. Having to worry about having to use the bathroom or if I would make it to where we were going would cause the panic and anxiety. We lived in the country so going to town became a chore. Taking walks, drives, going grocery shopping, etc., became a chore. First thing to find when we went to a store was the bathroom. I seemed to calm down some what if I knew where the bathrooms were. Then when the kids got older and into activities, I would force myself to go, and of course had to know where the bathrooms were. Over time things got a bit easier, then when the kids needed to go to the college for help for their studies I would force myself to take them and I would stay there and read magazines. Then the next year or so I would force myself to drive the rest of the way to town while they were in class and then come back to pick them up. I think what really helped me out is I became friends with a lady that I had told about my conditions. She asked me to go to lunch and I said what if this should happen. She said who cares, sit on the outside of the bench. And from then on we would get together with out kids and go places. It was nice to have someone who didn't judge me for health conditions that I had. I have found since I have not been working and things have gotten tight with the economy that I am home more often and the scared feelings and anxiety are starting to come back. I couldn't even go visit my Mom with out having what I called and attack, I think because my mom could be critical or judgemental. As far as long trips went, we would figure out where the bathrooms would be, gas stations, etc., which helped. I started years back if I felt the panic setting in I would close my eyes and keep them closed till we got where we were going. This really helped. As I could not see how far along in our trip we were. If you take this step by step, I think you can talk yourself out of your attacks. It took me several years to feel somewhat comfortable, and then I started doing volunteer work and got out of the house more, and then I got myself a job. I hope that you can over come this problem. If you ever need someone to talk to about this, just give me a holler. My sister said once to me, that she had thought that it was beginning to be a phobia with me, and I totally agree. Good luck to you.
• United States
4 Jan 12
Thank you so much for your comment. I did tell some people in my congregation about this. I had no choice. They would ask me to go out with them & I would always say no. I didn't want to seem rude so I told them why I couldn't. It was then that I got the strange looks. Now no one ever hardly speaks to me & I no longer get asked to go out with them anymore. It's refreshing to see that there are some people out there that understand what I'm going through & don't think of me as crazy.
1 person likes this
• United States
4 Jan 12
You are far from crazy. It is only a condition. But, if we let it, it will take over our lives. I remember those looks from family and friends. It's is those friends that stuck by me that helped me to work through the symptoms. Once someone understood then I did not feel so isolated. I talked about my condition alot. I remember my sister saying, when I ask how you are, that doesn't mean I really want to know. With that I stopped complaining or talking about it. I also remember when my sister got really sick for a long time and had many of the symptoms I had, that she said, she never really could understand what I was going through, but now she understood, having gone through it herself. Try and see if you can find a support group. You will be amazed how talking can help.
1 person likes this
• United States
7 Jan 12
Again thank you for your encouragement & your advice.
1 person likes this
@NailTech (6874)
• United States
1 Feb 12
I have heard of it. In fact I'm living it--to an extent. I've had this ever since I was a child but it got worse with age and after graduating high school. I was almost kidnapped on the street by a man while walking to school--more than once by the same guy. I never told my mom til much later, out of fear of some kind. I didn't even want to go out to get a job after high school, I didn't want to drive anywhere, etc. I always had to be with a family member to go anywhere. I can never go anywhere alone, even now, it can be really dibilitating. I have had the same doctor for years and it's amazing how he never seems to catch on to it, all he does is reprimand on how I should socialize more. I have never gotten any kind of compassion over the fact I have had it and am sure my family hasn't even heard of it so I never bring it up. They just think I'm some wierd person who just has a fear of everything. :(
• United States
6 Feb 12
Well trust me you are not weird & your are not alone. Your regular physician would not have thought of this as the problem because mine didn't. It wasn't until I started seeing a therapist that he diagnosed me w/ agoraphobia. I didn't even know what it was at first so I had to ask him to explain it to me. He said there a many stages to this. Not all people who suffer from it stay in the house all the time. Some like you & me will go out but only w/ family members or people we feel close to/safe with. So please don't think of yourself as weird because your not. This is something that happened to us through no fault of our own. Never allow anyone to make you feel less of a person because of something that you can not control. I am just learning that now myself. It's hard I know because despite what we are told we do care what people think, but if it pushes us backward instead of forward then that's when we have to start putting ourselves first. This may even mean cutting those people out of our lives.
@KrauseHome (36448)
• United States
17 Jan 12
My mother was like this. She suffered so bad for many yrs. but I am sure a lot of it was due to the fact that she was so severely abused in her past she was afraid to be around someone new for fear of rejection. I have heard with panic attacks and many times depression that things like this can happen, and the Best thing to do usually is find things that you enjoy, and try getting out and doing them. If it is with your husband go enjoy and try and learn how to relax. Even with me sometimes there are days I wish I could do more hibernating, especially when I am not feeling well, and things seem to not be going my way. But due to the Dream of really wanting my Own Business this is something that I try not to bog me down too often as well.
1 person likes this
• United States
6 Feb 12
My husband & I sometimes go out just for short trips so that I can get ready for a much longer trip that we have to take. Sometimes this helps me prepare for the longer trip & to try not to panic on the day when we actually have to leave.
@airasheila (5454)
• Philippines
3 Jan 12
Pleasant day Robswife2006, I never knew that there is a sickness like that. Before when somebody loves to stay at home, he or she will just be tag as a homebuddy. But know, it is a type of sickness that needs healing and therapy. I do not know someone who suffers that type of illness. But, what you have written will surely help mylotters to identify if they knew somebody who suffers in that sickness. As what you have written are the signs and symptoms that can be observed on the person who is having that agoraphobia. Your main topic discussion is an informative one.
• United States
4 Jan 12
I always knew there was something different about me. I mean I would panic whenever I was in a crowded area, but I never knew there was a name to it. Knowing what is wrong with me is the first step toward getting the help I need to deal with it. I am hoping that someday I wont panic at the mere thought of going out in public.
@kay2aT (73)
3 Jan 12
I've heard of that before. That must be terrible to have that kind of anxiety! I have anxiety problems also, but not quite the same way as yours. My husband has never had anxiety so it is hard for him to understand me and what I go through, but he is trying too. I hope your therapist helps you to get better from this problem real soon! Hang in there you can do it!
• United States
3 Jan 12
My husband tries his best to understand but of course unless you've had a panic attack before you can't really relate to what that person is going through. There is no cure for Agoraphobia, but my Therapist said that there are some ways I can learn to control it. I hope so, because this is not something I want to live with the rest of my life.
@zaahro (748)
• Indonesia
3 Jan 12
Hello Robswife... I've never heard about that kind of illnesses before, I am so sorry for you and hope you'll be free from that odd but serious Agoraphobia. I can't answer your question but you give me a new knowledge. I suggest you to keep positif thinking that you are safe, no need to afraid of something that sometimes disturb you. When you are with your husband, you have to encourage yourself and believe that it is just a simple thing to pass just like yesterday. Keep spirit :)
1 person likes this
• United States
4 Jan 12
Thank you so much for your encouragement. It wont be easy, but I just have to take it one step at a time. I'm hoping someday I will be able to go out in public or on a car ride with out have bad anxiety or a panic attack.