Progeria – Any one heard about this?

@Sreekala (34312)
India
March 25, 2017 4:04am CST
I was reading the newspaper today and a news item caught my attention. A 10 years old boy, who is suffering from Porogeria become the Chairman of the Madhya Pradesh State Commission for Protection of Child Rights for a day. I term ‘Progeria’ is pretty news for me so I searched in google and gathered more information. It is a progressive genetic disorder which causes a child to age quickly. This is a rare genetic disorder and the affected person may live a short life. It is disheartening to see the image of the boy who was happy on getting a high position just for day. Self thought of mine – Our knowledge is really limited. Let the boy live happily as far as possible.
10 people like this
9 responses
Tokz
@ilocosboy (45157)
• Philippines
25 Mar 17
I nearly cry when I watched a documentary about this. It's really disheartening. We often complain about how hot the day is, not realizing how lucky we are.
3 people like this
Sreekala
@Sreekala (34312)
• India
29 Mar 17
Yes really we are very much lucky but we tend to complain about the limitations and agony. We are so lucky people infact.
1 person likes this
Kokil agarwal
@amitkokiladitya (171936)
• Agra, India
25 Mar 17
I heard of progeria for the first time..it is sad. I will read about it in detail
2 people like this
Sreekala
@Sreekala (34312)
• India
25 Mar 17
Yes, I too. It published on today's 'The Hindu'.
2 people like this
Kokil agarwal
@amitkokiladitya (171936)
• Agra, India
25 Mar 17
@Sreekala OK. Buy I don't get this newspaper
2 people like this
Kokil agarwal
@amitkokiladitya (171936)
• Agra, India
25 Apr 17
@HAPPSINGH you also
1 person likes this
Charlene Sally Collins
@OreoBrownie (3755)
• Commerce, Georgia
28 Mar 17
It's a terrible disease that ages the bodies of children and they look about 90 at 17. They rarely live past that age.
2 people like this
Sreekala
@Sreekala (34312)
• India
29 Mar 17
Yes, they hardly survive 16 years usually. It is a rare genetic disorder.
1 person likes this
nitsbubb
@nitsbubb (1308)
• Pune, India
27 Mar 17
I think I have heard of it! Is it one movie wherein Amitabh had acted as the sufferer (PAA) with Vidya Balan and Abhishek as his mother & father respectively? BTW this is nitsbubb from 'B' the other site.
2 people like this
Sreekala
@Sreekala (34312)
• India
29 Mar 17
I have not seen the movie and no idea about it. May be you are right, becuase I remember some posters of Amitabh Bachan similar to this boy's picture (the victim). I know you and I recognized you already as you have the same user name here.
1 person likes this
Bobbie_furr
@homebasedbobbie (1080)
•
29 Mar 17
Oh noh! Making me teary eyed.
2 people like this
Sreekala
@Sreekala (34312)
• India
29 Mar 17
Yes, it is so sad to know that some kids are suffering this way.
2 people like this
Bobbie_furr
@homebasedbobbie (1080)
•
29 Mar 17
@Sreekala I know. I feel you. If only human has power to take suffering off those who are already burdened, then there shouldn't be anyone in tears. However, it is only the Creator who can and has that power. Im sure he has reasons as to why this happens. Still, my heart goes to those to them always :(
Sandra
@SandraDeloite (22)
•
25 Mar 17
Oh wow just did a little reading myself and progeria sounds horrible!
2 people like this
Sreekala
@Sreekala (34312)
• India
25 Mar 17
It is indeed horrible. On the other hand I was wondering what we know in this world is very little.
1 person likes this
Ptrikha_2
@ptrikha_2 (45555)
• India
29 Mar 17
Yes, sad to know so. Sometimes, life can be so harsh, especially when one hears it being so harsh on kids. Is it the same disorder that was shown in AB and Vidya Balan starrer "Pa" (2010)?
1 person likes this
Sreekala
@Sreekala (34312)
• India
29 Mar 17
Yes, other people mentioned the same (film). In fact I was not aware about it. I haven't watched that movie.
1 person likes this
Nawsheen
@Nawsheen (28643)
• Mauritius
26 Apr 17
Never heard about it before. Very sad. But at least he is a leader and has been able to achieve something in.life. god bless him
ARM
@responsiveme (22926)
• India
26 Apr 17
First time I have heard of it.