"Alzheimer's disease and caregiver stress"

May 11, 2018 9:16pm CST
Being a "caregiver," of any kind, is a difficult job for anyone to have to undertake, and the stress that goes along with it can sometimes be incredibly, overwhelming. "I am a caregiver," and I can tell you that there are days I just want the world to stop so I can jump off and go sit in peace and solitude for a few days. You see, my wife has "Alzheimer's disease," and I am her "caregiver." Sadly my wife was diagnosed with "early-onset Alzheimer's disease," when she was only 52 years old. She just recently turned 57 and the progression of her "Alzheimer's," has been steadily going downward. It is a horrible, heartbreaking, disease that robs a person of their memories, and life skills. In 2016 my wife had to retire because the disease had made working almost impossible. I am retired also, and while this should be the time in our lives where we travel, relax, and enjoy life, like our friends are doing, it is anything but. Our daughters are grown, on their own, married, with children of their own, and working, so they pitch in when they can, and I appreciate the help they do give me. However, my life has gotten very lonely, and not fun at all. This is not the way I thought our future was going to be, this is not the way I planned it! I remember someone saying to me; "God doesn't give you more than you can handle." To that I say; "ya, well try it for awhile and then come back and say that." Being a "caregiver," is stressful, and demanding. So, if you know someone who is a "caregiver," be kind to them, offer them a kind word, a helping hand, a hug, you just might make their day.
4 people like this
3 responses
@PatZAnthony (14752)
• Charlotte, North Carolina
12 May 18
Caregiving certainly is very stressful and demanding. Most who have not had to help another human will never fully understand what this is like!. There are so many diseases we don't fully understand and it seems these won't be cured anytime soon.
2 people like this
12 May 18
Exactly! Most people don't understand that Alzheimer's is the only disease where no one has ever survived it.
1 person likes this
@Starmaiden (9311)
• Canada
12 May 18
My aunt is living with Alzheimer's. Hers began in her 50's also. She and my uncle were very active in their life. Hiking, skiing, canoeing, travelling, doing everything together. For many years my uncle wzs her caregiver. Eventually, it got too painful for him to watch his much loved wife of many years deteriorate from this wretched disease. He had to resort to putting her in a nursing home where she can get the professional care she needs. She has no memory of him or any of her family. It is very sad indeed. I admire your strength, courage and love for your wife to take on such a challenge.
1 person likes this
12 May 18
Thank you Lucinda, Before this all happened, my wife and I were extremely active, hiking, swimming, etc , , now I have to make sure all the doors are locked, she's washed, dressed, It truly is such a sad disease
1 person likes this
@maximax8 (31053)
• United Kingdom
19 May 18
We went on a trip to Egypt last year and shockingly found out my mum was in a care home. She was thought to have dementia and she didn't last long in any of the temporary care homes. She fell over and broke her hip and ended up in hospital. Finally she was put in a loving and caring permanent care home. There are lots of other people with dementia there. I visit her as often as I can. I am a carer to my disabled son. He has got spina bifida and hydrocephalus. He is in a wheelchair, wears a nappy and needs catheter care. It is hard to be a carer. I feel lonely at the moment. My children are in bed now and are sleeping. My dog is in his basket asleep too.
@maximax8 (31053)
• United Kingdom
23 May 18
@PapaTony Thanks for understanding. I have to go to a school appeal for my disabled son. Therefore I had to cancel medical appointments for my two children.
1 person likes this
29 May 18
@maximax8 Stay strong and keep advocating for your son. As parents and caregivers, we all need to step up to the plate, and go down, swinging, if need be. I believe society has become so mechanical, they forget the "human" aspect within all of us
23 May 18
So sorry for the struggles that you are going through too. I sincerely understand the feeling of loneliness, it seems the only "peace" time I have is late at night after my wife's gone to sleep. It must be tough taking care of your son, I give you lots of credit, you are definitely his hero!
1 person likes this