I need to get this off my chest...

@cpefley (1926)
San Jose, California
January 18, 2020 6:11pm CST
I need to talk about this, but I don't want to burden my family right now. My daughter in college is going through some scary stuff with her asthma and bronchitis, my older son hates me for some reason, and the others are young and I don't want them to have to worry about anything. So, a horrible flu-like virus ravaged the household. It only took me a few days to get over it, but it took the rest weeks, and some developed bronchitis. My 3 yo had a horrible eczema outbreak, and I should have known what was coming next. My MS has flared up so bad, and I'm terrified. I finally called the dr yesterday and I have an appt on Tuesday morning (because Monday is a holiday). This morning I experienced what was worse than the pain, numbness, brain fog, etc...paralysis. I woke up and was completely paralyzed, alone, and couldn't do anything about it. I could wiggle my fingers a bit, and I was involuntarily having muscle spasms, and when I would stop breathing for a second I would involuntarily gasp. It was terrifying! I just wanted someone to walk in and help, but no one did. It was like having sleep paralysis, but I was wide awake. I panicked and eventually calmed down, told myself I wasn't going to die, and fell asleep. I woke up and was still in pain, but could move! I got out of bed and took some prednisone and am trying to not cry. I don't want to be alone. I don't want to feel that helpless ever again. I hope that my dr will recommend a caregiver, because I am so scared. I really don't want to lose my independence, but I don't want to die either! I think that my MS symptoms have finally overpowered the agoraphobia and I need to start seeing my drs more regularly. I just hope I can find someone I trust to help.
5 people like this
6 responses
@Alexandoy (65308)
• Cainta, Philippines
19 Jan 20
It seems like you are in a terrible situation. You have to be steadfast with your faith that everything will turn out all right.
3 people like this
@JudyEv (326093)
• Rockingham, Australia
19 Jan 20
I do hope you can get some help. I'm so sorry you are like this.
2 people like this
@cpefley (1926)
• San Jose, California
19 Jan 20
You are absolutely right. I can't just think it will go away and ignore it any longer. I am definitely more motivated to keep up with my doctor appointments.
1 person likes this
@cpefley (1926)
• San Jose, California
19 Jan 20
@JudyEv Thank you Judy! :) I have a very positive outlook at the moment.
1 person likes this
@NJChicaa (116108)
• United States
19 Jan 20
You definitely need to see the doctor more often
2 people like this
@cpefley (1926)
• San Jose, California
19 Jan 20
I know :( I just get so fearful and discouraged. My anxiety hits hard when I have to go out of my comfort zone. I think that if my doctor will help me, and if I can get a caretaker, that will help because that person would help with my appointments too.
1 person likes this
@RebeccasFarm (86833)
• United States
19 Jan 20
Oh dear what a worry.
@jstory07 (134527)
• Roseburg, Oregon
19 Jan 20
That is scary I hope you can find someone to help you.
1 person likes this
@cpefley (1926)
• San Jose, California
19 Jan 20
Thanks Judy! :)
@rakski (112925)
• Philippines
19 Jan 20
I am sorry to hear this. I hope your doctor can recommend a care giver to be with you
2 people like this
@cpefley (1926)
• San Jose, California
19 Jan 20
Thank you so much! I hope so too. I don't want that ever to happen and be alone. I didn't even know it could happen :( I do feel better now. Hope it lasts lol
@noni1959 (9883)
• United States
19 Jan 20
If you are on social security disability, contact the disabilities office and ask them what services you qualify for. You should be able to receive some type of caregiving help. I hope you get better soon and your symptoms get better with your MS. How scary for you.
1 person likes this
@noni1959 (9883)
• United States
23 Jan 20
@cpefley If you have MS, you should be able to be on it especially if your symptoms are like this. Your doctors should be writing up a good letter to give them. Hope it works out for you.
@cpefley (1926)
• San Jose, California
19 Jan 20
I'm not, but only because I didn't fight it hard enough. I got discouraged, but I will file again. I know that it sometimes takes a lot of persistence to get through. I believe my insurance can give me a caretaker in the meantime.
1 person likes this