Anyone got biliary atresia?

China
February 8, 2007 8:57pm CST
My baby girl now 15weeks, She had kasai surgery when 11weeks. Anyeone got biliary atresia or anyone's baby got? I'd love some advice. I'm concerned about quality of life for her. Willshe live normal kid? Any idea of life expectancy? As a mother, I'm really worried, Pls, anyone share some experience with me.
1 response
• United States
9 Feb 07
Ok, to be honest I had never heard of this condition. Here is an abridged version that I am coming up with. Biliary atresia is a blockage in the tubes (ducts) that carry a liquid called bile from the liver to the gallbladder. The condition is type of birth defect (congenital condition). Causes, incidence, and risk factors Return to top Biliary atresia occurs when the bile ducts inside or outside the liver do not develop normally. It is not known why the biliary system fails to develop normally. The bile ducts help remove waste from the liver and carry salts that help the small intestine break down (digest) fat. In babies with biliary atresia, bile flow from the liver to the gallbladder is blocked. This can lead to liver damage and cirrhosis of the liver, which is deadly if not treated. Newborns with this condition may appear normal at birth. However, jaundice develops by the second or third week of life. The infant may gain weight normally for the first month, but then will lose weight and become irritable, and have worsening jaundice. An operation called the Kasai procedure is done to connect the liver to the small intestine, going around the abnormal ducts. It is most successful if done before the baby is 10 - 12 weeks old. However, a liver transplant may still be needed. Early surgery will improve the survival of more than a third of babies with this condition. The long-term benefit of liver transplant is not yet known, but is expected to improve survival. Thank you for forcing me to learn something new today. That is one of the many reasons why I love mylot. I will keep your little girl in our prayers that she is able to recover completely.