Myasthenia Gravis - What do you know about it?

United States
April 9, 2007 12:24am CST
Have you ever heard of the neuro-muscular disease Myasthenia Gravis? It is one of the Muscular Dystropy diseases and for those who were around then, Aristotle Onassis had it. If you've heard of it, what do you know about it? Do you know anyone who has this disease? I have it and was diagnosed 4 years ago with it. I live with it and am able to function pretty well. I'd be happy to share my experiences about living with MG.
1 response
24 May 07
Hi ShawnsBidness, I was diagnosed with Myasthenia Gravis in 1996. I started off with double vision which first came on whilst I was driving down a very busy motorway in the UK. Thankfully my guardian angel prompted me to close one eye and I could see better then. The problems with my eyesight kept coming and going until things started not only to go double, but images kept crossing over and moving! I started to lose my confidence and be afraid to go out in case I bumped into or fell over something. After two years of going back and fore to various medical departments I was finally diagnosed with MG and put on the oral medication Pyridostigmine. I still had problems with my vision so I was then put on Neostigmine and that was much better. I have been able to live a fairly normal life but the Menopause upset things a bit. Two years ago I started have problems with my voice, swallowing and chewing. As you probably know, for some, it is progressive. Thankfully, it is progressing very slowly for me. I joined our local support group and I am now Vice Chairman and also First Contact for newly diagnosed myasthenics in the area. I also give talks (despite my slurry voice) to a variety of organisations and my last talk to a local Rotary International Club resulted in my being invited to join them. This I was very proud to do. I did know Aristotle Onassis had the disease and so did a very famous British Shakespearean actor: Sir Laurence Olivier. It just goes to show that if you get on the right medication you can cope with this illness. I look forward to reading more from everyone. It's great that we have this topic going given the rarity of the disease being in only 1:20,000 of the population!