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Alzheimers and my Mom email this discussion to a friend?

myLot reputation of 100/100. daycarepal (1133)   ranked 1 out of 39 in alzheimers1 year ago

My mom is in the final stages of Alzheimers Disease. For those of you who have lost a parent to this awful disease, how did you get through the funeral and all the services without falling apart? I'm a very emotional person and know how hard it will be.

My mom has very little time left. She lives 1,000 miles away. We did have a family get together in March. I am at peace knowing she will soon be free of this awful disease. I need to find a way to be strong during the services. I cry at the drop of a hat.

 
 
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Janny67 (7) response was accepted on 6/14/2007.
denotes best response.
tags:  alzheimers, death, disease, mom, alzheimers mum
 
1. myLot reputation of 98/100. misheleen73 (3138)   ranked 23 out of 39 in alzheimers   1 year ago

I am so sorry to hear about your mother. My thoughts and prayers are with you and your family. There is no certain way to get through something like that. Yes, you will cry, but you need to do that to heal. Let yourself feel all you need to feel when you need to feel it. I lost my grandparents very early in my childhood, and I never really grieved. I was trying to be the strong soldier for my baby cousin who had no clue what was going on. Bless you my friend. At least she will soon be free and you can have that knowledge.


myLot reputation of 100/100. daycarepal (1133)   ranked 1 out of 39 in alzheimers  1 year ago

Thanks! I don't have very much experience when it comes to death. I've only been to 1 funeral and that was many many years ago. I guess it's never easy, no matter how many you have been to.

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2. Janny67 (7)   ranked 3 out of 39 in alzheimers   1 year ago

I am in the same position as you are at the moment love, my mum has had this terrible disease for 12 yrs and is now on Morphine and hasn't eaten for over a week, so I know it will not be long, but I am grateful for that in a way, I know you understand that, it's because we care so much that we don't want our loved ones to suffer. There is no set way of dealing with grief, everyone is different and nobody will think bad of you whichever way you react, I am a emotional person too and cry all the time about it, it's because you care and there's nothing wrong with that. You will get thru this eventually in your own way, don't worry about what others will think or how to react, you will be ok accept help and just try not to worry about it too much, time is a great healer as they say.
My thoughts and best wishes are with you.


myLot reputation of 100/100. daycarepal (1133)   ranked 1 out of 39 in alzheimers  1 year ago

How is your mom now? I'm sorry to say that my mom passed away last Thursday:( Actually, I suppose it is a relief because I know now that she is free of the disease. She held on a long time, she was very tough.


Janny67 (7)   ranked 3 out of 39 in alzheimers  1 year ago

I am so sorry about your mom, as you say it is a relief but that doesn't help does it? My mum passed away last night at the care home, I didn't get there in time, so now I feel guilty for that, I will be thinking of you and my best wishes to you, you will get thru this just like I will, but it is so hard.
Jan xx


myLot reputation of 100/100. daycarepal (1133)   ranked 1 out of 39 in alzheimers  1 year ago

Oh please don't feel guilty. I'm sure your mom knew how much you loved her. I actually didn't want to go to the hospital and see my mom because I didn't want that image of her to be my last. I hope that makes sense!

All my brothers and sister had gone to see her and doctors were amazed that she was still alive, all her organs pretty much shut down, etc. They said she must be waiting for someone. My sister called me and asked me to please go see my mom, even though she knew how hard it was for me. My husband and I did go that night and the following morning she passed.

My thoughts and prayers are with you and your family.


Janny67 (7)   ranked 3 out of 39 in alzheimers  1 year ago

I know just what you mean, in a way I am glad I didn't get there in time, I went 2 days before and sat there for 4 hours just waiting, my mum was a fighter like yours, my sister saw her at the weekend, and I think she was waiting for that and till we weren't there too she wouldn't want us to see her at the very end.
My thoughts and prayers are with you too
Jan xx

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3. myLot reputation of 84/100. totty1969 (769)   ranked 35 out of 39 in alzheimers   1 year ago

For many years I told family members that my grandma had alzheimers no one believed me, until my grandpa past away. My grandma was lost without her husband. She really showed signs of the disease. Later everyone came to me and told me that I was right. My grandma lived two more years, evreyday I would visit for lunch, I worked one block away from my mom's house, where my grandma was staying. So everyday I'd visit for lunch, my grandma would tell me the same stories, of when she worked in the factory during WWII. Everytime she told me, it was like hearing it for the first time, I would even ask the same questions everytime. It was sad to see someone you love and remember as being strong and smart going through this. One day at work, I came back from break and a lady from the office told me she had punch me out I need to go to the hospital, so I went. My grand ma was dying, she had cancer really bad along with alzheimers, I held her hand and talked to her for about an hour. She told me that she loved me and I told her I love her. She died while we held hands.
I don't think it bothered me because I think she had no more pain and didn't suffer anymore.
Now my mom is showing signs and I am worrying about her. I don't have to worry about me getting alzheimers because I was adopted into the family, and it doesn't run in my history. I feel for you and know what you must be going through.

Peace!


myLot reputation of 100/100. daycarepal (1133)   ranked 1 out of 39 in alzheimers  1 year ago

I'm sure it was a great comfort for your grandmother to have you visit everyday. It must have meant alot to her. It sounds like you had a special relationship with her.

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4. myLot reputation of 99/100. samtaylorskykierajen (5912)   ranked 38 out of 39 in alzheimers   1 year ago

I'm so sorry to hear about your mom and am the same as you in that I get upset very easily . I have not been through anything like this as of yet but feel that my husband's mother may be in the very beginning stages but we don't know this for sure yet . She forgets simple things like what the sugar is called or the name of a fork or spoon and has a hard time remembering simple things .
My friend deals with a lot of people that have Alzheimers and says it is definitley possible and that if she does have it that I won't be able to handle her and will have to put her in a home but I wouldn't want to do this . I have heard it is extremely hard to deal with and my heart goes out to you . Try holding on to the fact that you know that your mother will be in a better place and don't worry about falling apart because this is your right . She is your mother and this only shows that you care . This will be expected and no one will think any less of you if you do fall apart . I wish I had more to offer but don't really know what more I can say to take away your pain .
Take Care!!


myLot reputation of 100/100. daycarepal (1133)   ranked 1 out of 39 in alzheimers  1 year ago

Has your husbands mother been to a doctor yet? It took awhile for my mom to be diagnosised. They went from doctor to doctor. Once Alzheimer's was confirmed, she lived for about 5 years with it.

My grandmother (moms mother) died from Alzheimers. And now we think my moms sister has it as well. So it seems to run in her family, which makes me VERY nervous!!

My father took care of my mom by himself until last October. Then my sister stepped in and between her and my father, they cared for my mom 24/7. At the end, Hospice came to the home several times a week. My father would not put my mom in a nursing home because she always said she never wanted to be in one. That's where her own mother ended up, so she didn't want that. Taking care of a Alzheimer's patient is a full time job. It's very difficult.

related resources:
hospice care, nursing home care

Symptoms of Alzheimer's Find Alzheimers and Dementia Symptoms, and Diagnose Alzheimer's. alzheimers-symptoms-web.com
 
5. myLot reputation of 90/100. ORyansBelt2012 (1343)   ranked 36 out of 39 in alzheimers   1 year ago

You need to go see her one more time -- if you can.
My grandfather had Alzheimer's. As he lay in bed comatose in the last stages, I went to see him. I knelt down by the side of the bed and got up close where my face was in his. I took him by the hand and waited for him to open his eyes and I told him it was okay to die. It was okay to let go and die. He didn't have to fight and hold on anymore.
He looked at me for a long time.
He even tried to say something but no sound came out. Just his lips moving.
He was six hours away in a hospice and by the time I'd gotten home, I had a phone call from my Dad saying he refused his food and was dying.
He passed in his sleep during the night.
You don't think there's anything left in them at this stage.
One thing I know for certain. Every time I saw him over the last two years... I saw that spark...however dim...that was my grandfather.
He was there.
Even at the last.
You need to tell her it's okay for her to let go.


myLot reputation of 100/100. daycarepal (1133)   ranked 1 out of 39 in alzheimers  1 year ago

My mom passed away a little over a week ago. I did go and see her in the hospice hospital the night before she passed. She held on till we all got a chance to see her one last time.

 
6. myLot reputation of 94/100. mummymo (10612)   ranked 33 out of 39 in alzheimers   1 year ago

What an awful time you must have gone through sweety! i cannot really give you any advice on how to cope with the passing and funeral I am afraid! I truly believe that each of us copes in our own way and I don't think it makes any difference how many times you have coped with bereavement and funerals - each one affects you in a different way! I will keep you in my prayers and I hope you continue to feel at peace with the effects this illness has caused! xxxx


myLot reputation of 100/100. daycarepal (1133)   ranked 1 out of 39 in alzheimers  1 year ago

Thank you so much for responding. My mom passed away a little over a week ago. I did make it through, although it was very difficult. And the days following were difficult as well. I'm feeling more at ease now. I know she is finally at peace and is free of this disease. That brings me great comfort.


myLot reputation of 94/100. mummymo (10612)   ranked 33 out of 39 in alzheimers  1 year ago

I am so sorry daycarepal - I really should have read through the other responses and comments. I am sorry that your mother has passed and that you had to go through the pain of it all! I am very pleased that you are finding peace that your Mom is no longer suffering! My thoughts and prayers are with you my friend! xxxx

 
7. myLot reputation of 99/100. villageanne (5829)   ranked 39 out of 39 in alzheimers   1 year ago

I am so sorry that your mom is so ill. It is a dreaded disease. We lost my Mother in law and Father In law to cancer. It is hard. I was very close to them. I had been thier daughter in law for about 27 years when they died. Take comfort in the fact that you will see them again. Death is not the end. It is just a new beginning on the next stage of the plan. That fact gave us much comfort. One of my husbands sisters is Authist and it was really hard on her. She believes that death is the end of everything. We were thankful that we knew the plan.


myLot reputation of 100/100. daycarepal (1133)   ranked 1 out of 39 in alzheimers  1 year ago

Thank you. I know I'll be reunited with her again one day. For now, I'm comforted to know that she is no longer in pain and is free of the disease.

 
8. myLot reputation of 74/100. onabreak2 (611)   ranked 37 out of 39 in alzheimers   1 year ago

I lost my Mother to this horrible disease. I saw her go from my Mother a loving person to a entirely different person. It had effects that I will never get over. I cant even think about it without re living a lot of the horrible things that happened . I know my Mother who was a gentle, loving person would have ended her life early if she had known what was in store for her and her family.
The funeral was not as hard as losing my Mother while she was still alive. My heart goes out to you and your family. No one should have to suffer from this disease. Dont worry about being strong at the funeral, no one is going to expect you to. When you feel like crying cry. I use to go sit in the bath tub and cry.
I really do hope that things will be ok for you. Just know your Mother is going to a better place.


myLot reputation of 100/100. daycarepal (1133)   ranked 1 out of 39 in alzheimers  1 year ago

Thank you!! It helps alot to know that there are other people out there who understand.

 
9. myLot reputation of 86/100. razcal2267 (7909)   ranked 34 out of 39 in alzheimers   1 year ago

I am sorry to hear that your mother had to suffer with such a horrible disease. It has to be of some comfort that she is no longer suffering. I remember visiting my grandfather in the nursing home when he was in the last stages of Alzheimers but was too violent to be at home with us. Even though I was 7 or 8 years old at the time I remember feeling so upset that he had no clue who we were nor who he was himself. I was very upset when he died but now that I am grown up I am glad that he did not have to suffer anymore.


myLot reputation of 100/100. daycarepal (1133)   ranked 1 out of 39 in alzheimers  1 year ago

Thank you. My mother had always been a very tough and outspoken person. It was really hard to see her any other way.

Alzeheimer's is an awful disease that effects so many people.

 
10. myLot reputation of 92/100. bwrattybaby (4947)   1 year ago

My husbands dad had Alzheimers one day he could remember and the next he was like a little kid. We would put the sox's baseball game on for him and 15 minutes after the game was over he couldn't tell you who won the game. So when he passed away it was a relief that he didn't have to suffer anymore. My husbands mother died the same day and they had been divorced for 20 something years they live 3000 miles apart. But 12 hours after his dad died his mother died of cancer. Was weird. But a relief cause we knew that they would be in a lot better place then the suffering they were going through. We are Christians and really believe in God and the bible. So here is something that might help you to deal with your mom's passing. Ecclesiastes 12:6-7 and 2nd Corinthians 5:7-8.

 
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