Scoliosis surgery and future prospects

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My scoliosis developed at the age of 13, after a growth spurt. Treatment with a Milwaukee brace followed for 3 years combined with 5 years of 2xweek physiotherapy. At 16, the doctor said it had settled and that was it. At about 25 I had severe tingling and numbness setting in my right arm, so obviously it wasn't that settled! Seeing an excellent surgeon, we had to conclude it had deteriorated to a 62-degree bend, and needed surgery to avoid any serious organ, lung etc damage. The surgery method was implementing a double Harrington bar with bone grafts for fusion. Now 14 years on, it has been pretty good and almost problem free. However noticing more lower back pain and also getting pain near the bars at the top. Wondering if there are people out there who are like 20 years on after surgery and what they experience ... And also what methods are effective for pain as taking pain killers is not an option really.