Will they ever find a cure for Chronic Fatigue Syndrome and Fibromyalgia?

January 8, 2008 7:58pm CST
Hi to everyone on mylot... I have been an ME CFS & Fibromyalgia sufferer for nearly ten years and really don't know much more now about the illness than i knew a few years ago. What is the truth or the facts behind this illness? What really causes it? Is it genetic? Is it a mental health problem? Does anyone really know? I am so fed up with different versions of what people think causes it that it actually confuses me even more. I know that different thinks work for different people, thus why i have been on so many different drugs for it. Even now the medication i take has started to stop working once again. You then have to go through the same old story of starting another new drug, the side effects ect. I would be very interested to find out what helps other sufferers cope, or peoples views in general about the illness....
1 person likes this
2 responses
@cher913 (25781)
• Canada
16 Jun 10
its hard to say. i have read a few books on the subject too and believe that mine was caused by a severe car accident i was in several years ago and like cancer, mine seems to go into remission. weird!
@sharra1 (6340)
• Australia
15 Feb 08
I don't think they know what causes it. I was diagnosed with CFS in August last year. It took a long time to get diagnosed. I first crashed in July 2006. I was confused but thought it was just being over tired. The tiredness never went away but I got better enough to function. Then I crashed again in april 2007. That was when the Doctor started doing tests to see what was wrong. When all the tests showed nothing wrong he was forced to concede it might be CFS. By this time I was also suffering pain that ordinary pain killers could not relieve so he put me on prescription ones. Even so it took him 4 months to actually admit the diagnosis. It is a diagnosis of exclusion and that makes it hard. I have read a lot about it since I came down with it but they still do not know the cause, in fact I am not sure there is a single cause. Some talk about a virus being involved but I did not have a virus. My theory is that the body crashes when it has been pushed too far. I worked heavy overtime for 10 years at a time when I was not young, it was during my 40's and I could feel my whole body wanting to quit to rest but I kept pushing because I had a job to do. Then in 2005 I knew I couldn't take any more. I took my long service leave but it was not enough, so I quit and walked away. I asked the Doctor if the overtime and stress of my job could have caused it. He said it was possible. Other people do this overtime and do not get sick. I could not cope with it in the end. I did not know that I was pushy my body too hard and that I would get CFS. If I had then I would have changed my lifestyle. I would have put my foot down about all the overtime. I did that towards the end but it was too late by then. I think it is different for every person but it is not a mental health problem. I know it can feel that way sometimes. I crashed gain in January after I was ill on New Years Eve. I had been taking NSAIDS for 2 months for tendinitis and they made me ill. That night I was sick 7 times in 3 hours and it drained my body to the point that I was stuck in a chair for a week barely able to move. I am a little bit better now but still struggling. Most of the time I manage it by being careful. I have learned not to do too much or it causes a crash that can knock me out for a week or more. As a result I do not do much from day to day. I just learn to manage my energy levels as best I can. I do not know what causes ME or Fibromyalgia.