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myLot reputation of 92/100. ubuntujason (144)   ranked 3 out of 8 in rsd 5 years ago

Hey all~
so here's one for us all...I have had rsd for over 4 years now and have recently started some nerve block treatment. the first one made me sick, well I also had an mri and thats what did me in the most. it was helpful enough to go in for the 2nd (of 5 scheduled)

the 2nd didn't go as well (as far as helping) on the table, partway thru the injection on the left side, the pressure rose to such high levels i vomited. we had to pull the needle out as quickly (and safely) as possible. it's a good thing that the dr. and his team are good, else i could have had a ruptured disc :S

needless to say this has made me think. the first one: decent in help yet sick. the second one: not good in helping my pain, not sick

is it worth going in for the 3rd scheduled one? dose anyone else have any experiance that i could benefit from here? anything???
~j

 

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tags:  rsd, blocks, chronic pain, dorsal column stimulator, health
 
1. myLot reputation of 82/100. jerritts1mom (285)   ranked 2 out of 8 in rsd   5 years ago

My mother has been having nerve blocks.She gets so many ,it's scary.She says they help, but I have noticed she is beginning to rely on them.She hasn't ever gotten sick from them,I notice they help her get around for maybe a day or two, then it's back to bed.So are they worth it? I would do some research before continuing with the blocks.I can't see where they help all that much,but then again, I am not the one in pain either.

oh one more thing, I have inquired about these blocks to a cpl doctors,neither specialized in RSD,but I thought they would give me an unbiased answer given that fact.Both said that the amount my mother is getting is actually detrimental to her health.That one day they won't work and the pain will actually be much higher than it was in the beginning.


myLot reputation of 92/100. ubuntujason (144)   ranked 3 out of 8 in rsd  5 years ago

hey~
thnx for that info....i will be looking into some stuff, since my last block on wednesday, my back has been spasming on and off....and when it dose it aggrivates EVERYTHING else :(
~j


myLot reputation of 92/100. ubuntujason (144)   ranked 3 out of 8 in rsd  5 years ago

we have decided to cancel my nerve blocks....they just weren't working
~j

Whiplash to Sciatica Certified Sports Chiropractor & Personal Injuries Specialist  www.MyChiroPlus.com
 
2. myLot reputation of 88/100. wuzzle29 (163)   5 years ago

I too like you suffer from RSD and have tried the nerve blocks with no relief. Have you and your doctor discussed the use of dorsal column stimulator?
I had one implanted last year and it has brought me some relief,no it is not the best but it is better than what I was living in.


myLot reputation of 92/100. ubuntujason (144)   ranked 3 out of 8 in rsd  5 years ago

hey wuzzle~
i haven't heard of a dorsal column stimulator, are they similar to spinal cord stimulators?
and hey PM me, er add me as a friend and i can send u the link to the rsd site i founded (with the help of my best friend)
~j


myLot reputation of 88/100. wuzzle29 (163)  5 years ago

I do believe they are one and the same,but id have to check. Basically I have a battery implanted with 2 leads running up my spinal column that send electrical stimuli down my legs. They are able to pinpoint the location of where it needs to be based on the location of the leads. I have a hand held control unit that I can control the intensity of the stimuli as needed. Medtronics is the maker of the unit.

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3. myLot reputation of 91/100. Island_Geko (1516)   ranked 1 out of 8 in rsd   4 years ago

I see it has been several months since someone has posted....I have just started comming back on mylot after a 1 year hiatus...I have had RSD for over 20 years and have had 8 Stalite Ganglion nerve blocks, 12 Lumbar blocks, 6 Cervical Blocks, and many more.....all failed. I however have had 4 good years of remission or low pain lvl and now out of remission I am to far advanced for many professional pain clinics to help. I am now working of alternative treatments and have found 3 that are keep my pain in check. One that is key to me is meditation. A type I use is EMDR is is a meditation like no other... http://www.overcomingpain.com/emdr.html


myLot reputation of 92/100. ubuntujason (144)   ranked 3 out of 8 in rsd  4 years ago

island-gecko~
hiya, thanks for posting your info....we gave up on my blocks,t hey just made me sick....i am knowladgeable enuf to know that the dr.'s are begining to write me off....same boat i suppose as u:(
i've been tryin to do some light ti-chi (from a sitting position) to help relax and have had some success...as u know witht he pain relaxation cames hard:S
i'll check out that site, if it meets the standards for my non-profit site we'll most likely put it up....oh yea check out the site, we has a forum used to connect ppl with rsd, and our main site is chalked full of info etc:)
www.usarsd.org
keep in touch
~j

Buy Rotator Cuff DVD. Fix your Rotator Cuff Without Doctors Watch Free Video Preview  http://islandyoga.com/rotator_cuff.
 
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