M.E. awareness day

You're welcome!
I have found a lot of good information on that site.
There are some short films by the site owner on youtube as well.
I hope you are doing as well as possible, and that you will get better soon.

Myalgic Encephalopathy, also known as Chronic Fatigue Syndrome. Severity and symptoms vary largely, but it's a hugely debilitating disease and is not widely enough recognised because of it being dismissed for so many years by the medical profession. It's an officially recognised disorder now though.

WHO has classified M.E. as a disease in the nervous system (neurology) since 1969. People with ME has a low tolerance for activity or stressors of any kind. There are many other symptoms as well - you have to have symptoms from different organ systems to get diagnosed with M.E. There is no diagnostic test yet.

Jodi Basset at A hummingbirds guide explains it well, much better than I can

I can tell you how it affects me:
My symptoms are severe muscle and joint pain, headache, nausea, dizziness, bloddpressure goes up and down, high heart rate, temperature regulation is out, numbness, digestion problems, weight gain, food- alcohol- and medication intoleranse. Extreme sensitivity for sounds, light and touch. Sometimes my body does not "listen". I have a hard time walking sometimes. It is like I do not know how. hard to explain. Talking, listening, consentration will lead to brain fog. I do not find the right words, I forget what I am talking about in the middle of a sentence. I am almost completely housebound, and has to be alone in a quiet not to brightly lit room most of the time, or else I get more symptoms. Just a small walk to the mail box will result in muscle pain in my chest. Exersise do not work. It is like your body behaves as if you are still excersising hours after you stopped. It feels like I have the flu all the time. My sleep is unrefreshing, and I have a hard time falling asleep.

Yes more knowledge is needed. It waries a lot how it is treated by the medical profession from country to country. ere it is not so good (Norway) many neurologist claim it is not a neurological disease - it is a psychological illness. But here the politicians take it very seriously, so there are good things ahead. Here some still think it is yuppi flu, and in every discussion about it in the debate sections of newspaper somone say that people with ME are the most lazy of the lazy people. Things like that need to be stopped.

Hope you are doing as well as possible, and that you'll get better soon.