Has anyone every heard of pseusotumor?

United States
December 3, 2008 11:13pm CST
I grew up having horrible headaches,they increased daily... well,, about 5 y rs ago, They got so bad that I started having seizure like episodes with them.. they said i had a 3 month long "migraine",,, well i belived them.. but... when they wanted to put me on meds that i would have to have my blood checked every other day... I said no thank you, I will just live with the pain. they continued one for a couple more years, and I had just gotten this great job, as an assistant manager. I started having horrible pain in my neck and shoulders, so I went to the dr, she gave me steroids,... then about a day later, I started having a blurred spot in my sight, I would think my glasses were dirty, so i would take them off and clean them and clean them... then my glasses snapped right in half, so... the next day.. because... lol.. no way I can see without my glasses, I went to the eye dr to get new glasses, he did a whole work up on me.. but then he come in... and asked me how long has your eyes been swollen and bleeding.. I was like, well I dont know.. I didnt even know they were. well by this time, my headaches and shoulders and neck were getting worse and worse.. the dr sent me to the hospital to get an mri done.. because he feared a tumor.. this scared me grately.. but.. it come back ok.. no tumor, but the next day, I could not take the pain it was HORRIBLE.. and my eye sight was getting worse.. the EYE dr got me an appointment with a specialist.. just 5 days from seeing him and before I got to the specialist.. I could not see anything, and my mother said, I looked like I was going to die.. she was so scared, as was I. well The dr said he believed it to be this disease.. and i had to get a spinal tap, thus going straight into a spinal headache..lol.. worse than the one I had before. but thats what it was, and I could see some again. I will always having missing spots in my sight.. but, I am alive and thankful for it. Anwyay, the disease fills your cranium with spinal fluid, to the point that it closes off your blood supply to your brain, and It had filled so much in mine that the fluid had shot right through my eye. so I was curious to see how many people had ever even heard of this disease.
2 responses
@zeny_zion (1283)
• Philippines
4 Dec 08
never heard of it and its scary. anyways, did your dr. tells you how it is started. how did you get it? im happy your ok. good luck!
• United States
4 Dec 08
unfortunatly no.... the dr said not enough is known about it yet.. they like to say its for overweight women... which i am not saying i am skinny by any m eans.. but..there are alot of skinny men that get it too.. from what i have read... and there is no cure for it.. your body either fixes it or doesnt fix it ... and thanks I am glad I am ok also.. :)
@Yori88 (1465)
• Philippines
4 Dec 08
Inflammatory pseudotumor is a benign lesion mainly developed in respiratory system. It is difficult to distinguish from malignant lesions, so surgical biopsy is necessary. Of the extrarespiratory system, the inflammatory pseusotumor is rarely developed in the spleen.