who knows anything about spinal bifida  |
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 i was born with spinal bifid and i was just wanting to see if anyone could relate to me or if anyone know of anyone else who has spinal bifida
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1.  eaforeman6 (4205) | 3 years ago |  My grandson was born with it. He also had other complications. He lived for 6 weeks and passed away. My daughter has had another child since then who is doing very well and has no illness.She was told that she had to have the folic acid for the pregnancy and that she was still at great risk because it is a hereditary risk factor.This child was born without any complications.
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| chickenlittle882003 (23) | 3 years ago | i am very sorry to hear about your grandson. i was born with spinal bifida too and mine was because my dad was in vietnam and was exposed to the agent orange chemical. i can say though i am very lucky i can walk and everything. i just want to help get the awareness out about spinal bifida so maybe they can find more ways to prevent children from having it and having complications as your grandson did. once again i am very sorry to hear about that. | |
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| eaforeman6 (4205) | 3 years ago | It is crucial for all women to know about folic acid. Its very important to know before you conceive or as soon as possible. We were not aware of any spina bifida in our family. This can be so far back that you are not aware of it and can still effect your child.Please be aware of this because my grandson suffered before he died and there is a good possibilty with the folic acid treatment that you can prevent this. This was also my daughters first child and she went through a horrible mental anguish. So even worse she was given a c section delivery.Noone warned us and we were never told anything about this untill it was too late. Please Dont let this happen to someone else. | |
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| 2. WesAngelBaby (92) | 3 years ago |  My Sister was born with alot of problems and this was the many one she was born with. She lived with this and many more problems untill she was 13 years old. She was the many who could not walk due to this problem. Spinal bifida is very serious and once I had my daughter I was at a high rish of having achild with Spinal Bifida. My daughter has no problems as I did take the Folic Acid thru my pregnancy. Anybody who is born with this knows it is very serious condition and there is nothing to do to prevent this once it happens. Im gladetohear you can walk and function properly. This lets eveyone know everyone deserves a chance and god only ive you what you can handle!! GOOD LUCK!!
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3.  ceci2176 (545) | 2 years ago |  I was born with SB close to 32 years ago and while I'm a wheelchair user and have some health problems, I don't think it's that big of a deal, really.
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| 4. kerrinicoles (7) | 1 month ago | I was also born with spina bifida and am living a very normal life, I read in some of your other comments that you are just wanting to get the word out about spina bifida and I think that is a wonderful cause. Over the years I have been to many dr. appointments where there were children with the same thing I have and were unable to walk, among other problems. Really I count myself so lucky that I have done anything and everything that I have ever wanted to. I have not been disabled my whole life, I have a little more trouble with my back now, but I am still able to walk and all. It really is sad that sometimes it is preventable, because one of the causes is lack of folic acid during pregnancy. I personally have two healthy children, but I also found out that there is a gene passed on by the father that can cause the issue, and my nuero told me I could not give it to my children. | |
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