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How do you remain a true friend to someone with a chronic illness? email this discussion to a friend?

myLot reputation of 95/100. ShawnsBidness (156)   ranked 965 out of 12,334 in friend3 years ago

Do you have any friends with chronic illnesses, like Fibromyalgia, Arthritis, Lupus, Cancer, etc? If so, how do you make them feel special? You probably know that they may make plans with you and have to break them at the last minute. They may be unable to do the things you enjoyed to do together before they became ill. They may be tired all the time. So how do let them know they're still your friend and still special to you?

If you don't have a friend with a chronic illness, do you have any suggestions on how to remain friends?

If you have a chronic illness what would you like from your friends?

 
 
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emeraldisle (8978) response was accepted on 4/9/2007.
denotes best response.
tags:  chronic illness, friends, friendship, friend, special
 
1. myLot reputation of 89/100. neenasatine (2332)   ranked 2,197 out of 12,334 in friend   3 years ago

actually he's not only my friend..he's my boyfriend.. currently undergoing chemotheraphy.. but the problem is his family hiding him from me..or he's the one hiding... our communications stop when he started his chemo and when his family found out that we have such communications..his family change his contact number.. what will i do if i want to be with my man although he's ill but they are hiding him from me?

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myLot reputation of 95/100. ShawnsBidness (156)   ranked 965 out of 12,334 in friend  3 years ago

I'm so sad for you. That is awful. I wonder if your bf's family is trying to protect you or him? Maybe he's embarassed by how he looks? Maybe they don't want you to get hurt? I hope that you can get in touch with him and let him know that you care.

Thanks for the welcome.

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2. myLot reputation of 50/100. cloud_kicker_32 (3781)   ranked 1,153 out of 12,334 in friend   3 years ago

well i have both situations going on for me right now..myself i am disabled andhave degenerative disc disease,arthristis..and a very bad back..and i have a best friend that just went threw brain surgery for a huge tumor they found in her head..and she has been fighting to live and heal ...so we understand each other..and we have the bets friendship anyone could have and we are constantly there for each other for empathy,sympathy,and encouragement threw what we have been going thrrew,,


myLot reputation of 95/100. ShawnsBidness (156)   ranked 965 out of 12,334 in friend  3 years ago

That's so nice to hear that you can both understand each other. Encouraging each other too is so important. I hope that you both have more healthy days than unhealthy and a long freindship.

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3. rdorton (73)   ranked 3,120 out of 12,334 in friend   3 years ago

At this point in their life your friend really needs you, but they also need you to understand that yes they are tired alot more often and no they won't be able to do things they used to do. A true friend is the one that will come over and wash your hair after you've laid in bed for two days. When my brother and father went through cemo we were there to clean up and help around the house. Friends would send cards to let them know they were thinking of them. Sometimes when you're sick you don't want people around you, but you do want to know that they care.


myLot reputation of 95/100. ShawnsBidness (156)   ranked 965 out of 12,334 in friend  3 years ago

The little things in life are so important when you're always sick. Just a phone call, a card or even someone to come over to clean up or bring some food makes me feel special. There are days for me when I don't want to be with anyone and the friends that understand this are the ones I can count on! The ones that call and say, "Let me know if you need something" and never show up are the ones that think they're doing somethig good but really can be hurtful.

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4. myLot reputation of 99/100. sherrir101 (2918)   ranked 1,422 out of 12,334 in friend   3 years ago

I am disabled with Multiple Sclerosis. My sisster is my best friend. She is always letting me know that she is there for me through thick and thin. Whether it be an email or a phone call, she lets me know with just a few words. It doesn't matter what the words are, just so they are consistant. It keeps me going.


myLot reputation of 95/100. ShawnsBidness (156)   ranked 965 out of 12,334 in friend  3 years ago

It sure sounds like you are blessed to have your sister in your life. Just a few words or a kind gesture mean so much to us with chronic illnesses.

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5. myLot reputation of 69/100. steelmoggy (383)   ranked 2,691 out of 12,334 in friend   3 years ago

Be there for your friends when they need you. Let them know that you are available to them when they need support, and apart from that just carry on as normal.

I have had a few friends with chronic illness over the years, and I've found that the best way to maintain the friendship is to simply be their friend. I make allowances in soem ways - obviously we do things that are easy for them to do, we take care not to do really exhusting things, but generally I just treat them like any other friend.

However, they know that if they want to they can contact me for the 'illness stuff' as one of my friends calls it.

I lost one of my friends to cancer this last week - the main change that we noticed in our friendship as his illness worsened was that when we went for a beer we went to a bar closer to his home than mine.:-)

Just be there for them - that's all that you need to do. Just be their friend - don't treat them like they're made of glass.


myLot reputation of 95/100. ShawnsBidness (156)   ranked 965 out of 12,334 in friend  3 years ago

Wise words my friend! Just what people need to learn and understand. Thanks for being a true friend.

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6. myLot reputation of 98/100. cockadoodledoo (224)   ranked 5,675 out of 12,334 in friend   3 years ago

When I was 16, my best friend was diagnosed with Cancer. It was in her spine and it finally took her life when she was just 21. I would always visit her 3 or 4 times a week in the hospital and take her chocolate custard as theis was all she could eat with the treatment she was having. Sadly she shut all of her friends out which really upset me. I would always ring her parents and they would keep me up to date. Her parents would always tell me thats its nothing that I had ever done wrong, it was just the fact that she was like this with everyone. Everyone including her parents thought that she was doing ok. I was so shocked when her Dad rang me and told me that she had passed away. It still hurts so much that I never got the chance to see her for 4 months before she passed and especially that I never got to say goodbye. I still think of her most days and will always miss our good times.


myLot reputation of 94/100. Jennifer16628 (105)   ranked 9,415 out of 12,334 in friend  3 years ago

cockadoodledoo...my heart breaks for you. My mother just passed away from lung cancer that spread to her brain this past August 30th. I lived an hour away but I drove out to her house every day with my two small children to take her to chemo, radiation, dr appts., etc. I learned that there is a normal process that most people go through when dying. What your friend did (shutting you out) sounds exactly like what I learned happens. Even if the person looks to be doing "OK". Please, let your heart accept that you were very special to your friend or you would not have been allowed to take her chocolate custard in the hospital:). What happened is normal although heartbreaking.


myLot reputation of 95/100. ShawnsBidness (156)   ranked 965 out of 12,334 in friend  3 years ago

So sorry to hear of your losses. It hurts so much when someone you love is hurting and you feel like you can't do anything. I believe that some people want to be more private when they know they are going to die soon. They go into themselves, become more reflective and sometime more spiritual. I hope that both of you get to the point where you can remember the happy times together.

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7. myLot reputation of 93/100. charlene2350 (4850)   ranked 28 out of 12,334 in friend   3 years ago

I am disabled also, with degenerative disc disease, degenerative joint disease, respiratory insufficency.. sometimes I require my oxygen. Supposed to have it on at night, but don't always. Since I have been unable to work and get around like I used to, I no longer have the same friends that I used to. I still have a few friends that I see once in a great while, but mostly I am all by myself. My friends call on me if they need me to babysit or something, but not just to be there for no reason.

I've had knew replacement surgeries, I am better, but still have a lot of pain, so I cannot hold out for long. I think I would like my friends to value me as much as when I could get up and do more. It is their falling away that I notice most... and I just seem to disappear.

I'm accustomed to that now, and it doesn't bother me. I have my family and I'm not alone. It was really rough when I was living alone and I had no one to ever see me. I could go months and no one would come to my home, and I lived right under one of my friends in her basement, and next door to another friend.. and I just notice the difference sometimes.


myLot reputation of 95/100. ShawnsBidness (156)   ranked 965 out of 12,334 in friend  3 years ago

I too lost a lot of the friends I had when I used to work. Their lives are so busy and I'm no longer a part of the "work world". I guess they feel there's not much to talk about.

It's helpful to have your family around you, but sad that your friends aren't able or willing to stick with you. Perhaps you can find new friends? I've found friends from church and a support group for people with chronic illnesses. I hope you can do the same.

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8. myLot reputation of 98/100. trinidadvelasco (9110)   ranked 1,352 out of 12,334 in friend   3 years ago

I pay them visits. We can have good talk about the past and the adventures we have had. I bring some food items which we can cook while conversing. When it is time for her to have her rest, I do some light massages from the head down to the feet. Then I say my goodbyes. If she asks me to come back on a date which could be the birthday of a loved one, I try my best to be around.


myLot reputation of 95/100. ShawnsBidness (156)   ranked 965 out of 12,334 in friend  3 years ago

You sure sound like a fantastic friend - conversation, cooking and a massage! Do you live near me? You seem to be a caring person.

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9. myLot reputation of 67/100. 18101989 (577)   ranked 4,450 out of 12,334 in friend   3 years ago

actually that situation has neither arrived to me nor to my friends so i am just not knowing how to deal with that situation and we just don't now what to do

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10. myLot reputation of 98/100. emeraldisle (8978)   ranked 1,892 out of 12,334 in friend   3 years ago

I have friends with problems and I also have chronic illness so I know how this is. As someone who has chronic pain and problems it can be very frustrating to make plans and then find out you just can't do them, you wake up in a lot of pain or what have you. I know for myself it can be very depressing to try and do something and then find out nope not able to. Let alone if you also let someone else down because of it.

I would suggest just keeping things simple. If you want to do something together make it simple. Something you know they can do. For example visiting at their house and maybe watching a movie or going to a restaurant for coffee. It's little things that make people feel special. The fact that you are willing to stay friends, to make adjustments, to be understanding and supportive means more to them then you might realize.


myLot reputation of 95/100. ShawnsBidness (156)   ranked 965 out of 12,334 in friend  3 years ago

KISS - Keep It Simple Silly! Yes us chronic situationers like simple plans. It can make a world of difference to us to be able to say yes to a request to do something with a friend. This way if I'm not feeling well it's still a relaxing time together. Putting a friend's needs above your own is what makes any friend feel loved.

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