Just Bustin' at the seams to share

United States
July 26, 2007 12:13pm CST
Well, I have only been a mylot member for a few days now, but I have some exciting news I would like to share. I am the mother of a special needs adult child. She is now 20. It has been a very long journey for all of us. We recently moved to another state and she was accepted into a program to live in a group home. We went last week to see the home and she loved it. We are going tonight for dinner and to meet the other 3 ladies that will be her roommates. Very big day for us. Any other parents out there of a special needs child/adult? Would love to add you to my friends list.
6 people like this
8 responses
• Australia
27 Jul 07
I don't have special needs children, but I have worked with some. The most important thing in their life is a happy home environment and obviously you have provided this for your daughter, and given her the confidence so essential in her situation. I can understand your joy and trust you will have a great dinner and that your daughter will settle in well and make good friends with the others. It is a big day for you to see her become at least partly independent and living a valuable life. You have evidently fostered and encouraged her for 20 years and can be rightly excited.
4 people like this
• United States
27 Jul 07
You are very supportive and understanding. We had a wonderful dinner tonight. She was a total hit with her humor. We will be having a meeting tomorrow with her support coordinator and she should be moving in the house in 2 to 4 weeks. She was just so excited. I know she depends on me for most things in her life, but I really think she is excited to have her own experiences and friends and life. This will be such a milestone for us both. Thank you
2 people like this
• Philippines
26 Jul 07
I have a sister with a special child about the same age as your daughter. How I wish we had facilities and programs in our country like the one you found for your daughter. This niece of mine is a smart girl and my sister is doing a really good job caring for her and making her go to school for special children (not too many choices though). Right now my niece is taking baking lessons but my sister has to go with her all the time because she only knows sign language and also it would be dangerous for her to commute alone since the school is far from their home. I can appreciate your joy on this new development on your child's life. Congratulations!
• United States
27 Jul 07
From experience, I know it must be difficult for your sister. We are very fortunate that we have programs in the US to help. I am sure your sister must appreciate your support of her very much. Good Luck to her.
2 people like this
@Thoroughrob (11742)
• United States
6 Sep 07
Yes, I have a 14 year old son with Cerebral Palsy. You must be excited to see her becoming so independent and I am hoping things work out for you.
3 people like this
• United States
25 Jan 08
Thanks Thoroughrob! And you would understand and know better than anyone how it is. Bless you! It is working out, after a few bummpy months, and you probably know how that goes too. Not to many clear sails in our lives, but we handle them the same as ever, with grace and ease, as thats our job, right? Good luck to you with your son as well.
1 person likes this
26 Jul 07
You must be so proud of her and what great parents you are for raising your child to one day have this independence. I am not a parent of a special needs child, but I work in a nursery where we have many children who have special needs and I have nothing but great respect for the parents who go through so much to get the best for their children (i hope I don't sound patronising) I hope you have a wonderful dinner tonight and your daughter is enjoying her new home.
4 people like this
• United States
26 Jul 07
Thanks. I will let you know how it turns out.
2 people like this
• Canada
2 Aug 07
Hi breelee, hope all is well. I am not a mom of a special needs child, but I am very happy for you and your daughter. I think that is great that she is enjoying the group home and is gaining independance, good for her! You must be so proud of her.
3 people like this
• United States
25 Jan 08
Thank you. Yes, I am very proud of her. A few issues (read below) but otherwise, she is doing very well. As you can see, I have been missing for about 6 months now, hehe. Thats what happened when I discovered I could have a life of my own too. I haven't had much time for anything, between visiting my daughter, making jewelry and doing a little traveling. And she LOVES her home!! and that is always something that makes your heart full! Thanks again
2 people like this
• Canada
27 Jan 08
I'm glad to hear that your doing so well :) I was wondering where you'd been lol. Hadn't seen you around in ohhh about 6 months hehe!
@carmelanirel (20942)
• United States
26 Jul 07
No, but I am happy to hear about your good news. It is important for anyone whether they have special needs or not, to have that feeling of independence.. Congratulations on finding a good place that she likes.^O^
• United States
26 Jul 07
Thank you so much.
2 people like this
@kelly60 (4547)
• United States
27 Jul 07
I don't have a special needs child, but I am glad that you found a good group home for your daughter.
• United States
25 Jan 08
Thank you Kelly60. Means a lot to know that women out there can understand how important something like this is not only to child, but to mommy too.
1 person likes this
• Canada
17 Oct 07
Welcome to MyLot breelee! :) I do hope that you are enjoying it here on MyLot! I am a mother of a beautiful four yearold boy who has Autism...It is my hope that he will be independant when he is your daughter's age :) sometimes I wish I could see into the future but for now I just work hard with him everyday! It is worth all we have been through for he has come so far this past year and we are very proud of him :) I understand your excitment as I take nothing for granted! You should have seen my husband and I when our son drank out of a straw for the first time in a restaurant a year ago this past Fathers day and that was just one milestone we have hugely celebrated! I can tell you so many success stories and would love to have you as a friend! It is my hope that your daughter is still happy and doing well with her room mates! I am so happy for you both! xxx ~Heavens~
2 people like this
@GardenGerty (157645)
• United States
26 Jan 08
It is unfortunate that these things happen. Many programs are understaffed and lack quality employees. It is in part because the funding is not there to pay the wages to attract great staff. I speak from first hand as I work (my second job) in a group home. We have three different agencies in town that provide services for adults with disabilities. I often get overtime, or work more shifts than I want because the other person in my particular program is a selfish, dumb high school student. My rant. Nuff said. We do have training, background checks and I can still see how abuse could happen. For the agency I work for,even abusive joking can be cause for termination. I am so sorry that this has happened to your daughter, though.
• Canada
26 Jan 08
So sorry to hear of the abuse your daughter endured.... I would be very upset if I found that people I had placed my trust in to care for my child had done something like this! I am glad that she is now in a place where she is happy and safe :) I'm also happy for you and wish you continued success in your new business and also enjoyment in your travels :) Take Care ~Heavens~
1 person likes this
• United States
25 Jan 08
Thank you. Sorry to all, I have been missing for a good number of months. My daughter has been in her home since September. A few ups and downs. The down side of it is that we recently discovered she has been abused by a staff member (not sexually, thank God). I was devastated to find this out, but impressed that an investigation by the State had taken place very quickly after the report was made. It does break my heart that I put the care of my child in the hands of staff who were supposed to take care of her and love her and hurt her instead. I also thank God that there are more loving people out there who care of special needs individuals than ones who abuse them. My daughter really does love where she lives now, she has a nice life for herself and I am at ease now that I know abuse is not tolerated in any shape or form! Thank you all so much. AND, since I have found a life of my own after 20 years, lol, I have started a new business. I am making jewelry now! And have a pretty good business going for myself now. And I am traveling for the first time since my daughter was born!
3 people like this