Just How Safe Are Donor Organs? Four People Get Cancer From Donated Organs

@pyewacket (43903)
United States
April 9, 2008 9:11pm CST
I actually heard this awhile ago, about how four people who received donated organs to help their own health problems, later contracted cancer, and two died as a result. A young teenager, aged fifteen, named Alex Koehne was dying of bacterial meningitis and his parents agreed that his organs be donated to help anyone who needed donor organs. However, it turned out that he didn't die of meningitis, but of a rare form of lymphoma that wasn't found until his autopsy--as a result two of the recipients of the organs died and the remaining two are now undergoing cancer treatments Here's part of the whole article: (quote) GARDEN CITY, N.Y. - Alex Koehne had a love for life, and always wanted to help people. So when his parents were told that their 15-year-old son was dying of bacterial meningitis, the couple didn't hesitate in donating his organs to desperately ill transplant recipients. "I immediately said, 'Let's do it'," Jim Koehne recalled. "We both thought it was a great idea. This is who Alex was." A year later, their dream that Alex's spirit might somehow live on has become a nightmare. Autopsy discovery It turned out that Alex did not die of bacterial meningitis, but rather a rare form of lymphoma that wasn't found until his autopsy, and apparently spread to the organ recipients. The Long Island couple was told that two of the recipients have died, and two others had the donor kidneys removed and are getting cancer treatment. The revelation has led two hospitals to revise transplant procedures, although the state Health Department found that no one was to blame. Experts say the possibility of getting cancer from an organ donor is extremely rare: Only 64 cases have been identified in a national study of 230,000 cases, according to the United Network for Organ Sharing. "A 15-year-old boy's organs are a gift from the Almighty," said transplant surgeon Lewis Teperman, noting the majority of organ donors are much older than Alex. "Usually the organs from a 15-year-old are perfect. In this case, they weren't." Teperman is the director of transplantation at New York University Medical Center, where two of the transplants were done and lead author of a report on the case. Last March, Alex was taken to Stony Brook University Hospital on Long Island after treatment at another hospital for nausea, vomiting, severe back and neck pain, seizures and double vision. Doctors told his parents they suspected he had bacterial meningitis — an infection of the fluid surrounding the spinal cord and brain — although tests didn't reveal what bacteria caused it. He was treated with antibiotics but died on March 30. The Koehnes requested an autopsy. They were told a month later that Alex had actually died from a rare form of non-Hodgkin's lymphoma, a blood cancer which affects fewer than 1,500 patients in the U.S. annually. "Our jaws dropped," Jim Koehne recalled. "We walked out of there crying." Jim and Lisa Koehne (pronounced KAY-na) later learned that a 52-year-old man died of the same rare lymphoma about four months after receiving Alex's liver. The couple said they were also told a 36-year-old woman who received Alex's pancreas also developed lymphoma and died. Two patients who received the kidneys are undergoing cancer treatment and are faring well, according to the report in the January issue of the American Journal of Transplantation. All four recipients were notified immediately of the autopsy results and got chemotherapy, the report said. None have been publicly identified.... http://www.msnbc.msn.com/id/24001110/ My question is, why did they decide to do an autopsy AFTER the fact, after the organs had already been transplanted...shouldn't they have done an autopsy BEFORE? Just to make sure that these organs were disease free? And while the article states that such an occurrence is rare, is it really? I mean here people who are in desperate need of a life saving organ to help them live a normal life only to find out that the organ transplant was diseased and creates the same disease in them or even death. Like how stupid is this?
10 people like this
11 responses
@emeraldisle (13139)
• United States
10 Apr 08
As a few pointed out there is a time factor involved. If they wait too long to take the organs and transplant them they are of no use to anyone. By the sound of it the cases of cancer happening are rare; I mean 64 out of 230,000 really isn't that many. Also think of yourself in that situation. You are dieing for whatever reason and need an organ transplant. You've been on the list for sometime and one comes available. Knowing that without it you aren't going to live much longer would you turn it down if they told you that there is a chance you might get cancer? That the chance for getting cancer is less then 1% (just going off the numbers given here). I think I would go ahead and take my chances. I mean at this point the chance of getting cancer is less then the chance of dying from the surgery itself.
@pyewacket (43903)
• United States
11 Apr 08
Still, it's kind of a real rotten deal here no matter what. I mean here you are waiting for a badly needed organ to save your life and hopefully make a new start in life to overcome whatever health problem you originally had, then have a whammy like this and get something else--sort of a paradoxical situation..like dam if you do and dam if you don't
1 person likes this
@emeraldisle (13139)
• United States
11 Apr 08
I agree it does seem unfair. Still it gave them time they might not have had otherwise. I know some might not like this comment but perhaps it's destiny's way of saying it's that time no matter what.
1 person likes this
• United States
10 Apr 08
In the case of organ transplants there is a time factor, the organs will start to degenerate if not used within a certain time period. I would also have to say that if a person is in need of a transplant their health is very precarious to start with and do they have the time to be choosy. My thoughts would be that potential donors should be screened health wise for things like this, and before they die. Granted the donor was very young but they could have screened him and to my way of thinking they also could have made a better diagnosis from the start.
2 people like this
@polachicago (18716)
• United States
11 Apr 08
Officials of the American Cancer Society are hinting that some lymphomas may be caused by viruses. With body transplant, time is the biggest factor. It is hard to prove if organ is free from viruses. In fact, donor can be in perfect health. Cancer cells are born in our body very often, but healthy immune system can stop cancer cells from growing. No form of cancer is contagious. However, certain contagious illnesses can cause cancer. These illnesses are not passed through cancerous cells but through the viruses causing the cancer.No one can "catch" cancer from another person. In this case like other Non-Hodgkin's lymphoma cases, virus may be responsible.
1 person likes this
@polachicago (18716)
• United States
11 Apr 08
correct...
1 person likes this
@pyewacket (43903)
• United States
11 Apr 08
From what I understand we ALL have cancer cells in our bodies all the time..but remain benign so to say...and yes, it does often need something to trigger it off to become full blown cancer where the cells then multiply and take over the healthy cells
@littleowl (7157)
22 Apr 08
Hi Pye'-being honest i don't like the idea of organ donors there are a couple of reasons 1-i feel that whatever the other person you received the ogan from you could catch an illness from 2-silly as it may seem but it would frighten me as the organ someone receives could still take on the other persons personality and affect the person who recieves it-blessings littleowl
1 person likes this
@pyewacket (43903)
• United States
22 Apr 08
Your number two reason isn't so silly...I truly believe a person can somehow inherit the personality of the organ donor...in fact there actually have been case studies about that where a recipent of a donated organ did develop some characteristics that weren't there own..so it does make one wonder about that
@littleowl (7157)
22 Apr 08
HI pye-thanks for your reply on my number two comment-am glad that you could clarify how I feel about the affect others organs can affect the receiver of the organ-it is nice to know that someone else thinks the same as me!!
1 person likes this
@rlc456 (415)
• United States
10 Apr 08
Yes, very scarey, but I think this is a rare case.
2 people like this
@pyewacket (43903)
• United States
11 Apr 08
sometimes wonder though....maybe it's actually more common than we think that this happens
• India
10 Apr 08
Its so sad to learn that people who wanted to donate the parts of their dying son so that others could live, have to face such a shock. It would be devastating for the parents to learn that because of their mistake, they have 2 other lives at stake. I think they should have checked the transplanted organs for signs of diseases rather than just transplanting negligently. I think its high time that doctors took their job seriously and worked for the betterment. Its very sad to hear this. Poor guys. Who thought of giving a life to some other person now are responsible for extended stay at the hospital and increased medical bills. bourne
2 people like this
@pyewacket (43903)
• United States
11 Apr 08
Too bad there isn't a more instantaneous way of testing donated organs to see if they are healthy or not to make sure they are okay
@Lakota12 (42600)
• United States
10 Apr 08
How awful this is and I just go with my gut on this one I dont put that I will donate for I dont know what shape I am in on the inside they wouldnt want my heart or lungs or anything else now . and yup I think they should have tested before giving to any one! Seems like they would have been more areful I know ya have only so long to get the organ to the recipient but then again they should take taime to make sure the organ is well
1 person likes this
@Lakota12 (42600)
• United States
11 Apr 08
that is so true its just awful this happened.
1 person likes this
@BarBaraPrz (45498)
• St. Catharines, Ontario
10 Apr 08
Yeah, I saw that yesterday... Unfortunately, transplant organs have a very short shelf life, so to speak, so they need to be transplanted in a hurry. The article didn't menton if his lungs, heart and corneas were also "harvested"... another 5 potential people affected. I wonder, if Alex had been properly diagnosed to start with if he would have survived the cancer?
1 person likes this
@pyewacket (43903)
• United States
11 Apr 08
Never thought of that..yes, you're right ...wonder if his other organs were transplanted to someone else as well
• United States
10 Apr 08
i was just reading that story the other day,horrible :( things like that is exactly why i worried every time my dad had a transfusion after chemo.they wouldn't let me donate to him directly.
@pyewacket (43903)
• United States
11 Apr 08
How come they didn't?????
1 person likes this
• United States
11 Apr 08
they said i had to donate to the bank,and a "blood credit" would be issued to him.but direct donations weren't allowed.made no sense to me either.i was furious when they told me that.
1 person likes this
• Philippines
10 Apr 08
I think there is no guarantee on how safe and effective a donated organ or anything that is foreign to our respective bodies...there will always be a side effect or something to that effect that will come out later on in life.
1 person likes this
@pyewacket (43903)
• United States
11 Apr 08
Yes, and of course there's always the chance that the recipient of the organ in the first place might reject the transplant anyway
• United States
11 Apr 08
I guess I never thought of that. I always thought that organ donation was a good thing. I myself am an organ donor. Thanks for bringing it to everyones attention.
1 person likes this
@pyewacket (43903)
• United States
12 Apr 08
For the most part organ donations are a great thing, too bad this turned out so badly though