new probable diagnosis

United States
September 13, 2010 1:58pm CST
You know I spent all summer dying for it to be fall again so my house would be somewhat quiet & peaceful. Well I'm changing my opinion on that well kinda. I had a brief meeting w/ DD1's regular teacher and then her LD teacher dropped a "bomb"... She thinks DD1 may be dyslexic on top of a speech delay (grown out of mostly, as she's quite the chatter box, just has trouble with a couple of sounds still), and suspected ADHD. I figured the possible dyslexia with the words she had trouble with were the same ones DH had trouble with. But still 10 minutes doesn't give a person much time to converse with THREE teachers. And of course because testing is expensive for the district to do it's only presumed that she is. You know what hurts is we all want our babies to be perfect, not 100% but not have any sort of ailment, impairment, or learning disability. I fear them not accepting our choice to not medicate her but for her to learn to adapt to her way of thinking plus with some homeopathic remedies I'm hoping to impliment soon to aid her. Just the thought of another "LABEL" put on this girl breaks my heart.
4 people like this
12 responses
• United States
13 Sep 10
I hear where you are coming from. As my son had a problem when he was six as a teacher assumed he ADHD, and I completely refused to medicate to long story short, with all my help and my daughters; I took my son to be evaluated 3 different specialists and it turned out my son had OCD and not ADHD. I still refused to medicate my son, so what a lot of hard work an learning techniques my son graduated college this last may with 4.0 GPA for all his four years. So the only this I can advise to you is that you make sure you, not the teachers, not family and or counselors, are completely 100% satisfied and sure before you begin any form of treatment. Reason why I tell you this is that my son struggled immensely but the last thing I wanted to to impair his brain with medications. Even if you must go that route make sure that you are completely sure of what it all involves and happy with your decision. Good luck and God bless your family and little one.
3 people like this
• United States
13 Sep 10
I want in my heart of hearts to say it's not half as bad as they make things out to be. You know I've had the discussion with her that starts like "You know more than you are letting on?" And she always smiles to say YES. I think just just likes the one on one attention. Perhaps they are even grasping at straws to find a way to keep her as LD because she prefers a 1 on 1 setting. Though she will shut you down if she doesn't want to or is frustraited with the topic. The hard part will be getting her to open up her thinking w/o having a battle every time to get cooperation. Her LD teacher said she can do the work in her grade level, she just can't focus in a classroom situation. But she's also can be a controling personality as well and has been since she was a baby. I'd love any advice on learning techniques you could share. For math she has been taught touch points and has done wonderfully, to the point I'd hope she'd get math taken off her IEP & just intervention. They are starting a new program for dyslexics in the next week or so to see if she can grasp it better. She just does not want to move beyond 5k level reading
2 people like this
• United States
13 Sep 10
My son was 11 when the teacher began to complain of this, I knew better as when he was a toddler all family members said I was making too much of it. But I knew in my heart of hearts that something wasn't quite right. I took my son to two different male psychologists and no one could make him speak. So I went online and researched my brains and also stumbled on a great psychologist who on the first visit, she got my son to chat with no end. Then she thought me how to work with him. It wasn't easy, oh God how it is still fresh in my mind. But I can tell you persistence and educating your self, but not until after you can figure out exactly what is possibly wrong. OCD never gets cured but if with right treatment methods, they can learn to control the behavior. I am grateful to God to have given me the strength and I never put my son any medications. This was a child who could never be touched and developed all sorts of repetitive habits that could last for months then all of sudden they were gone. Within a couple days there he was again with another repetitive habit. When he went to bed at night it took almost 2 hours to finally settle down. As he had to climb into bed in a certain way and each time it wasn't quite the right way so he had start all over again. Over and Over again. I remember when I dropped him off at college I cried thinking my son was not going to function but he surprised me though as he also became President of his frat and was love by so many. I and my daughter both had to learn how to make him recognize he had a problem and although he doing great today, also lives with girlfriend LOL, I believe he can some tendencies, as when he was in college he obsessed with his studies. He could be in the Library for 3 - 4 days straight as he would not take less than A/ But I believe he knows and feels when he repeats any habits and long and behold my son will be attending grad school as he is going to be come a psychologist. So it takes a great deal of work and persistence Snuggle but it sounds like you love her so that you will move heaven and earth to assure she can function on her own someday. God Bless.
2 people like this
• United States
28 Sep 10
Sounds like your son has grown up past alot of the OCD habbits that made life a challenge when he was young. You have to be a strong cookie yourself to be patient enough to deal with his quirks as he grew up. But I am glad he overcame all of these habits with out any meds. I just think they are too quick to put kids on meds let them grow up and learn to correct these habits instead of popping a pill as some sort of instant "cure" rather than work with them to improve things KWIM?
• United States
19 Sep 10
a school department is the last place i'd take a diagnosis from- and i speak from experience.they simply do not have the qualifications to assess no matter what they might think. they are often to quick to see a problem with things nowadays.
1 person likes this
• United States
28 Sep 10
You are right they are too quick to want to put kids on meds. That's why I say suspected or undiagnosed in the ADHD & Dyslexia... but it will be a label in her school record weather i like it or not. I think they push the kids too much in the first place, don't let them be kids other than @ recess if even then.
@cher913 (25781)
• Canada
14 Sep 10
i would get a second opinion. when our eldest daughter was in grade 2, the teacher thought she had add. however, it was the teacher who had the issue. she likes little girls who sat still and our daughter, was a very busy child. she is like me, she couldnt sit still (neither can i! i need to be doing stuff!) so we went to the dr and he said daughter was fine. so we waited out the year and thankfully, she is gone from our school.
1 person likes this
• United States
14 Sep 10
Our ped wanted to send her to a nurologist! NO WAY! Can't afford it & how much more damage could all this testing do for a kid who needs a confidence boost? The teachers are so quick to judge as the lil tests do as well (see my post below). You may be a more of a Kinesthetic learner as well. The more I look into her "symptoms" the more I see these things in myself.
@dragon54u (31633)
• United States
15 Sep 10
I'm very glad to hear that you won't subject her to medication. I think a lot of children are misdiagnosed--many of them are just normal, active children who naturally have trouble sitting still. Don't pay attention to labels. We ALL have labels, they describe who and what we are and don't have to be negative. Don't let them bully you into medicating your child! And remember all the high achievers who have had ADHD, speech impairments and a whole list of other things to overcome. Those things made them stronger, more determined, and led them to do great things!
1 person likes this
• United States
15 Sep 10
I agree! I think too many are misdiagnosed as it is not a medical condition it is a behavioral issue. Yes I know we all have labels, though this process has reminded me of some labels I used to carry. And I don't like remembering those labels of my own or that many apply to her. There will be no medicating of her unless absolutly necessary ie she can't function w/o them. And you are right there are alot of people who have gone far despite these labels and learning disabilities. I try to keep a positive spin on it for her.... we have our lil pep talk/chant "1's into 2's, 2's into 3's, & 3's into 4's" (grades here strangely enough go from 1 being the lowest achievement to 4 being the highest) And I tell her to then prove the teachers wrong! Show them what you know!
@katsmeow1213 (28716)
• United States
13 Sep 10
School systems are very quick to tell us there's something wrong with our kids.. but they don't do much to help them through it. I've known there's been something wrong with my oldest since he was in preschool. The preschool teacher helped me get him tested for LD.. but in kindergarten he went to a different disctrict and all they kept telling me was that his acedemics weren't suffering enough to require any help or testing. My argument was that without help eventually the acedemics would suffer so much that he'd be helpless.. but that's not good enough for the schools and I couldn't do much at home to help him. Nobody told me how to help him or what to do to keep him focused. I got frustrated. I'm still frustrated, and so are his teachers.. but the school still won't do anything for him and at this point it's almost too late. He'll be in high school next year, but I don't think he knows the stuff they're teaching in 3rd grade.
1 person likes this
• United States
28 Sep 10
It sounds like they are just pushing him along. I'm sorry you are so frustraited and I know it will not get easier for him in High School either. I guess I'm glad they notice she's having problems and are working with her rather than letting her go. Her academics in reading & math were suffering even with intervention wich is how all this testing business got started. Her LD teacher does not think she's as bad as her IEP makes her out to be she's even said this to me last year... "She can do 1st grade work, so why they tested her barely doing 5k work...." But this LD teacher has her own issues I think as one time she's happy to talk to you other times annoyed and that urks me.
@dorannmwin (36392)
• United States
15 Sep 10
It is difficult to have a label on our children and I'm lucky that to date neither of my children has received a label. My daughter is seven years old and she is quite gifted, but our district doesn't label in that way. I also think that she may be somewhere on the autistic spectrum, but I've never had her tested for it because she is able to overcome most of those things that she has difficulty with as long as there is someone that is patient with her.
1 person likes this
• United States
28 Sep 10
I am glad your daughter has been able to overcome things and push past something that may be difficult for her. My daughter shuts down and refuses to work on things that are challenging to her. So I put her in time out to relax and tell her to come out when she's ready to try again & she's usually more receptive. Plus I know they are tired by the time they get home from school so other than playing and eating the last thing on her mind is her home work.
@GardenGerty (169406)
• United States
13 Sep 10
First off, teachers are not doctors and they had best not be trying to prescribe medicines. If your daughter is disruptive in class or cannot learn, they may want meds, but you have every right to try your approaches first. Often parents feel ganged up on when they have three teachers to meet with. I think your daughter is perfect for her. No cookie cutters. A true diagnosis of ADHD needs to come from a psychologist in cooperation with a medical doctor. I certainly have changed my tune over the years. I do believe that for some children medications can really work wonders, I have seen it. For some it does not. Really good doctors will not attempt a diagnosis or consider medication until they are at least nine years old.
@SomeCowgirl (32189)
• United States
14 Sep 10
It's the attitude you have towards the label that the girl will look at. If you show her that though she has these problems, it doesn't make her any less wonderful then she'll adapt well enough. Your choice of non medication is your choice and one I can't say I blame you on. There are so many medications that are not necessary and too expensive, some we can't even be sure are working. I hate that school systems around the country have no money for education, tests that are too expensive just aren't given so "assumptions" are made, sometimes even being wrong assumptions.
• United States
15 Sep 10
Sadly it seems they want all the kids to learn & behave in a cookie cutter way. It's bad enough the things we learned in Kindy is now taught in pre-k, they moved everything up a year wich I think contributes to some of the problems out there as well. I don't know if it's part of the No Child Left Behind Act or why we have to push them sooo much when they are small? Let them be kids not rocket scientists! Kids keep growing up faster and faster with every generation. I probably had an IEP but didn't know it too. I know I struggled with Math all the way up to HS except when I was in the "slow paced" class. English I was ok with after grade school.
• United States
14 Sep 10
I've always told her she has to work a lil harder to get her work done but she needs to keep her chin up and don't let things get her down. And TRY TRY TRY! Prove them wrong that you can do more than you let on! They gave her the conners test but they can't make the actual diagnosis, so we left it at that. The ped wanted to refer us to a nurologist, but I can't afford that w/ insurance and I don't want to put her thru all this testing to find out she just needs different stratgies to learn as she's a visual & tactile learner. I think they did enough with what the school did. You know my neighbor said that's why he preferred private school they weren't gung-ho about testing kids and labeling them. But I don't have private school money, I'm thankful to have grocery money!
1 person likes this
@SomeCowgirl (32189)
• United States
14 Sep 10
When I was in Elementary school I had to have math and english in a different room at the school house. I had an IEP (Individualized Education Plan) and I learned things a bit different. I excelled at English to the point that if I had worked a little harder in High School I probably could have been in Honors English. I just hated math though and couldn't get it, it gave me a headache. Even now I don't know a lot of my times tables. I say all this because I agree with you, Doctor's see kids in a scientific way, Teachers see them in a different light, in the teacher to learner way. No one kid learns the same, no matter the speed.
@cynthiann (18612)
• Jamaica
13 Sep 10
Listen to me - I used to teach years ago. Do not let anyone make a quick diagnose of what is wrong with your child. ADHD my a##! All th teachers seem to want to do is to label children. Especially with ADHD. How old is your daughter? Repeat for effect: DO NOT LABEL HER OR ALLOW ANYONE ELSE TO DO SO. So she as trouble with a couple of sounds? What else? Let me know her age. One of my sons is dyslexic and it did cause him unhappiness out here. I taught him to read. He is no genius as he has a reasoning problem but he is happy and well adjusted and a wonderful husband and Daddy. Take a deep breath sweetie - you are going to be strong because you are the one fighting for your child. Is she disruptive? There are so many lazy teachers to think that most children have some kind of disability and not prepared to help out the children in their classes. I will give yo a simple test to do with her. Draw a diamond shape on a piece of paper and allow her to look at it and trace the shape with her fingers. Then give her a clean piece of paper and ask her to try to remember the shape and draw the shape. Let her be aware that she will draw it on her own. Let me know how she does. Your child is perfect - must be = God made her.
1 person likes this
@Raven7317 (691)
• United States
14 Sep 10
Hi Snuggles... I'm sorry for your struggles... maybe touching base with all us mamas out here that share your same situation will help... Looks like you've already gotten some helpful replies, but I wanted to add something else. I don't know what state you're in, but you need to look up and heavily research the state "No Child Left Behind Law." I think each state is different, but it is a federal act so there must be some trickle down effect with state resources you can go to. My son is (just) 5 and started Kindergarden this year - after EI and 2 years of preschool. He had a speech delay - which I'm relatively sure he's outgrown, but the schools keep him on an IEP because they know something is amiss, they just can't pin it down yet! The preschool was fabulous - keeping him on an IEP under "language delayed". He still shows NO understanding with/about letters/numbers. Although he can sing ABC's, and he can count - he still doesn't know an A is an A, and it's a letter, used for spelling words or that 4 is a number and used for adding/subtracting, etc. The thing is, in my state, until the school CAN label his disability, (or until he outgrows/overcomes it) they must continue to keep him on an IEP. EVERY step of this process - I am entitled to put my two cents in... I can agree or disagree with anything they say - and they MUST work with me until I am satisfied. Also, this is important because it's provided under FEDERAL law - if I don't agree with the school districts evaluation and/or plan, I can request and independent eval, one that is done OUTSIDE of the school district, and they MUST pay for it! Also, (in my state) if the school district CAN NOT provide the program or type of services for a child - they must pay for that child to attend a district that CAN provide what he needs. I urge you to log onto your state's department of education website and research your child's rights. The school is not going to offer up expensive testing - you HAVE to request it and they HAVE to comply. Now that they are starting to label your little girl with ADHD and such, you really should start the process of getting an outside eval - at the schools expense. I hope this helps - let me know... Best of luck!
• United States
15 Sep 10
I'd love to find out more about having an independant eval done between the dyslexia and ADHD done on their dime. Even with insurance I can't spare the co-pays for things, provided if our insurance even covered it wich I would have to call the insurance company to see. But I find it funny the literature at the school that I read last year is that they don't test for dyslexia til the child is in 3rd grade. So to me she still has time to grow out of the number flipping, wich may or may not but I'm trying to be optimistic here KWIM? Though if you know where I could specifically find that law about funding the testing I'd appreciate it!! As I'd like to be armed with the actual law before her IEP in Dec/Jan.
@gdesjardin (1918)
• United States
14 Sep 10
I understand how you feel. My middle son has a learning disability and I was devastated when I found out. His learning disability is minor, however, you know how cruel kids can be. My son was made fun of that he couldn't read for a long time. He is 14 now, and in eighth grade. He still doesn't read on grade level, but he is make great strides. Your school district has to test your daughter, it is mandatory (I am assuming you are in the US). They did tell me a while back that my son was also ADHD. I, like you, refused to medicate my son. About a year ago, I took him to a counselor and they did all kinds of test and my son shows no sign of ADHD. I think teachers/doctors, etc. are so quick to label kids (especially with ADHD). Kids are suppose to be hyper and not be able to sit still. I have friends with kids that are clearly ADHD and there is a big difference. I now home school my son (very long story). Anyways, I am able to give him the one on one help that he really needs. He is doing so much better now, and I can concentrate more on his reading that way.
• United States
14 Sep 10
I've bee looking around online and I think that she fits more of a Kinesthetic learner than a sit nicely with your hands folded and watch the teacher present the topic/subject. Well and you know what is a red flag is when the LD teacher said she can do the work @ grade level but is too distracted in a classroom setting. Whereas when the school psychologist tested & her teacher said she was barely up to par with the previous years level. So if the LD teacher can keep her on track & give her good strategies then WTF is wrong with the regular teachers? too many kids? underpaid? I can't get her to listen that much @ home but it's getting better for me so I think it could even be a maturity or confidence issue as well. There's so many variables. She not so much hyper but if it doesn't interest her she won't pay attention as much. And how dry is Reading? VERY if the teacher doesn't present it with enthusiasim.
1 person likes this
• United States
14 Sep 10
I think sometimes the teachers don't want to be bothered. Not all teachers, but some of them. When my son was in kindergarten they told us to hold him back a year because he wasn't picking up reading. We were stupid and listened to them. Well finally when he got into 2nd grade I marched into his classroom and told the teacher there was something wrong and he needed to be tested. The took forever to do anything, so I pretty much pulled him out of school that day, told my husband we were moving across state line (Georgia has a much better Spec. Ed. program) and within 1 week my son was transferred to a Georgia school. Two weeks later he went through all of his testing and had an IEP in place! You have to really stay on top of the teachers in the school (which is a shame, you shouldn't have to do that). Now we are back in TN and he is homeschooled and like I said before, he is doing much better. If you need any help with resources or anything like that PM me.
@harmonee (1228)
• United States
15 Sep 10
It's always hard as a parent to hear that something is "wrong" with your child. I totally support your decision to not medicate. We have found in my family that with many of our issues using homeopathic techniques have worked just as well, if not better than the western ways of medicine and they are much cheaper with little to no side effects. Good luck. I know it's hard, but it will all come together.