Lou Gehrigs Disease

@GardenGerty (157700)
United States
November 19, 2006 9:46am CST
Anyone have to deal with ALS--Lou Gehrig's disease? My first husband died of it, ten years ago.
2 people like this
7 responses
@suspenseful (40193)
• Canada
9 Jul 09
I think my husband has it. He has to get an MRI to determine if it is it, or something with the same symptons. His brain is all right, but he is a grouch and loves to give orders. So that kills the theory that having a horrible disease makes you into a nicer person. What I want to know is how long is the prognosis, he is already almost in a wheelchair, his legs hurt at night, he cannot lift his arms that high, his speech is getting bad, etc. I am hoping he makes it to 65.
@suspenseful (40193)
• Canada
10 Jul 09
His sister lasted nine years and that is from when she first started to feel a little weakness and it was very slow in her case. We are waiting for the go ahead to get the MRI and take it from there. I do have my friends who will help, but it is going to be hard. I just wish that my husband were not so bossy.
@suspenseful (40193)
• Canada
10 Jul 09
Stephen Hawkings does not have als. He has neuromuscular dystrophy and that is not as fatal. Here are some links that I found. http://www.nlm.nih.gov/medlineplus/amyotrophiclateralsclerosis.html http://www.nlm.nih.gov/medlineplus/musculardystrophy.html
• United States
9 Dec 06
yes, I am a nurse, and one of my very first patients by myself had ALS. He was a very nice man, and it was very sad to see him go. I am sorry for your loss. I'm not all that familiar with Steven Hawking though, heard the name.
• United States
26 Feb 07
you gave me the best response silly! thanks!
1 person likes this
@GardenGerty (157700)
• United States
10 Dec 06
I believe that nursing is a God given gift.Some people have the head knowledge, but the best ones have the heart too. I made a lot of friends wwhen my husband was in the nrsing home, and some of those friendships continue now. Caring for an ill loved one was a life changing experience for me. Thanks for the response.
1 person likes this
• India
25 Dec 06
Lou Gehrigs Disease. no i have not heard about this disease.
1 person likes this
@GardenGerty (157700)
• United States
25 Dec 06
It is a motor neuron disease in which the inside of the nerve fails to receive messages, and deteriorates, leading to lack of aability to use muscles, either voluntary or involuntary. ( somewhat the opposite of multiple sclerosis). At the same time the mind remains alert, or hyperalert and the suffering person is highly aware of what is going on, but is unable to do anything about it. Almost like the opposite of Alzheimers.
• United States
21 Nov 06
I worked for a store that rented and sold medical equipment. ALS was something that I dealt with quite frequently. It is a cruel disease.
1 person likes this
@GardenGerty (157700)
• United States
29 Nov 06
Thanks for the response. People who helped care for him in the nursing home had a hard time, as he was so young.(43)
• Sri Lanka
19 Nov 06
You don't have to look for anyone. Just look at Steven Hawking, whom I believe is the most inteligent man on earth. He is improving on Einsein's Theory of relativity with his "Unification Theory". Though suffering from this disease he uses an electronic device to interact and even gives lectures and keeps doing his studies.
1 person likes this
@GardenGerty (157700)
• United States
29 Nov 06
I am familiar with him, tried to read his book. There is some thought that if you feel you have a purpose,you live a lot longer.He definitely has fulfilling work.
@GardenGerty (157700)
• United States
29 Nov 06
I am familiar with him, tried to read his book. There is some thought that if you feel you have a purpose,you live a lot longer.He definitely has fulfilling work.
@052775 (175)
• India
3 Mar 07
I have been diagonosed with MND in Dec06.Meet hundreds of us with this disease at www.patientslikeme.com
• United States
3 Mar 07
How sad that disease is. And I am sorry for your loss of him. I saw a true movie on tv about it, and it was so sad, I cried all through it.
1 person likes this