My EEG

@viakri (123)
United States
May 9, 2012 11:02am CST
I had an EEG last week and I am still waiting to get the results. That was one of the worst medical tests I have ever experienced! When they had me hyperventilate the left side of my face went numb. That was not fun but the terrible part started with the strobe light! Everytime they would turn it on, my body would twitch or flail on its own. It was very scary! When the strobe light part was done, I was experiencing involuntary muscle spasms in my face. These muscle spasms were for the most part on the left side and affected my mouth. I hope I don't ever have to have that test again! Has anyone else had this problem?
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4 responses
• United States
9 May 12
This test was made to provoke responses so the doctors can help you with possible seizures and epilepsy. It is a test that is not that much fun, but necessary for diangosis, and further treatment.
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@viakri (123)
• United States
9 May 12
So are the responses to the light that I had normal?
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@JJ4Ever (4693)
• United States
12 May 12
That sounds like a really scary test! I think it would probably be more disturbing for me than the sleeping test because I would be awake while having all those crazy things stuck to my head. I don't think I could take a sleeping test either. I just wouldn't be comfortable if I wasn't in my own bed! (I've never had either of those test done yet, by the way lol.) Did they put a lot of those sensors all over your face and head? Did they hurt? That would definitely bother me, but I can understand why it would be necessary. Hopefully the doctors can find out what was going on with you to prevent you from ever having those reactions / symptoms again. The only thing I've ever experienced even close to that was on Easter this year. I had a very sudden, extremely severe headache that seemed to stay at the base of my head. It was so weird! The first thing that happened after my head started hurting was that I couldn't focus on anything because my left eye was losing focus and getting blurry. That was the weirdest thing. Then the left side of my face started feeling weird, followed by numbness in my lips, arm, and a couple fingers (just on the one side). When my eye could focus again, I looked up some information online, and it said those were all stroke symptoms! I try not to self diagnose myself, but it's scary not knowing! I called the ER because I didn't want to go to Emergency to find out I had a really bad migraine, and they said if those symptoms didn't go away within a half hour to come in. Thankfully, I took some pain meds, went to sleep for a couple hours, and woke up feeling fine. I haven't experienced anything like that since, but I'm afraid I might again someday. The other weird thing for me was that days later, I still hurt a bit where my head had throbbed and my arm had gone numb. The pain was nothing like it had been on Easter, but it's like I could still feel the aftermath even when it was gone. I talked to my doctor about it later, and she said it was a pretty bad migraine. I'd never had one before, so I didn't know what to expect. Apparently, there are "triggers" for these types of headaches, and thankfully, mine hasn't repeated itself...so far, so good! I hope that if there's anything wrong that your doctor is able to find out what's going on!
@viakri (123)
• United States
14 May 12
Migraines are very scary. Especially when you have never experienced one before! Nothing about the test hurt at all, it was just scary. All of those wires take forever to put on and the goop takes forever to wash of!
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@JJ4Ever (4693)
• United States
15 May 12
I think that was probably the scariest thing about my migraine was that I'd never had anything like it before. I've had headaches plenty of times, but migraines are completely different. I think it'd still be scary to have an EEG, but at least you were kind of expecting the results...maybe lol. Ewww - the wires and goop would be pretty annoying!
@viakri (123)
• United States
16 May 12
It wasn't what I expected at all. I just hope we find out what's going on. I hope you don't have to continue to get migraines from now on. Maybe it was just a one time thing.
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@Christoph56 (1504)
• Canada
6 Dec 12
Yikes! I didn't have those effects through my EEGs, but to see just how my brain was working with them, I had to keep my head attached to the wires for about 5 days... which was strange... always being attached to the wall, not really being able to go anywhere. It was really nice to get away from that. Hope you do well through this!
• St. Peters, Missouri
25 Nov 12
You're right, these are definitely NOT fun. I was diagnosed with epilepsy 40 years ago. As bad as they are now, they're nothing compared to what they used to be. When I was 9 years old, when I was first diagnosed, they used needles. Every six months - or more - like clockwork. Yikes! I went 13 years without having any seizures - so no EEGs. When I went back a few years ago - WOW, they're painless now. Just really not a lot of fun. They're a lot more sophisticated too in knowing what to look for. Although the procedures with the strobe lights and sleep deprivation can be pretty nasty, it gives the doctors a lot of useful information about how to treat us. They didn't use to have anything like that.