my condition update

@daeckardt (6237)
United States
April 16, 2013 8:29pm CST
Hi everyone! I don't remember the last time I actually started a post here about my condition, but I will go back to the beginning of the year. I had just one more cycle of my last regimen left when the year started, but thought that I had finished in December. After I had the last three rounds I thought I would be found cancer free, but when the doctor did the exam on Jan 30, I showed her a spot on my scar that was painful every time the cat stepped on it and it turned out to be a solid tumor instead of being pus-filled like she was hoping it would be. She did a biopsy on it on Monday because the antibiotics she had given me on Wednesday hadn't cleared it up by Monday. I got the word on Thursday that it was the same kind of cancer cell that I had been treated for all along and that I would be starting a new treatment and getting the tumor removed on the 21st of Feb. I got through that ok, but it had snowed the day of the surgery so I was able to get to the hospital, but then the person who took me there didn't want to drive in the snow so I had to spend the night, mostly because they didn't want me to stay home alone the night after surgery. I got home the next day only to find my car buried and I had trouble getting out later in the week because the snow behind it was frozen and I had to go to the store or something. A week later I spent a week in St. Louis for a disaster services training institute so I could do some classes that I had wanted to get into for some time. It snowed again when I was there so when I got home on Saturday it was really hard because I had to get food for the cats and my car was frozen in again. Oh well...I finally was able to get dug out before I had to go to Ellis for my first treatment. It wasn't easy, but I managed. I have finished two cycles of weekly taxol now (six weeks). They gave me two ca-125 results and it went down from 66 to 54 in a week so it seems to be working. I will see what happens next week when they do the next one before my next doctor visit. On the last visit my doctor was the on-call surgeon for gynecological emergencies at the hospital so I wasn't able to see her so hopefully she will be there next week. My hair started falling out last week so I got it buzzed off so that I wouldn't have to worry about it any more. I was so disappointed because they told me because of the smaller dose that it might not fall out only thin but no such luck. Oh well...I'll live and I will be stronger for it! Thanks for listening to another rant.
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7 responses
@rsa101 (37905)
• Philippines
17 Apr 13
I know what you're going through and I know how hard it is to undergo such since I am with a mother that have gone through all of that. So far she is doing well since she can live as normal as she can but I am not sure if she is really cancer free since there is still a lump that is said to have stayed there. The doctors are not sure if this is still cancer or just a scar. But I think it is not a scar since the last scan said it grew a few cm so I think they are just dormant for a while waiting for an opportunity to grow more.
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@daeckardt (6237)
• United States
18 Apr 13
I don't think anyone is ever really cancer free. Even when tests can't detect the presence of cancer, it is probably still there. I think that is why it took over 7 years after I was declared cancer free before I had my first recurrence and I have been pretty much in treatment non-stop since then and that has been two years now. I had my initial surgery 10 years ago in September 2003 so I know that it can take a long time to grow. I just hope that in your mother's case that she is able to live a healthy life as long as possible. I know that is my goal right now. Have a great weekend!!!
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@rsa101 (37905)
• Philippines
18 Apr 13
That is true we are always living one day at at time. Just being grateful each day she has with us. She is surviving this thing for almost ten years already and so far she is strong for her age and her mind is still very much strong for it. You would not suspect that she has the big C at all.
@AmbiePam (83364)
• United States
17 Apr 13
I have been wondering about you. Someone mentioned cancer in a discussion a while back and my mind immediately went to you. I'm so glad you checked in here. I'm sorry you lost your hair. It's weird. When my Aunt Ruth had stage 4 colon cancer she bought like 4 wigs in preparation for her hair to fall out. It never fell out! She had totally expected it to.
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@daeckardt (6237)
• United States
18 Apr 13
Thanks for your response! I really missed coming in here, but I got really busy with all kinds of things. Now I am trying to get back into life again so maybe I will take it easy and start coming in here once in a while. I think it is funny that your aunt had wigs and didn't lose her hair but I never used one any of the times that I lost mine. I always settled for scarves or hats and when it got hot last summer, I started using sunscreen and went without anything. I hope that things will continue to go well. Have a great weekend!!!
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@AmbiePam (83364)
• United States
23 Apr 13
I wear a lot of hats myself. When I go to church I will wear a wig. But most people who have known me five or fewer years think it's my real hair. I don't particularly like for people to see me in hats.
@ElicBxn (63187)
• United States
17 Apr 13
I worked with a lady who had 3 bouts of cancer. She had several rounds of chemo and said that her hair grew in differently every time. One time curly, one time blonde, one time almost black... So, good luck with your chemos...
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@daeckardt (6237)
• United States
18 Apr 13
I think overall, mine always came back basically the same, although when it first started coming back I couldn't believe how soft it was. It was just like a new baby's hair. Right now it is stubbly since it was buzzed off, but at least it isn't falling out by the handful like it was a week or two ago before I got it cut. It was always curly when it first started growing and then started laying down. I was going to keep it really short, but then it got too expensive to keep getting it cut so I started to let it grow and then after two more months I had to get it all cut off again. Oh well...at least I am alive to complain about it. Have a great weekend!!!
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@dawnald (85129)
• Shingle Springs, California
17 Apr 13
Hm, well, if it just thins, it will make a great zombie costume for Halloween... Seriously best of luck with this round of chemo...
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@daeckardt (6237)
• United States
18 Apr 13
I wish it would have just thinned. But I'm sure that by Halloween it will be starting to grow back unless they keep me on this longer than the normal 6 cycles.
@bunnybon7 (50975)
• Holiday, Florida
17 Apr 13
i have missed you and worried as to how it was going with the new stuff. yes, its been a long time since you have been here with us. im glad tho they found something to work for you dear friend. iam so sick of this enemy we have called cancer. some day i hope it will all go away. its affected my whole family and my late hubby.
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@daeckardt (6237)
• United States
18 Apr 13
I hope you are holding up well. I don't know if it is REALLY working yet, but at least the numbers seem to be going down right now. I hope that I can get to a point where I am considered cancer free again soon, but I think it would take more than western medicine can do to get me to that point. I hope that I can learn something while I am in Thailand to help me to improve my own condition since it seems like I will be in chemo on and off the rest of my life at the rate things are going and from what everyone has said about how recurrences of ovarian cancer tend to be chronic. Thanks for your response! Have a great week!!!
@dorannmwin (36392)
• United States
17 Apr 13
Oh no, I'm so sorry to hear that you are having to go through all of this again. That really does stink and it isn't fair that anyone should have to go through what you are going through and it is even less fair that you are having to go through it again. As you go through your treatments this time around, I will definitely keep you in my thoughts and prayers and I will definitely hope that your ca-125 markers will continue to decrease.
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@daeckardt (6237)
• United States
18 Apr 13
Thanks for the response! I really shouldn't have expected anything less than the total loss of my hair again even though my doctor thought I would only have thinning this time because of the lower dose. I held on to that hope and it let me down. I knew as soon as I wet my hair to get it to lay down that morning that it was history. I got it cut the next day. I will live through this and will be stronger in the end for it I know that. I just hope that when I take my trip next month that I might learn something that could help me keep from having any further problems with this disease. Have a great week!!!
@marguicha (212884)
• Chile
17 Apr 13
Dearest Deabbie, I do hope everything works out now. How I wish I could send you some of my winter hats. I knit several when I was in chemo. My hair is very thin, but today a neighbor told me to mix honey and a bit of conditioner, massage it and leave it for half an hour. Maybe you can do it after the chemo treatment stops. I have my doubts that this follow up treatment I`m having doesn`t harm hair. It falls a lot and it is very thin. Take care and be brave.
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@daeckardt (6237)
• United States
18 Apr 13
Are any of them good for warm weather? We are getting into spring now and soon it will be getting warm and even hot, especially when I go to Thailand. I have never heard of honey mixed with a conditioner and using it on the hair. I would think that would be a sticky mess. Let me know how it works. As far as hair thinning, I think that can be expected of almost any treatment, but it is hard to tell. Take care of yourself!!!
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