I had the opportunity to talk to another cleft mother at church

@sissy15 (12760)
United States
July 12, 2017 11:41pm CST
I've mentioned before that my son was born with a cleft lip, something that was corrected with a surgery when he was 5 months old. He's currently 6 years old and entering first grade in the fall and we've been through a lot. It's cleft awareness month and while at church last week I saw someone who had a cleft baby who also had the cleft palate as well as a more serious cleft lip. My son was fortunate in that he only had a cleft lip that didn't even go into his nose. He had what was known as an incomplete unilateral cleft lip. I am not a very outgoing person and I wasn't sure whether or not to go up to this girl who looked young but I remember what it was like to not know many people who were facing a situation similar to my own. I remember being scared and I remember talking to my cousin who had a daughter with almost the exact same cleft lip as my son and it helped me tremendously. I remember seeing people staring and wondering if it was because they thought my son was cute or because he looked "weird". I took my son up and talked to her, my son told her that her daughter was cute, which I think she needed to hear especially from a child, most kids stare and ask questions, not my son. My son doesn't remember having a cleft lip and you can barely tell he had one but he honestly thought her baby was cute and kids are generally honest about things like that. It made her smile. I then told her about my son and let her look at his lip and she said it gave her hope that her daughter wouldn't be made fun of for how she looked later. I told her a little about the surgery. Her daughters will be a bit different because they'll more than likely fix or start to fix the palate before they do the lip, but the recovery should be somewhat similar, but recovery time may or may not be different. For my son, it was 2 weeks. He had to wear splints on his arms and be fed via a syringe for 2 weeks. It was torture but we got through it I was the main one responsible for taking care of my son as my boyfriend worked. I was just happy to help someone else the way my cousin helped me. Nothing puts you at ease more than talking to someone who has been through it. She mentioned she would be coming back to church more frequently. She felt more welcome. I think she felt like people were judging her and when she realized people weren't it made her feel good. I'm glad I could help a bit. I remember how that felt. My son's lip looks great now, his scar gets smaller and smaller day by day. I do remember all of the worries and fears I had like it was yesterday though, and I can safely put most of them to rest. My son's lip looks amazing now and believe it or not I still sometimes miss his wide smile. I told her she'll miss it too because it's the first smile you see and it's just part of them, but you do learn to love the new one just as much if not more. I wanted to tell someone who probably doesn't hear it as often as other mothers that her baby is beautiful too. I was happy to see others telling her too. The other people who were around when I told her about my son were in shock, none of them knew that about my son and that just tells you how great the doctor did on his lip. My son has always been and will always be beautiful no matter what others thought or think. I think that's what matters most.
5 people like this
4 responses
@Courtlynn (67089)
• United States
13 Jul 17
Glad you talked to her. Sure she needed it
2 people like this
@sissy15 (12760)
• United States
13 Jul 17
Thanks, me too. I know what it's like to be in that situation, it's difficult and having someone to relate to does help.
2 people like this
@Courtlynn (67089)
• United States
13 Jul 17
@sissy15 my cousins oldest had something like that wrong. Not sure how bad though
1 person likes this
@sissy15 (12760)
• United States
14 Jul 17
@Courtlynn Yeah, clefts are one of the most common birth defects but they're still not something you see every day. A lot of them are much worse than my son's, it's actually pretty rare just to have a cleft lip without the palate, and it's also rare to have the palate without the lip but both happen, clearly as my son only had the lip as did two of my cousins, I didn't know about my cousins until after I had my son. I can't remember the statistics revolving clefts, but I know that usually a cleft lip and palate go hand in hand and it's rare to have one without the other, I was just fortunate my son only had the lip. Usually, palates take a lot more surgeries especially depending on how bad the cleft palate is. The baby at church looked to have it pretty bad but she didn't need a special bottle nipple so I'm guessing it's not as bad as it could be.
@vsai2008 (11794)
• India
13 Jul 17
That was so nice of you to talk to her I am sure it was very much appreciated by her I am glad your son made the girl smile That must have been one satisfying day to you :)
1 person likes this
@sissy15 (12760)
• United States
14 Jul 17
Thank you, I hope it was, it seemed as though it helped but I don't know for sure. It was a satisfying day for sure.
1 person likes this
@sissy15 (12760)
• United States
14 Jul 17
@vsai2008 Thanks, I did and you too.
1 person likes this
@vsai2008 (11794)
• India
14 Jul 17
@sissy15 You did what you could :) That's it for me, hope you have a good day ahead :)
1 person likes this
@celticeagle (190127)
• Boise, Idaho
14 Jul 17
It is a good feeling to help others and let them know your experience.
1 person likes this
@sissy15 (12760)
• United States
14 Jul 17
It is, I'm glad I could help even if only a little. I remember how much it helped me to talk to others before my son had his surgery.
1 person likes this
@celticeagle (190127)
• Boise, Idaho
15 Jul 17
@sissy15 ......More people should do the same.
@jstory07 (148807)
• Roseburg, Oregon
13 Jul 17
That was a very nice thing that you had done for that women to tell her about your son sure helped her.
1 person likes this
@sissy15 (12760)
• United States
14 Jul 17
Thanks, I hope it did help, I think it did but you just never know for sure. I know talking to someone who had been through it helped me.