Have you heard of Tourette syndrome?

@JudyEv (382542)
Rockingham, Australia
April 17, 2019 9:22am CST
The photo was taken at the surprise lunch and has nothing to do with the topic. The term ‘Tourette syndrome’ has turned up twice in my life over the last few days. Maybe my writing about it is the third occurrence. Once, few people had heard of Tourette’s but perhaps now it is better known. Good old Wikipedia says it ‘is a common neurodevelopmental disorder with onset in childhood, characterized by multiple motor tics and at least one vocal (phonic) tic.’ Again from Wikipedia, tics ‘are sudden, repetitive, nonrhythmic movements (motor tics) and utterances (phonic tics) that involve discrete muscle groups.’ Last night I watched a show called ‘Employable Me’ which follows the journey of people with disabilities and their struggle to find employment. One was a young man, Kiah, who has Tourettes. Kiah explained how the tics wax and wane. They are totally spasmodic and ‘new’ tics can develop at any time and may last a few days, weeks, months or years. Kiah is one of only about 10% of sufferers who exhibit ‘coprolalia’. He frequently utters obscene and/or socially objectionable words and/or phrases. It was very sad to see him continually slapping his face, smashing his hand down on a table or trying to hold a conversation in between bouts of saying ‘sh*t, f*ck’ and/or whistling. ‘Peanuts’ was the latest word that had inflicted itself on him. He had no idea why. Kiah often drops items as his hands and arms seem to have minds of their own. Watch him trying to get a meal was very confronting. Kiah has learnt Auslan which is the sign language of the Australian Deaf Community and finds it a help as a communication tool. He eventually procured a job within a government deaf facility helping others with Auslan. Suffice to say, don’t let anyone with Tourette’s read to your young children.
38 people like this
38 responses
@Morleyhunt (21741)
• Canada
17 Apr 19
I've heard of Tourette Syndrome. A baseball player in the major leagues was my first encounter with the word. Later my daughter had a young man in one of her class who suffered from Tourette's. Needles to say it caused some interesting experiences in her classroom.
7 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
I can imagine it would have caused some interesting experiences. And I can see how they could be hard to employ,
1 person likes this
@xFiacre (14805)
• Ireland
17 Apr 19
@judyev I have effing heard of it and know several sufferers. I don’t have it but as a child had a twitchy nose that I constantly touched and had to touch everything three times. If I accidentally touched something 4 times I had to make it up to 3 x 3. I annoyed the life out of my parents. I got over it. It was all to do with a monkey. long story.
5 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
I'm intrigued. You could write your story and publish it in episodes.
1 person likes this
@marguicha (230365)
• Chile
18 Apr 19
I heard about it first at a reality show on TV. As for coprolalia, it seems that now every film script is written by someone who wants to throw in as many obscene words as he can. I saw a move yesterday, very good for the most part, but although it was about people in the 50s, the main character could not utter a single sentence without the word f**k even though he was an elegant man. OMG!!! In the 50s, you could only say gosh when you said OMG!
3 people like this
@marguicha (230365)
• Chile
18 Apr 19
@JudyEv I have seen that in my country too. It is disgusting and not funny or witty at all.
2 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
I've just written about comedians who can't deliver a single funny line without relying on obscenities. I hate it.
2 people like this
• Valdosta, Georgia
17 Apr 19
This is so heart breaking. We take so much for granted, so many things we do each day with no problem.
5 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
It was quite confronting to watch him and of course, he got knocked back time and again when he was trying to find employment.
1 person likes this
@just4him (323168)
• Green Bay, Wisconsin
17 Apr 19
It's a strange disease. I feel sorry for that person. It's a difficult life. I'm glad he was able to get a job.
4 people like this
@just4him (323168)
• Green Bay, Wisconsin
18 Apr 19
@JudyEv I probably would have too.
1 person likes this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
It was heart-breaking to see him getting rejected time and time again. But each time he'd bounce back and have another go. I think I'd have given in.
1 person likes this
@JohnRoberts (109841)
• Los Angeles, California
17 Apr 19
I have heard of it before. Never actually seen anyone in person with the affliction.
4 people like this
@Dena91 (17038)
• United States
17 Apr 19
Same, I have heard of it, read about it but never been around someone who has it.
2 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
@JohnRoberts @Dean91 I don't know anyone with it either. I found it enlightening to watch this young man who actually had it and wasn't just an actor depicting it.
1 person likes this
@KrauseHome (36445)
• United States
18 Apr 19
That sounds like an interesting show, and one that can teach you about many things. I often wonder how many times people like this can be challenged to where many never want to try. Glad even with his issues, it sounds like people at least are trying to be there for him
3 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
I've seen about three shows but each person seems to have a support person who helps them look for work and guides them if they find a position. The others on this particular show were a dwarf girl and a young lad with uncontrolled epilepsy.
@shaggin (74987)
• United States
18 Apr 19
I have seen a few people who would yell things out like that. It is sad but it is hard not to laugh when they yell out something absurd extremely loud. I actually did have son evaluated for Tourettes but what he does is just kind of a quirk of his Aspergers.
2 people like this
@shaggin (74987)
• United States
19 Apr 19
@JudyEv it is very sad. I imagine they get picked on a lot in their life from it and maybe even yelled at when people don’t understand they can’t help it.
1 person likes this
@JudyEv (382542)
• Rockingham, Australia
21 Apr 19
@shaggin I'm sure they do. He was having a coffee in a shop and shouting out obscenities including 'paedophile' so you can imagine what passers-by would be thinking.
1 person likes this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
The spontaneous speech seems to be really loud. I felt so sorry for this kid but he was very accepting of it really.
1 person likes this
@snowy22315 (209173)
• United States
17 Apr 19
Absolutely I have. It is a hard thing for those so afflicted. It looks like the party was a great success!
2 people like this
@snowy22315 (209173)
• United States
18 Apr 19
@JudyEv Dr. phi l just had a story about valid attacked and killed by his Pacheco grandmother.
1 person likes this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
Thanks, yes, the party was great fun. The lady who turned 70 was attacked by a psychotic grandson just over 12 months ago and suffered multiple stab wounds. I'm sure it would have been a comforting experience for her to have her friends wishing her well in this way.
1 person likes this
@ShyBear88 (59342)
• Sterling, Virginia
18 Apr 19
Everyone has different triggers and they don’t always shout some times it’s motions.
2 people like this
@ShyBear88 (59342)
• Sterling, Virginia
18 Apr 19
@JudyEv so! I have an autistic nephew that gets gets angry some times and hurt himself some times hit others I’d they don’t give him space. My answer is so what? He can’t control his action it’s involvinetary a miss fire of the brain. The more you pay attention it the more his body will keep doing it. A lot of people have different triggers and a lot have the one of watching watching them being unable to control what they say or do. It’s not that he wants to.
1 person likes this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
This young man kept slapping his face and would also twist his hands around and sometimes hit tables or counters.
1 person likes this
@JudyEv (382542)
• Rockingham, Australia
21 Apr 19
@ShyBear88 That's true. It is purely spasmodic and uncontrollable.
@Juliaacv (56393)
• Canada
17 Apr 19
We have a great-nephew who has that. He's an adult now, but I don't know if he will ever be able to hold down a job or fend for himself. I feel bad for him, his sisters and his mother, our niece.
2 people like this
@Juliaacv (56393)
• Canada
18 Apr 19
@JudyEv He doesn't seem to shout obscenities, but he jerks and you can see after he jerks and starts walking away that he is wild and doesn't have control over himself. But thankfully he has not demonstrated any violent episodes. He has moved too quickly and injured himself, I know that he fell down some stairs when he was in grade 8 and nervous as he was touring the high school that he was planning on attending, and he broke his arm. And part of that had to be just plain old emotions, kids of that age are full of raging hormones.
1 person likes this
@JudyEv (382542)
• Rockingham, Australia
21 Apr 19
@Juliaacv This young lad tried not to speak when he was out in public. He would point and nod. It seemed he was less likely to burst out in profanities if he didn't speak more than necessary.
1 person likes this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
It is very tough for them, particularly if they have the coprolalia. If they just shouted random words, it would be bad enough but to shout obscenities is really confronting.
1 person likes this
@thelme55 (79352)
• Germany
17 Apr 19
Yes, I have. I have seen a report in the tv too about this illness. We are lucky to be healthy. Thanks God.
3 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
It isn't something you would want to have. I was so pleased that, in the end, he found employment.
1 person likes this
@nela13 (59365)
• Portugal
18 Apr 19
Yes, I have heard about it before and I have already met people with that syndrome.
2 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
It does seem to be more widely known than it used to be.
1 person likes this
@nela13 (59365)
• Portugal
19 Apr 19
@JudyEv besides I am not working in the area, I am pos graduated in special education.
1 person likes this
@DocAndersen (54399)
• United States
17 Apr 19
I think it is awesome that they have a show like that. That disability and many others have been kept in dark closets for far too long.
3 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
It is a wonderful show. The resilience of these people is astounding and they go through rejection after rejection trying to find work.
1 person likes this
@DocAndersen (54399)
• United States
18 Apr 19
@JudyEv Good that the show is on. Hopefully, business owners will take risks, so they don't end up on the show@
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@hereandthere (45628)
• Philippines
17 Apr 19
i'm not sure, but at my first job, there was someone who seem to be constantly swallowing so it made her head bob a lot. here is a really good video of children and teenagers who have it
It is very important to know, that I merely found this video. I do not know the children in the film, nor do I know the very talented filmmaker who created. ...
2 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
Some do that I think, constantly swallow. Thanks for the link. It's good to know about these things so at least you don't assume 'stuff'.
1 person likes this
@Hate2Iron (15724)
• Canada
18 Apr 19
I've heard of it but no recollection of the details. Perhaps in a book??
2 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
No doubt it's been in novels. I saw it in a TV series once. Compared to the real life young man I saw the other night the TV show did a realistic job of depicting it.
@jstory07 (148771)
• Roseburg, Oregon
17 Apr 19
I am hoping some day there will be no diseases like this one. I hope they can repair dna before the person is born.
2 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
It isn't a pleasant condition to have that's for sure.
@wolfgirl569 (136006)
• Marion, Ohio
17 Apr 19
I have seen a couple of shows about it. It would be very hard to live with.
2 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
They must get quite discouraged sometimes.
1 person likes this
@rakski (156709)
• Philippines
17 Apr 19
I know Tourrette's syndrome from the medical point of view but have not met one yet.
2 people like this
@rakski (156709)
• Philippines
18 Apr 19
@JudyEv same here
1 person likes this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
I don't know anyone with Tourette's either. I would hate to have this condition.
1 person likes this
@acelawrites (19272)
• Philippines
17 Apr 19
It is saddening to see people with such syndrome; makes us realize how hard it is for an elderly to suffer so many health issues.
2 people like this
@JudyEv (382542)
• Rockingham, Australia
18 Apr 19
That's very true but this lad is only about 19 so he has the rest of his life to get through.