My son and tarlov cysts

I will. I just pray for a miracle but I know that God is in control not me.

@crazyhorseladycx Do you think that you have them also? Thanks for the hugs.

@velvet53 i read a bit'n regards to yer son's troubles. i'll be doin' the same'n this end ~ sendin' healin' hugs!

Thanks Oshy. I just worry about him taking a real bad fall and them erupting.

@TiarasOceanView He is always in pain but won't let me know how bad it is. When I see him I know how he is feeling. He needs a surgery and God willing it will happen .

@velvet53 How is he now Sandy?

@velvet53 I see first time I've heard of this condition. I hope he gets well from it. How is he taking this. Does he go through some treatment for this?

@rsa101 He is in a lot of pain. He is doing some treatment and getting shots for this but it is not helping.

It is not something that is easy to talk about. The biggest one he has is filling up with spinal fluid. they drained it once This is something I pulled up on the internet so you can read it from a pro. Tarlov cysts are fluid-filled nerve root cysts found most commonly at the sacral level of the spine – the vertebrae at the base of the spine. These cysts typically occur along the posterior nerve roots. Cysts can be valved or nonvalved. The main feature that distinguishes Tarlov cysts from other spinal lesions is the presence of spinal nerve root fibers within the cyst wall or in the cyst cavity itself. This was found on this site The last I knew my son had lost 26 1/2 % of his tail bone and lower spine.

I am trying Sherlock but it is hard.

@sol_cee Thanks my dear friend.

@velvet53

Thanks Judy. I appreciate that very much. Yes, I am very worried. One wrong move and one of the cysts could rupture and I could lose my son.

@JudyEv I hadn't either until my son told me about them. I saw a video they took of his tarlov cysts. It is scary.

@velvet53 I read a bit about tarlov cysts. I've never heard of them before.

Me too Andria. I don't want to lose my son.

@velvet53 I know.

@andriaperry I feel so hepless.

@velvet53 That's a big problem! Do you think they will accept his need for surgery?

@1hopefulman I am praying that they will. It is looking like he has to come up with a way to get to Texas and have an evaulasion done. I am trying to get money together to do this.

Me to Felice. He is waiting to have a surgery but Medicare keeps proloning it.

Thanks, Eva. I will just be happy when he gets his surgery.

Thanks paigea. I just wish he could get in and have his surgery done.

He is still dealing with a fractured rib and a messed up rotary cuff but he is doing better. It is his tarlov cysts that I worry about the most. If he falls wrong they could rupture. Thank you for asking. I do appreciate that.

@Hannihar I let his fiance do that the most. LOL Yes we do have to watch to make sure he doesn't take any more falls or anything.

@velvet53 That is very hard. It sounds like you have to watch him closely.

@oahuwriter Thanks Krissttina. He has his days. They want to put some kind of thing in his back that is suppose to help him with the pain. I can't remember what he called it.

You have brought tears to me. This is the most caring, loveable text I have ever had. I am so glad that our wonderful man above brought us together.

@velvet53 You are very welcome. I hope to hear good news from you soon!

Thank you, Bulaklak. Yes, God is in control.

@velvet53 So be it. God bless!

Thanks Jaya. I know that I need to have faith and I am trying. It is hard when I see him suffering so much.

Thanks sophie.mHe needs all the prayers that he can get.

@velvet53 it is my pleasure :)

@velvet53 You are welcome, Sandy. Is he holding his own, any improvement?

@kareng All in all he is doing pretty good. I just wish he could get the surgery he needs.

Thank you kareng. Your prayers me a lot.

@velvet53 They will do so I am sure.

Thank you so much. Prayers can work miracles.

Tarlov cysts are pretty rare. He made world history as he has the biggest tarlov cysts known. This is scary.

@PainsOnSlate It sure is. That is why I worry so much about him falling. If he hit just right they could rupture.

@velvet53 it sounds very scary...

Thanks Dianne. Prayers can make miracles and that is what we need now.

@velvet53 So true. You have mine.

Thank you, Valerie. According to the records he hs the largest tarlov cyts known. This hurts.

@velvet53 That's bad.

@just4him Yes it is, Valerie and scary.

Thank you, Metha.