I bothers me how blunt people can be...

United States
January 3, 2007 10:57pm CST
I have a nine month old son who has some disabilities. They are mainly mental, however his head shows a physical appearance. He was born with hydracephalus, which is fluid on the brain and also a very large head due to the pressure the fluid caused. I know that he looks "different" and people are going to notice, in fact on occasion I don't mind explaining his condition to a curious person but when people are rude or blunt about it, this bothers me. For example, why grocery shopping last week I had a lady walk up to me and just ask,"what is wrong with your baby?" with wide open eyes like she was looks at an alien or something. He doesn't look horrible, he just has a bigger head and a few bumps where his shunt is that drains the fluid. I just wonder why people have to be so blunt. Is there a way around it? Maybe I am just to sensitive to the situation but I have issues with it. I have had people ask me, what caused him to look like that, is he going to die, will he ever look "normal". Etc. What is a polite way to say I don't want to discuss it? I usually just try to give a simple "he was just born this way" or he's fine, he just has a big head but then people still persist. What would be an appropriate way to say He's fine, leave me alone, without getting those dirty looks?
8 people like this
55 responses
@pennycan2 (251)
• United States
4 Jan 07
i could sure teach you some snappy come backs to those remarks but of course you would get looks of shock and amazement aswell as dirty looks. I know it's not the same but I used to get annoyed when people would ask me if my child was a boy or a girl when she was so blateltly dressed in pink and had a pink blanket. I would tell them she was a drag queen when I had enough. If someone were ever rude like people are to you, I would politely tell them he has a medical condition that you do not care to discuss but thank them for their prayers and thoughts and quickly walk away. I'm not one who likes to discuss things with strangers (except on mylot of course) so i think if someone were to tell me this, i wouldn't be offended but maybe re evaluate the way i approached that person to begin with. if you want some zingers though, let me know, i'll be happy to help you out. next time you bring him out you should wear rubber gloves and a paper mask and when someone askes you "what's wrong" tell them he has a highly contageous disease. that should be funny to watch their reaction. Please don't be offended, I'm only meaning this for amusement and am well aware of the fact that it may be offensive, though it is not meant to be. Sorry if you or anyone else is offended by this. Take care and good luck you are in my thoughts and prayers.
2 people like this
• United States
5 Jan 07
OMG Dixie that's sooo funny. Some people just don't think before they open their mouth, huh? LOL
@sbeauty (5865)
• United States
4 Jan 07
I would suggest having a supply of little cards with the word "hydracephalus" printed on them. When someone persists in wanting to know more, hand them a card and tell them they can look it up on the internet. And always remember that only ignorant people would act this way. Ignore them.
2 people like this
@shywolf (4514)
• United States
4 Jan 07
I *love* this suggestion!!!!! I hope that the user who started this topic sees what you wrote. It would be such a good way to curtail such people's questions quickly! ^_^
1 person likes this
• United States
5 Jan 07
I think I may try this idea! I wouldn't have ever thought to do something like that. there are TONS of websites on hydracephalus too. I could even put the main reference site on there too. Thanks for the suggestion. I think I WILL try this.
• United States
4 Jan 07
My daughter is in the NICU she had developed NEC while I was pregnant with her & had 70% of her small intestine removed when she was 12 hours old. I do not mind sharing her story. It shows how she has overcome a lot. She is going to be 5 months old on January 7th. She is still in the NICU, has had 3 surgeries & has a large abdominal scar. Family has come to see her & most, if not all, cry once they are out of her room. Most of the people who have asked me about her are other NICU parents & we discuss our child(ren). Treatments, surgeries, how long until they come home, so it never seems rude to me. But if it were in a situation like your talking about I would most likely be rude in return. Give respect to get respect. Other than that concentrate on letting your little one know he is perfect/ normal/ just like any other child. Good luck & best wishes.
2 people like this
• Canada
4 Jan 07
Bluntness isn't bad, rudeness IS. I am very blunt, but would never just walk up to your baby and comment. Those comments are not blunt, they are rude. If it's my business, I am blunt with my honesty, but such a thing is NOT my business, so I would not say anything.
2 people like this
@hh9905 (1275)
• Malaysia
4 Jan 07
I totally agree with u on your opinion. I must admit I can't help it but to have a peep of 'the difference' (i'm sorry if u'd find this offensive, but i just do not know the right phrase to describe) of what i'm seeing seing, just out of curiousity. But certainly will not stare or ask the person. coz i know it might hurt the person.
2 people like this
• Canada
4 Jan 07
Hi cassie... I'm sorry that you've had to put up with such incredible rudeness and insensitivy. What is WRONG with people these days? To the lady in the grocery store, I would have been tempted to say, "Nothing is wrong with my baby but your manners sure need some work!" My younger daughter stopped breathing at the age of 4 weeks due to a severe upper respiratory infection. I nearly lost her that night. After a week in isolation at the hospital (I stayed with her the whole time), we came home to people who asked questions such as, "Is she going to brain damaged now?" "Could she be retarded?" (and how I DESPISE the way people use THAT word!). The drs had told me there was no way to know the effect that the loss of oxygen to her brain would have, until she grew up (fortunately, she grew up without any negative impact at all... we were blessed). But, like you, I just didn't WANT to talk about it. When people persist, I'd be blunt... "Thank you for your concern but he is just fine" and walk away. I see no reason to entertain people's questions, unless you choose to. If they are rude, you don't owe them courtesy in return.
2 people like this
@linepau1 (188)
• Canada
4 Jan 07
I have to agree with this comment. I am usually a pretty mannored person in public but I've come to realize that you can't fight rudeness by just saying "excuse me that was rude" or just answering their questions. You have to fight back so they'll watch their words. Put them on the spot if you have to. I have to say as well that the word 'retarded' really irks me as well. I don't think there is a right way to use that word.
1 person likes this
• Singapore
4 Jan 07
For the sake of your child, please do not be bothered with this bluntness. Just explained your child's condition normally and not read too much into people's thoughts. We can't change the way people behave and how they think. But, we can control our own thoughts and behaviour. Moreover, if you are bothered by these behaviour, your frustrations would be written all over your face. Your child could grow up to be influenced by your frustrations and really think that there is something wrong with himself. So, for your child's sake, please do not be bothered by other's bluntness.
2 people like this
• India
4 Jan 07
My thoughts ditto. This may not be easy and you'll have to condition the way you think. Your child is normal. Treat him normal, and You stay normal. Maybe it's your child and that's why you sensitive towards this and get easily hurt. My friend was born without a vertebra. Though she has no physical problems due to it, her appearance is not normal. but the good thing is, she does not even think about it. she's never hurt when anyone asks her about it. she's leading a very normal life, has a husband and now a child. All this because her parents never treated her like she was different. they never pampered her too much (parents tend to get over protective and pamper such children).
1 person likes this
@wvchell78 (564)
• United States
4 Jan 07
There are some people that have no manners. I agree with the post above telling them that there is nothing wrong with your child but there is with their manners. I would tell them that he is fine and resume what you were doing. I don't understand how people can be so rude and then when you don't explain things to their standards they get even ruder.
• United States
4 Jan 07
If that would have been me..i woudl have snapped out at her depending on my mood lol..When Sky was first born his ears looked so weird..they cupped foward because of how he was stuck and they were seriously squished..for 3 mths they were like that..and i had people asking me what happend to his ears..and omg! he looks like a mini dumbo! yea i almost slapped that biat%h!!! lol..so many rude people..and I would say,none ya!!!( meaning none of your business,,,) or i would flat out say,nothing at all.and ya know that was really rude..how would you feel if i asked why your nose is so pointed like a birds? Just give it back to the rude ones,,or jsut walk away and ignore them..
@GardenGerty (157615)
• United States
4 Jan 07
The old Ann Landers response to those kinds of questions went something like this: " Why would you want to ask such a rude question?" and I guess another way to say that is "Were you never told it is rude to ask those kinds of personal questions?" Whatever, just be a litte assertive, make them start answering questions, instead of asking.
@classy56 (2880)
• United States
4 Jan 07
that is very rude for ppl to ask you anything about your your son.i would just walk away an not say nothing.they wouldnt wont to hear what i would really say.i walk away or you could be blunt back.tell them its none of their business
2 people like this
@sharksfin (1091)
• Philippines
4 Jan 07
They maybe just curious. I don't think they meant something else than asking. Maybe you need to get used to it because you can't stop people from asking. People just can't always find a way to ask in a gentler way than they know so, it bothers you. They're just so direct and yeah, of course it's your issue with your baby that's making it all worse. When they approach you just answer them in a nice way. Make it a habit to not take their questions in a rude way. You have to make yourself get used to it because you have to live with the situation that your baby is in. If you've already accepted your baby's condition then be enthusiastic in answering people's questions. It won't bother you as much anymore eventually.
@Melizzy (1381)
• United States
4 Jan 07
I have hydrocephalus. I was diagnosed as an adult and I was born with it. My head is slightly bigger than normal but I am so tall, you can't really notice it. I had surgery at UCLA for what's called a 3rd ventriculostomy. I did not want a shunt as they are troublesome. When your child is older, you may want to look into that. After my surgery, I had a half shaved head. People stared, and asked questions. I finally got to the point of lying with some ridiculous story. It usually made them feel uncomfortable and proved my point. I wouldn't advise that for you. It will help as his hair grows in and becomes thicker and his body grows. You could try saying, "He's had a few problems, but he's ok now. Thank you for asking." And then move on.
1 person likes this
• United States
5 Jan 07
I have actually heard of the surgery you had. As of now, my son is not a candidate for the surgery but possibly in his later years he could be. You are correct about the shunt being quite troublesome. We have to be extra careful or if it gets bumped just so, it could possibly throw him into a seizure. He has had 6 corrective surgeries and he is only 9 months old. He has had infections, and malfunctions. I truly do hope that some day he will be a candidate for the ventriculostomy because it could save him so much pain in the future. Although it is a much more major surgery than VP shunt placement, its success rate is very high and much less painful in the long run. Thanks for your comment, it is very nice to know that their are others out there with a similar condition who a willing to discuss it with me! Thanks so much for your statement!
@shywolf (4514)
• United States
4 Jan 07
I'm so sorry that people say things that upset you about your son. I guess that it is in human nature for us to be curious creatures, but can't these people tell that they are making you feel uncomfortable? I don't understand the audacity of people sometimes. I really hope that you find a solution as to what to say to such people! ^_^ People really can be so blunt and cruel.. I am so sorry that you have to encounter this more often than most because of your son. It is really sad that people can't just leave things alone and not try to pry you for information in such a callous way.
1 person likes this
• United States
4 Jan 07
My story is similar, only my daughter's condition is cosmetic. She was born with a large strawberry on her neck in the front and mongolian spots on her back that look like bruises. I was constanly asked by people how she got hurt, or what was wrong with her. I even overheard a conversation stating that a lady was going to call cps because my newborn appeared to have been beaten. I dealt with it by first getting angry and defensive, then I wised up. As I was being asked these rude questions, I would turn it around on them and say something like, "What kind of adult asks those types of questions? A child I understand. If you want to know about it, please ask, and I'll gladly explain." Try not to take it to heart and remember that through these experiences, you can teach your child tolerance and how not to become one of those people who asks those types of questions. Good luck to you and your family!
@icequeen (2840)
• Canada
4 Jan 07
Well first of all it sounds like you are running into some rude people. You should not have to explain your situation to strangers..it is none of thier business. I would tell them exactly what you are...and if you get dirty looks etc..just ignore them...who care what they think. As long as he is fine..and you know it..that is all that matters...
1 person likes this
@magikrose (5429)
• United States
4 Jan 07
Me being a blunt person my self, for starters I would just make faces at your son just to see him smile. But if I were in your shoes I would just plain out say that it is none of there business, I would also say that they dont see me going up to them and asking what is wrong with them. They should mind there own business and keep there nosy selves to them selves. I realise that this is rude but to be honest they are being rude to you by asking those kind of questions about an innocent child. It is not right. When I do to the store for any reason and I see a child that looks diffrent, I dont see the diffrence I see a child who deserves love and attention just like all the other children in this world and all I would like to see is a smile and maybe even a giggle so I will make faces at them just to get a smile. It seems most parents prefer that and dont mind as long as I keep a little distance and are not pushy.
1 person likes this
@disvachic (10117)
• United States
4 Jan 07
Some people are rude and very disrespectful.I work with mentally retarded adults but overnights but i work some days if asked to, and when we take our clients on outings people stare and look like they have never seen people with disabilities before.I get so heated and want to say "what are you looking at" but I dont.Maybe one day a client will ask what they are starring at?Then they will stop!!
1 person likes this
• United States
4 Jan 07
You cannot control how people react to your angel, you CAN use it as an educational moment to enlighten others, I don't think most people mean to be rude, I'd rather they ask than whisper/stare. It would be very appropriate to say, "I don't need to discuss my personal business with you" and just move on
1 person likes this
• United States
4 Jan 07
Hi Cassie I understand what you mean it is if people who have not been taught proper manners and sometimes it is the adults. I remember recently going to the doctors office with my 6 year old and my two-year old was with me and he was throwing a temper-tamtrum because he wanted to go home and this women just kept turning around looking back at us if someone dropped a bomb. Thats what two-year olds do. I couldnt help my self but I looked right back at her. As far as an appropriate way to say your son is fine im sorry i cant help you on that one I think these individuals just need a class in mannerism. Take care of your self as well as your son.
1 person likes this
@Persia (151)
• United States
4 Jan 07
I would let them be aware of their ignorance by saying something like, "Well, my son has is own characterists as you have your own. You are blessed to be born without any disabilities." Then I would just smile and walk away.
1 person likes this