My Son's Undiagnosable Pain - Doctors Can't Find Cause

Doctor - If your doctor can't find the answers, keep looking until you find a doctor who does.
@kelly60 (4548)
United States
February 23, 2007 10:10am CST
For many months, my son has been having severe abdominal pain. I usually end up picking him up from school at least once or twice every week from school, sometimes as many as 3 or 4 days... if he goes at all. Sometimes he describes the pains as just hurting. Sometimes he has nausea and vomiting. Sometimes he will turn beat red along with the pain. So far the doctor has put him on a variety of medications to try to help with his stomach problems. He is currently taking zantac and bentyl for this. The doctor has run tests, and admits that he does not know what could possibly be wrong. He is at a total loss. There is no doubt that he is hurting, but so far, we can find no cause. We are setting up specialist appointments to do some more testing to see if we can find any possible reasons. If anyone has any thoughts or ideas, please share them here.
9 people like this
28 responses
@blueskies (1186)
• United States
23 Feb 07
Have you looked into celiac disease? Celiac disease can cause a myriad of symptoms, and sometimes no symptoms at all. The difficulty lies in the fact that testing will often give a false-negative result. The only sure ways to diagnose celiac disease are: 1. An endoscopy with multiple intestinal biopsies 2. Going on a strict gluten-free diet For me, I went on the gluten-free diet before being biopsies, so my biopsies were negative. However, the diet cleared up the chronic diahrea that I had been suffering from for many years. Here's some links for more info. I hope the solution might be something this simple: http://www.cnn.com/HEALTH/library/DS/00319.html http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm http://www.mayoclinic.com/health/celiac-disease/DS00319/DSECTION=2 http://www.nlm.nih.gov/medlineplus/ency/article/000233.htm
3 people like this
@GardenGerty (118059)
• United States
24 Feb 07
Good input from one with real experience. When one of our preschool students was put on gluten free diet it did so much to help him in his life, behaviors, health and learning.
2 people like this
@kelly60 (4548)
• United States
27 Feb 07
I'll take a look. I'm hoping it's something simple.
@babbla21 (80)
• India
23 Feb 07
Well I think YOGA and Pranyama will help your son.If you want to know more about it,respond to it and send me a friends request I will send you links and details for yoga.
3 people like this
@mx_aman (2101)
• India
24 Feb 07
some of the benefits of Pranayama will sure help... One of the initiation techniques into Prananyama is through the practice of Yogic Breathing or Yoga Breathing. Yogic Breathing helps us break down and understand our breathing better as being composed of diaphragmatic and thoracic breathing. Although this breathing technique forms a basis to advanced Pranayama techniques, it leads to important benefits of its own and provides us a glimpse of what we are capable of reaching through Pranayama. Patanjali has said that one develops concentration and clarity of thought by practising Pranayama. It helps in increasing the mental and physical powers of endurance. It is the path to deeper relaxation and meditation and is a scientific method of controlling breath. It provides complete relaxation to the nervous system. It provides relief from pain caused by the compression of nerve endings. It helps in increasing oxygen supply to the brain which in turn helps controlling the mind.
@tad1fan (3373)
• Canada
23 Feb 07
If he hasn't been xrayed yet,do it NOW!My girlfriend just went through this with her 5 year old and after a while she DEMANDED xrays and to their surprise,they found 2 magnets lodged in his large intetine.....they have no idea how long they've been there but after being hospitalized and in a lot of pain,vomitting too,they finally had to open him up and take them out.....Have him checked over and over,so mauch can happen inside the human body that can't be found
@GardenGerty (118059)
• United States
24 Feb 07
I still would look into food allergies, and a blocked intestine. This is scary. Good luck. I am praying for him right now, and for the doctors to have the knowledge necessary to help him.
@CatEyes (2448)
• United States
23 Feb 07
I have suffered the same and so has one of my younger brothers. Come to find out we had Lyme disease, and it got better once we were on antibiotic. A good Lyme doctor is who you need to see, not your reg. dr.. They will not be receptive to you at all. We were not bitten from a tick, we got it from our mother who has it. It was passed throgh the placenta. There are 7 kids in all and ALL of them have tested positive for Lyme. Here are some sites you can view. Lymenet.org Aldf.com Lyme.org If you need any other info, please contact me via a message and I will help.
2 people like this
@kelly60 (4548)
• United States
27 Feb 07
Wow, I didn't know you could get Lyme disease without being bitten by a tick, and I didn't know that it caused this kind of symptoms either. I would think that if that were the case though it would have surfaced before now. Still, I might have to have a look at the site, just to be sure.
• United States
23 Feb 07
Have they done an ultrasound and checked for gallstones? I just ask because I *suffered* for almost four months with attacks that sound a lot like what your son is going through and the doctors had me on all sorts of medication and different dietary diagnoses before I finally had to go to a different doctor because I knew it had to be more than what they were saying. I hope they find a reason soon and it's something simple to solve!
2 people like this
@kelly60 (4548)
• United States
27 Feb 07
I hope it is something simple too and I hope they find out soon. I hate to see him go through this every day.
@tad1fan (3373)
• Canada
23 Feb 07
I was also thinking that it may also be psychological....is he (Maybe) being bullied in school?How old is he?If a child is being 'over' bullied,they will fake an illness,especially if it works and gets them out of school over and over again.....I'd also look into this
2 people like this
@kelly60 (4548)
• United States
23 Feb 07
He just turned 13, and if it just happened on school days I might think of that as a possibility, but he also misses events that I know he is really looking forward to.
2 people like this
• United States
23 Feb 07
it is possible this could have an emotional source if nothing physical can be found I would exhaust the medical rout first then try phsyitry,however maybee a second oppinion to your current doctor could help !
@kelly60 (4548)
• United States
23 Feb 07
So far we have seen 4 doctors, and a psychiatrist, still no diagnosis. It has been over a year now and we are still looking for answers.
1 person likes this
@grevus (10)
• United States
23 Feb 07
I once had a pain in my abdomen that kept me awake for days.I went to the hospital and they did alot of tests but they came back negative. They suspected Gallabladder but were not sure. They finally gave me a shot of morphine that took away the pain imediatly. I went home and have never had the pain again.
2 people like this
• Singapore
24 Feb 07
I think it could be something serious. I suggest to do some kind of x-ray and ultrasonic scan at the abdominal area to see if there's any foreign objects in the body. regards, Thomas Hoi http://drsecretbwl.blogspsot.com
@kelly60 (4548)
• United States
13 Mar 07
They did an ultrasound and x-rays and found nothing at our last emergency room visit.
• Philippines
24 Feb 07
they should take ultrasound of his abdomen,his liver, gall bladder. i think this is a serious disease inside his body, don't take chances my dear, the life of your son is at stake. i have a friend's daughter who always have a stomach ache and the doctor found out she has a gall stone. they removed it by operation.
1 person likes this
@kelly60 (4548)
• United States
13 Mar 07
They just did these tests on our last trip to the emergency room. The doctor suspected that he might have a gall stone, but they didn't find anything. Thanks for your response.
@winterose (39897)
• Canada
24 Feb 07
has your doctor suggested a child psychologist to figure out if there is a psychological issue. Perhaps he is afraid of going to school, or anything for that matter. I know that I was always nervous and would throw up every school morning until I was teenager. It might be worth your while to see if this could be a factor.
@kelly60 (4548)
• United States
13 Mar 07
If it happened only on school days I might suspect that that would be the problem but it happens most days, even when there is no school. I have taken him to several doctors including a psychiatrist and he sees a therapist on a regualr basis.
@resasour (378)
• United States
24 Feb 07
Have they checked to see if maybe he might have a blockage or a twisted intestine? My aunt has a twisted intestine and she will have similar symptoms. I think it is worth asking about unless they have already scoped him and don't find any abnormalities. I really hope that whatever it is, it isn't anything serious. I know you said you have Cholitis, so just for kicks and giggles, have you changed his diet? No oatmeal, or high fiber foods, no spicy foods, no ibuprofen? Just to see if maybe that brings him some relief? I am sure at this point you are willing to try just about anything. If you haven't tried it already. If it is not cholitis or ulcers, then I would be concerned about twisted intestines or bowels.. I wish I had the answer. I hope they find it soon, I hate to see kids miserable and in pain and I am sure you do too. Post something when you find out what it is so we all learn something, and get to know how he is doing, will you? Good Luck
@kelly60 (4548)
• United States
13 Mar 07
We tried a lot of different diets... no dairy, red meats, nothing he has to chew, nothing spicy or greasy, you name it. So far none of them have solved the problem. I hope they find out something out soon.
• United States
24 Feb 07
Wow, i am really sorry to hear you can't find the source of the pain. i saw someone mentioned emotional factors...that could play a role, but i think you would see other signs as well if that were the case. i know this is a scary thought...but has he been checked for cancer?
1 person likes this
@kelly60 (4548)
• United States
2 Mar 07
Cancer is a scary thought. No, he hasn't been checked for that yet, nor for quite a list of other things that I am making a list of as I go through the responses from this discussion. I plan on taking this list to the doctor with me and asking about different possibilities that this may be.
• United States
24 Feb 07
i had the same thing!!! i went through pain for 3 years!! i was so bad!! no its not in his head, he could have something called accute appendicitis. it does not show up on any tests. it does not show up on x rays, cat scans, or ANYTHING!!! what it is is the appendix is slowly getting infected or inflamed, and there may be a very small leak which cause the nausea and vomiting. i went through 3 years of that pain, and at first it was really nothing but over time it gets alot worse, like cant get out of bed worse. my OB/GYN is the one who said lets take out your appendix and see what happens. he did a very small cut, used a laser to shrink it, then took it out. after i healed from the surgery, i havent felt better!!! and i still feel great!! so i say, talk to his doctor about taking out his appendix cause you sure dont want him to go through that. like i said it doesnt show up on any tests. trust me than took enough blood out of me those three years to make at least 3 people!!! i was in the hospital every other day just for fluids! its not fun at all, i had to drop out of school from it. and accute appendicitis "looks" like just a stomach virus, that never ends.
1 person likes this
@kelly60 (4548)
• United States
28 Feb 07
I had surgery for appendicitis years ago. When they took out my appendics they found out that wasn't the problem, but they did find what the problem was. Apparently, there are tests now, because after our 4-hour visit to the emergency room tonight they ruled appendicitis and several other ailments out. Tonight he went through more blood work, urinalysis, x-rays, and ultrasound. Although he did have some elevated pancreatic levels, still nothing conclusive.
• United States
24 Feb 07
You know, I really have no answer for you. I just know that I have been very ill for the last 5-6 years. I've had numerous surgeries. Currently I am going through the same problem your family is, but I have different symptoms. The doctors thought my current problems were related to my other problems but we've recently found that they aren't. Now I have mini strokes often but we don't know why and we cannot stop them. I'm sure that you are looking for answers. But truth of the matter is, I am not a doctor. I can however be a friend. I believe in the power of prayer and will say a prayer for your son. Please feel free to respond when you need someone who understands the frustration.
@kelly60 (4548)
• United States
27 Feb 07
Thanks for your prayers. I will be praying for you also.
• Canada
24 Feb 07
This sounds horrible and I deeply sympathize with you and your son. It also can't be good for him to miss so much school too. I really don't have any advice for you except to let you know that I'm praying for you and hoping that Specialists will find what the problem is. Good luck, and hang in there!
@kelly60 (4548)
• United States
27 Feb 07
Thanks, your prayers are appreciated.
@vanities (11410)
• Davao, Philippines
24 Feb 07
you have yet to undergo or submit him to some lab tests for diagnosis and it must be a thorough one..at the moment since he have not yet the results..in my opinion it could be only a gas pain..its pain felt in the stomach and anywhere as it moves around ..like shooting pain..does your son felt it that way?..or it could be an ulcer...
@kelly60 (4548)
• United States
2 Mar 07
I would think that if that were the case that the doctors would have figured it out by now. They have done many tests on him so far, and have had him on zantac for acid reflux for a long time as well. I think there is a lot more to it than that. I suppose that he could have gas and/or and ulcer in addition to his other problems, but I don't think either of those would be entirely missed by four different doctors plus the emergency room staff.
@kareng (22570)
• United States
24 Feb 07
Sounds like you are having an ordeal about like I had with one of the girls here. This went on for almost a year with her going from doctor to doctor. Finally after making the rounds of specialists she went back to her regular doctor who finally said, well you have irritable bowel symdrome. Seems like she could have figured that out sooner and saved us all some pain, grief and my pocketbook. I hope you find the solution fast, it's not fun watching them hurt.
@kelly60 (4548)
• United States
27 Feb 07
At least my doctor admits that he has no clue what the problem is, but there has to be something we can do for him. I have colitis and Crohn's disease so that was my first thought when he started having the pain, but the doctor assured me that it wasn't the problem. With all of the tests they are running, they should be able to find out what it is.
• United States
24 Feb 07
My daughter would often get the same symptoms and have migranes too. She was having problems at school and the symptoms would start before she would go to school in the morning. I realized what was happening when I attended a parent/teacher conference. The teacher was belittling my daughter by ripping her work into small pieces and tossing them at her in front of the class. She would yell at her too. This caused her to get the migranes. The teacher stopped after I confronted her. The migranes stopped too. Hopefully they will find out what is causing your son's problems soon. Huggers to you.
1 person likes this
@kelly60 (4548)
• United States
27 Feb 07
A couple of my son's teachers are headaches, and I have confronted the biggest headache of them all. I don't know why the teachers don't grow up and act like adults. I might have thought that maybe the problem might be school related, but since he has the same problems on weekends as he does on school days, I don't think so.
@sidoney (1033)
• Jamaica
24 Feb 07
have you seem a specialist try to seach about such stuff on the net you'll be suprised at waht the net contains
1 person likes this
@kelly60 (4548)
• United States
2 Mar 07
We have an appointment with a specialist in a couple of weeks. In the mean time, we are going to the doctor every few days and made a trip to the emergency room a couple of days ago when the pain got to bad for him.