Fibromyalgia Sucks

First i have to say i love your name because its also my own. Its rare you find Shawna spelled that way. Second is that i so know what you are going through. I have fibro as well. The worst part for me is the skin hurting. I have a six year old niece who loves to horse play and i usually play with her but there are times where i cant stand to be touched. Its hard for her to understand and it makes me cry because i want to play but it just hurts to bad. Now the bad news i have no idea what to do to alleviate the pain. With me if i hurt i go to sleep because i don't feel anything while i sleep.

LOL! {{Shawna}} I feel your pain I know what you mean; I too have that nasty problem along with many other pain issues and mega crappy health; I take Lyrica for mine about 4-6++ pills a day for it, not to mention the pain killers for my back/neck injuries; I take enough meds per day to choke a horse... is it raining there where you live or like a cold front of some sort?? that's usually when mine flares up the worst; I don't have to be nice and bubbly to anyone seeing as how I live alone thank God, I might just kill someone most days... like you said you just have to grit your teeth, try to occupy your mind on other things like the computer, using mylot or something, and when things get really really bad, just knock yourself out if you can... just know that you are not alone with this stuff, it is bad and it is REAL, and well I just had a brain fart ROTFL! forgot what I was gonna say guess my pills are kickin in after all...(G)! take care!!

I don't have fibromyalgia, so I guess I can't really give any advice, but I just wanted to say I'm sorry to hear how much you're suffering with it! I have just heard about how horribly painful it is, and I feel so bad that people like you have to go through it. I definitely wouldn't blame you for being grouchy when you're feeling that way! Sorry I can give any helpful suggestions, but I hope you'll be able to find something that works for you to relieve your pain and that you'll feel much better soon!! Hang in there! You're in my prayers

I know all too well what you feel like. I have a back injury and honestly sick of people telling me oh it's ok and I understand how you feel. Well sorry to burst your bubbles people if you don't got it you don't understand it. It's even hard to find people that have the same thing which many of us have and it's even harder to talk with family and friends about this as well. They just don't know what we are going through. They want us to be happy 24/7 and be the person we were before the diagnosis/injury and we just look at them like they are crazy. I am grouchy and short tempered exactly like you. I often cry because of the pain. I am honestly at my wits end with this since pain pills don't work at all but all the while gritty my teeth to be nice and friendly but in reality I just want to bite your head off. I am always here if you need to talk. It is not fun and I know what you are going through. With your skin hurting. I have found it's certain types of clothing or certain things that I wear. It's like they dig in and really cause it to ache. One big thing I found was pants brushing against my back is the worst or even underwear that are the string bikini. I found that using boy shorts (that come in womens of course and sweat pants that aren't too tight. That is one key make sure that it's not tight.

Hi Shawna...I am sorry that you are in pain,it isn't something alot of people actually understand,my Husband was diagnosed almost 3 years ago with this and since then I have met people with it.It is a very painful disease that attacks your central nervous system,I hope your Hubby will actually see the pain you are going through and want to help you,I know I was in denial when my Husband said he had it I thought he was faking cause he wanted to be lazy,then I looked it up and realized how bad this is going to get.You will have better days then some,but do not over do things on your good days cause you will have many days of suffering after that if you go all out cause you feel good.I can be a shoulder to lean on if you want I am a good listner as well as a good talker,I hope your spirits are lifted I understand what you are dealing with,I live in Florida I am a Mother of 4 beautiful children and a wife of a disabled Husband...things are tough but remember the lord doesn't give us what we can't handle,unfortuanatly that comes with ups and downs,just remember you are not alone and there are people out here who do care,I wish you the best of luck and hope your pain goes away,miracles do happen and I will keep you in my prayers take care hun~Samantha

I totally know what you are going through.I have fibro too. I have good days and bad days.The bad days really suck.Besides being in pain I have no energy. The worst part is that because fibro isn't visible to people they tend to think it isn't so bad.If fibro showed on the outside and revealed itself people would be shocked at we have to live with. I have days pain meds don't do anything either.Have you tried any other meds like lycria?

shawna hi although I do not have fibromyalgia I have a pretty good sense of how miserable it feels. I am just recovering from shingles on half of my abdomen,and the nerve pain was really awful, all summer long I suffered through it and finally its about gone.I know how hard it was for me to be cheerful when just wearing clothes was painful.YOu dont have to put up with it 'though as you have to go b ack to your doctor and say this medication is not working, put me on something that will help. or refer me to another doctor who can help me. I know there are a lot of others who have the s ame thing, and so there has to be some medications and medical help that will help you. So get onto your doctor to see that you are made comfortableagain, and if he orshe cannot do it, seek someone who is really an expert in fibromyalgia. also check the web for medical info that could help you. good luck, and Godbless.

Hi fellow pain sufferer, I have a long list of health issues, most are pain causerers, but today i will talk with you of this horrible illness. First if you can get a REAL doctor to recongize it, you are in step one.... and he listens to you ...... and maybe you can get some help. But for me i get the joy(not) of going to a free clinic since i cannot work and so far cannot get disability due to ignorance of doctors and lawyers, but that part is another story. ( weak laugh) Sometimes my skin feels like someone has removed several layers of skin and when my finacee just wants to carcess me i feel like i want to scream!!!! One thing i can suggest, even if you have to do it several times, sit down and talk with your husband, no tv on or any other distractions, and you know he is listening to you... Tell him in your best way, what is it, what it attacks in your body, and most important how it makes you feel...( like with me all the time) I seldom have one day without pain. Don't get discouranged hon, most people will not either believe you or not understand. Go to as many websites as you can get all the information , i have made up several folders on my illnesses and i am constantly updating them. Sit down and let your hubby read it with you and then let him ask any questions. I will try and help you all i can with what i know and have info on, if you would like any? You can write to me at fury12458@gmail.com I too am very grouchy, which is probably calling it mildly, snort. When you have a good day and i know there are few and in btw. Make that time to do something with him that won't hurt you, but so he can see he's not losing the woman he fell in love with. In Dec last yr my finacee moved in with me, we have been going together now for 4 yrs and 8 months. My fibromyalgia got 10 times worse and when your loved one is just visiting you for like 2 weeks at a time, its different he doesnt see all of your bad days, I am blessed, he is such a help for me. Now we have are bad days, all couples do no matter how much they love each other. But we always make up and talk about it. Talking is what kept us together all of this time. And we had big things to overcome. We met online, and trust me we had no support from anyone. But here we are and making it work. All our other friends online we were going together fell apart. Another thing, look for other alternative ways to relieve the pain some. I can tell you some i have tried, but you Must always check with your doctor first and/or a pharmacist. One woman from a sewing group i belong to i told the group i was suffering from fibro, and she said she was too, and told me a book to read on it. I can tell you the name and author if you like. I know first hand how hard it is, and how easy it would be to just give up ... Don't you arent alone and i care, i know im probably not much. But i am here and i am holding out my hand to you. The rest is up to you, sincerely, Lish in Ky