How long before being diagnosed did you know........

United States
January 11, 2009 3:49am CST
How long before being diagnosed with fibromyalgia did you know you had something wrong. My trigger point the very first one in my neck between the shoulder started when I was in 6 grade when we took a trip for my 6th grade graduation. I will never forget the pain how I was holding bags and the pain would not go away. To this day that spot is the worse point. If it is touched I will be in pain all over. When the rhemologist was touching trigger points I told him he better not even think about it when he came to that one. I was not playing with him. Anyway How long did you know?
1 person likes this
2 responses
@patgalca (14414)
• Orangeville, Ontario
12 Jan 09
It depends on how you look at it. I had mono when I was 17. Now I believe mono plants a seed that lays dormant until triggered by something which can develop into fibro. My trigger occurred around the time I had my second child. Because I was on maternity leave I had to find out what was wrong with me before I went back to work. I was diagnosed in a matter of a couple of months. Actually, my sister-in-law diagnosed me right away because she has had fibro for a long time; she just never told anybody. In hindsight I could tell that my general physician knew what was wrong, as did the internal medicine specialist she sent me to. But it was the rheumatologist who made the diagnosis official. My pain started in my legs, which is also the pain I had when I had mono. Fibro has all the symptoms of mono plus a whole lot more. I never had problems after my mono, just that I didn't like shopping for very long; my body grew tired but not really full of pain. I had pain in my legs when I was pregnant with my second child. I thought it was just because of the extra weight I was carrying but I realize that pain probably started before I gained a whole lot of weight. Complications after the pregnancy and a colicky baby were contributors to triggering my fibro, but personal issues earlier in my life probably lay dormant with the seed until the big trigger.
• United States
13 Jan 09
I think my 18 yr old has it. She had been complning of knee pain for yrs they said oh its just growin pains. well she is away at school and she called and said mami Im in so much pain and my knees hurt me so bad. She has been havin pain all over I told her go to the doc. My mom just found out she has it and we think my grandmother had it. We are having the same pain and acting like my grandmother did. She suffered for yrs. Doctors can be cruel how they ignore fibro is a dirty shame. People should not have to suffer as my daughter we have tricare prime thru the army and I will make sure she gets good medical care. She will see civillian docs, the army docs will tell you your faking and mentally ill. I am right now having a hard time and am in pain because even though the rhemetologiat diagnosed it my doc says I need a second opinion. How much longer should I suffer in pain and how many more docs should verify fibromyia?
@patgalca (14414)
• Orangeville, Ontario
13 Jan 09
I guess it depends on what you need the diagnosis for. If you just want a diagnosis and treatment then one or two doctors should be enough. Just make sure they do a complete blood work-up to eliminate all other possibilities including MS, Lupus and Thyroid conditions. I needed doctors' reports because I was fighting a legal battle. I tell you I saw 10 different doctors and got 10 different reports, all agreeing that I had fibro... except one. That was the insurance company's doctor who lied on the report. It does appear that fibro is hereditary, which worries me with two daughters of my own.
@ElicBxn (60884)
• United States
11 Jan 09
I think I had fibro about 15-20 years before I was properly diagnosed, and that was nearly 8-9 years ago.