Autism, ADD/ADHD

United States
November 14, 2007 10:22am CST
After months of speculation my daughter has a diagnosis for her son. Needless to say she is devastated. The doctor thinks he has a mild form of autism and possibly ADD/ADHD. He wants to give him a low dose of methylin and also wants him to have his hearing tested and may be referred to another doctor for more intense diagnosis and treatment. My daughter and her husband only have S-CHIP and she is afraid to go to Ft Worth to the specialist because of the cost. They are afraid to give him the medicine thinking that he might not need it or he will have to take it forever. Her husband is not much for taking meds. I told her to give it a try-if taking a small dose would help why not? They think that maybe by changing his diet and taking away the red dye in things that he will improve. I am not so sure. I think she should talk to the doctors first, take the meds and see what happens. To me getting as much information from specialists is the best thing to do. Rule out a hearing problem and see what the specialist in Ft Worth says.She is afraid they cant afford it. I suggested she contact Easter Seals for help or advice. I can only hope they will do the right thing. They have avoided thinking about this for too long. Now they must do something. What can I say to encourage them?
4 responses
@miamilady (4910)
• United States
27 Nov 07
I think they should do a lot of research on both conditions and then make their decisions. I hope the don't rule out medication completely, but I don't blame them for questioning doctors. It is tough when you don't have as much insurance as you need to cover everthing. I believe there are foundations set up to help families with autistic children. They should try to research that as well. Below is the website for the Dan Marino Foundation. I didn't look at the site closely, but it might be helpful. Living in Miami, we heard about Dan Marino all the time. One of his son's is autistic so, he and his wife have a foundation for different childrens chartities. I believe they have something that focuses on autism. There is also a good bit of information on the net about ADD. If you search my discussions, there are one or two discussions about ADD. There are a few people here in mylot who's children have ADD also. They might be a good resource for finding out some information. Good luck http://www.danmarinofoundation.org/
• United States
28 Nov 07
I agree with you and they are giving the medicine to him. He has also been put in Special Ed so he can get more intensive work. My daughter was a little sad about that but realized this might help him more than being in a regular class. Thanks for the tip about the Dan Marino foundation. I seem to remember something about that.I think the more my daughter learns about what information and treatment is available the better she will feel. Thanks for your input.
@maybebaby (1230)
• Canada
15 Nov 07
I work with children with autism, ADHD and FAS everday. There are lots of things that you can try that may or may not work with your grandson. Changing his diet to eliminate sugars is helpful and medication can do wonders. There are lots of programs and services available for these kids and their families. Contacting your doctor and asking for a list of services is a good idea. The main thing to remember is the diagnosis doesn't have anything to do with him as a person, just him as a learner. There a millions of very successful people with the same and worse diagnosis.
2 people like this
• United States
15 Nov 07
Thank you for your thoughts. I agree with you. To me you have to try something cause doing nothing is no answer. I talked to my daughter this morning and she seemed to feel better. I hope can can get some help.
@Debs_place (10520)
• United States
15 Nov 07
They have got to remember that early intervention is essential and will affect this child for the rest of his life. You don't tell us his age, but with a diagnosis of Autism they should be able to get help from the state for schooling and early intervention programs. The pediatrician should be able to help them. I work with Developmentally disabled adults that have ASD and do have some training so I am not saying this out of nowhere, I have seen the difference early intervention can make. Tell your friend that the guy who won the Nobel prixe in economics I think it was this year is autistic and said he could not have done it if he was not autistic.
1 person likes this
• United States
15 Nov 07
Thanks for your positive thoughts. I have thought for a long time that my grandson might have autism or something for quite some timd. He is 5 and barely speaks and frequently shows some signs of a problem. I am a bit disappointed that they did not think about this earlier. They never really had routine checkups just shots, so they didnt get things checked. But now with the help of his Kind teacher he was able to see a doctor who suggested medication methylin, and he wants him to be seem by an Autism specialist in Ft. Worth. When I talked to my daughter this morning she told me that they are going to give him the medication and hope they can find a way to see the specialist. Funny, they are not telling her husband's family about medicine cause they dont think it is necessary. I disagrre with that. I told my daughter to try the medicine- if it helps-great, if not then move on to something else. I will tell her about the Nobel prise winner. Tha should make her feel better. Thanks again.
@violeta_va (4831)
• Australia
15 Dec 07
I was in your daughters position last year (almost to the day) my son was 3 saying 80 words. He has problems with his hearing (long story) but he is having an operation soon to remove his tonsils. The doctor that diagnosed my son spend 10 min out of 210 (three sesions of an hour each and 1 sesion of half an hour) the rest she only spoke to us and she had the diagnose from the moment I spoke to her on the phone. Any way when she told us I dont know how I stayed alive to be honest as a disability worker and having worked with people with autism I was devastated to a point when my depresion went from feeling (on a scale from 1 to 10) about 3 to 153. I could not look at him without crying. Than I had this moments when I said to my self: what am I doing what is done is done my son needs me, he needs a strong mother that can lead and teach and help and fight for him. I needed to pull my self together and work on his positive things. So what if he watches tv 2 hours a day in those 2 hours he would learn 10 words (and belive me he does when his hearing is ok) he knows so much and uses what words he could say and I am proud of every single one that he sais. My son is my life he is the same little thing that came out of me he didnt change when I noticed he had a problem. When I looked at him as autistic I was seeng black and no hope when I chose to look at him as a boy that needs my help I noticed how he improved and with my help he keeps improving. I am told to go have him re assest but I told everyone that I want to wait till after the operation as when his ears are blocked he does not do well. At least I will have all that out of the problem and assest him properly. No one has ever told me to try medication if I knew that they helped some kids I would try them but I will make informed decision read all about them ask around. Good luck and please please please tell you daughter she is not alone tell her that it is ok to hurt but to stay strong for that little boy. There are I am sure lots of grups where she can go and talk to other parents but I would wait If I were her to talk to other parents as I made the mistake of talking about that with strangers the same day I was told and I felt like it was the end of the world (because of the stories).
1 person likes this
• United States
18 Dec 07
You sound a lot like my daughter. It is so hard to accept the fact that your child is not "perfect" or may not have an "average" life. I believe that the more we search for answers the more informed we are and that maybe some day we will know what causes things like this for sure and we wont have to deal with it. Until then we have to have hope and desire to keep searching for answers.
• Australia
19 Dec 07
I totaly know that my son is not perfect but I will never belive what the doctor wrote in her report. Acording to her my son is so disabled that he cant function at all (you should read her report and see what I mean) it is totaly blown out of proportion. I honestly dont know who she wrote it for as it does not my son. And its not just me saying that as a mother everyone that knows him sais the same thing.