I don't want to hear about it,don't whine to me about your pain, just suck up
By winterose
@winterose (39887)
Canada
April 24, 2008 5:21pm CST
I don't want to hear about it, don't whine to me about your pain, just suck it up and deal with it are the words of Tony ProudFoot, a former Alouette football player who has been stricken with ALS, a killer disease in which there is no treatment and no cure.
This has not brought Tony down, he is not whining and crying he is living every day of his life as long as he can. He can hardly talk now and losing his breath. He sounds like a drunken person when he talks so he talks as less so he says. But his spirit is still alive, he is raising public awareness and money to educated and help people suffering from this disease.
It is a very rare disease and there never has been much public awareness, Tony wants to change this.
What would you do if you were handed a death sentence like Tony?
Would you suck it up and deal with it,
Would you whine and tell everyone you know how life is unfair,
Would you get depressed in withdraw into yourself,
or would you go on a crusade to help people become aware of your situation and generated money which may not help you as it may be too late but you can help others to follow?
I know I am a whiner I tell everyone of my aches and pains, I have no idea what I would do if I knew I was going to die.
4 people like this
8 responses
@Fishmomma (11658)
• United States
25 Apr 08
I would hope that by getting my story out there that people would want to help find a cure. Its sad to know that this disease doesn't have a cure. Lou Gehrig helped bring awareness to this terrible disease and he passed away at 37 years old. It sad to hear another good man has this disease.
4 people like this
@rlc456 (415)
• United States
24 Apr 08
I feel for Tony, and I think he sounds like a very strong person about dealing with his disease. My son in 1999 was diagonised with juvinele diabetes, he was only 15 at the time he is now 24 he does okay. Hes not a whiner, just goes on with life, got married and now has a son of 18 months old. I am very proud of my son diabetes is not an easy disease to deal with. But to answer you guestion, if I had a disease, I hope I would be as strong as my son and Tony and just keep on going. Life throws us curves, but we have to keep going to make it. God Bless
4 people like this
@GardenGerty (169448)
• United States
25 Apr 08
When my husband had ALS, he worked as long as he could, and still wanted something of value to do. When he was in a nursing home, staff loved to hang out there, as he was so nice to them, always. It is known to some as Motor Neuron Disease, and actually, just as many people are diagnosed with ALS as are diagnosed with MS in a year. With ALS, the average length of survival after diagnosis is three years. With MS, it is twenty to thirty. So very few ALS sufferers are seen in the general population. It is a very imprisoning disease, because as it progresses, the body does less and less, but the mind seems to become more and more sharp, and the victim seems to know in great detail what is going on with them. I know this does not really answer your discussion. He put his house in order, worked as long as he could, made himself spiritually right, taught his daughter how to change the headlight in her car, and listened for us to tell him we would be alright. His son went away to school, and when he was home, his dad loved to see him. It is always hard for fathers and sons to relate, I think.
@winterose (39887)
• Canada
1 May 08
hon thank you so much for this story. Your husband sounds like he was a wonderful man.
1 person likes this
@gemini_rose (16264)
•
25 Apr 08
Some people who have these terminal diseases are a true source of inspiration, they are so brave and courageous it is unbelievable and they really have the ability to humble a person and make them appreciate the life they do have.
I can be a bit of a whinger, a mardy bum as I call myself and I can honestly say that I do not know how I would be, I just do not think that I would handle it like that though.
2 people like this
@winterose (39887)
• Canada
1 May 08
Me too, I am a whiner, but I do agree some people are just so brave and courageous, I am afraid I don't half even have of what they have.
@sherrypeck19822001 (228)
• United States
26 Nov 09
well, as a suffer of depression, I can assure you that it isn't something that you can CHOOSE to have or not choose to have. Depression is an illness, not a type of outlook on life.
1 person likes this
@winterose (39887)
• Canada
1 Dec 09
yes depression is an illness I hope you have medication and therapy to help you
@suspenseful (40192)
• Canada
25 Nov 09
My husband has als,and he has pain. He tells those around that he cannot sit too long, he needed a large cushion so he told the health worker about it. Do you think he should not tell anyone and just keep quiet and suffer? I mean it is just as bad to be oh so smiley and happy as it is to complain all the time. He gets upset and depress because he was a mechanic and did a lot of work with his hands and he loved to do that, but now he cannot do it anymore. He cannot sleep that well, and I have to turn him over. Yet people want me to be oh so happy and have this angelic look on my face, but I know that he will not be long for this world.
I do wish that the things necessary to make his life better would come sooner, but we live in Canada and things move very slowly.
There is something for being inbetween. And we do have our friends that help. If I were dying, I would be upset because I would feel that I have not accomplished all that I could have done, but at the same time, I would be glad that I am going to heaven sooner.
@winterose (39887)
• Canada
1 Dec 09
if you read my response you would see what I do it is the last piece of the discussion, I live in canada too and I get all the medical care I need. I naver had a problem with that. And I have never had to wait very long to see a doctor. And I whine if I hurt and that is just me.
1 person likes this
@suspenseful (40192)
• Canada
2 Dec 09
I get upset. My husband had to wait for almost a year to find out that he had als and on top of that, now he has to wait for a head rest for his power chair and you know what, by the time he gets that, he will be in the reclining power chair that has an automatic head rest on it and the latter he does not have to pay for, but the former he had to shell out $300.00.
And when I had the problem with those cysts, we had to wait a whole day in the waiting room and later when my husband had his panic attack, it was one day in the waiting room. Things are sort of slow here in Winnipeg.
@ladym33 (10978)
• United States
26 Nov 09
I am sure I would be very sad at first and I would probably have a good cry. But then I would have to deal with it and prepare my kids for it and I would want to spend as much time with them and my husband as possible as well all th other people I love. I would also start taping stuff for my kids and writing them letters to be opened in the future. I think that inevedibly you would just have to suck it up and deal with it because there is nothing you should do, but I think a good cry or a bad moment now and then would be understandable. If there was some way I could help others I would.
1 person likes this
@winterose (39887)
• Canada
1 Dec 09
it is so scary I really can't predict but I know me and I would do a lot of whining and crying
