I have two types of epilepsy

Hi Tamara yes they are now trying to wean me off a couple of tablets one at a time but also have to go to the Maudsley Hospital in London to see someone about it-you are confused so am I blessed be littleowl

Thankslilaclady-apparently there are a few types of epilepsy but thats life I just a bit confused about the two I have-your friend littleowl

I'm glad you have so many doctors looking into your problem. I hope they get to the bottom of things soon and get your seizures under control. The whole process can be very frustrating, but hang in there. When I finally was sent to a neuro. that believed me, he did a 4 hour MRI on me and found the place in my brain where the seizures were originating. Until that time, I have my doubts whether many of the other doctors believed I was having them.

Hi drumfelt it is good to have all the doctors looking into it but also makes me feel like a gunea pig at times they have given me MRI scans too and thats how they found I don't have a scar on my brain so they didn't need to operate was I glad cos they wouldn't of got my permission to do so if I had-thats a 50-50 chance anyway of hopefully getting rid of it and it doesn't always work-your friend littleowl

Hi circumfelt-I have not long seen my neuroligist and she has said that it can also be caused by emotional stress etc and that she now wants to refer me to another neurologist as well so she can make an evalution too plus I am reducing one of my aed's I still have the blank spells get very confused over quite a lot of things I also have short term memory loss as well as the convulsive turns have also been told that the non epiletic seizures could also be to do with diet! well guess they are just going to have to help me decipher which is which cos I do have petty mals--its so confusing...have had epilepsy for 30 yrs now and they have only just found this out..if I need anymore advice will ask you thanks very much-your friend littleowl

Hi Rowantree it is so good to hear from you again-yes my gp meant one non-epileptic seizures and the other epileptic seizures-I see my neurologist early July but was just wondering if there is any medical people on mylot that could explain it to me-your friend littleowl

Hi Rowantree thanks so much for all that information..I have been tested for diabetes as at one time I thought I may have it but the diognosise was that I haven't now since seeing my neurologist she has referred me to another neoroligist who knows more about it and will be able to see what the reason is I have these turns..but have also been told that I do have both forms of epilepsy but they are going to reduce my aed's as I am on a lot of them to control it..one that I am reducing though I seriously want to come off of as it actually causes me to have these seizures...thanks once again for all the information and will definitley get back to you if I need more help...bright blessings littleowl

Hi Ellie-I know about these and have had grand mal seizures when I was in my teens and have hurt myself pretty badly in some of those,there is also minor seizures which don't last for as long as a grand mal which I have also had then the petite mal as you have said which I suffer from at the moment plus the minor fits-what I don't know about is a non-epileptic fit!! that is a really new one to me!-hugs litleowl

Hi Littleowl well I really don't know then, sorry I couldn't be of any help. Ellie :D

Hi Ellie I since found out that non-epileptic fits can be caused by diet or emotional stress etc but it is finding out which one is which but am going to see another neurologist about them at the Maudsley Hospital in London-huggles and blessings littleowl

Hi Weng-good o hear from you-what does Sympthomatic or Cryptogenic mean-yes I beleive mine is genetic but what the non-epiletic seizures mean I am not sure-unfortunatley though it is an illness that continues throughout your life but has been known for some to grow out of it-your friend littleowl

Thanks for the best response. I am glad that you are taking things the way you do...it takes a lot of courage and faith. I salute you for that. Too bad I can't tell much about it either. I wish I could really help. Anyway, symptomatic are said to be those that have identifiable cause, for example, an accident caused paralysis, or a trauma brought about epilepsy. It is when a sickness is caused by a more specific factor/s.

Hi Kiran-my epilepsy started when I was eleven and have had grand mal seizures when in my teens and still now suffer from petite mal and minor seizures-see the explanation above to Ellie but will let you know when I have seen my neurologist-hugs littleowl

Hi Celest'-thats ok not everyone does know much about epilepsy-it is a frightening thing though when it happens especially if your concious of what is happening and have no control over it..at one time I did black out during a seizure that wasn't so bad as I really wasn't aware of what was happening-your friend littleowl