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Grand mals or petite mals? email this discussion to a friend?

myLot reputation of 98/100. crazydaisy (1250)   ranked 88 out of 140 in epilepsy1 year ago

How long have you had it?
I was born with it.
I was told not to have any children, but I had one beautiful daughter, despite what they told me, due to severe grand mals. The doctors thought that if I were to have kids, it would end up in my death. Ha ha ha...I proved them wrong!
It just goes to show you, that they're not always right.

Nowadays, I have managed to cut down my seizures to almost nil.
Has any of you other women out there managed to do the same?
What have you done to keep yours under control, either big seizures or small.?
What medications are you taking?

crazydaisy

 
 
epilepsy
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tags:  petite, grand, mals, or
 
1. myLot reputation of 97/100. JoyfulOne (4233)   1 year ago

I did not have seizures ever, but my best friend of 40+ years did. She had grand mal, and I remember when she was young that sirens and flashing lights used to set them off. She took phenobarbitol almost all her life, and I don't believe she took anything else for them. Once she was on a regular schedule of her medicines she never had ones after that. How wonderful that you had a lovely daughter despite being told otherwise. I'm so glad to hear that worked out well despite their predictions! (Thought I'd add to this discussion to bring it back to the top of the pile, it's a good discussion and I'm sure lots of people missed it:-)

Jarvis Buy heavy, light or medium duty Jarvis casters online. Great service. www.servicecaster.com
 
2. myLot reputation of 92/100. daceyp (237)   1 year ago

i havent got it but my daughter has it due to haveing tuberous sclerosis.she has big small and vaccant ones.at the moment shes on tegretol.clabazam and midazolam.shes also on melatonin to help her sleep.we have tried nearly every med that is out there and havent found one yet.so we are looking at surgery so poss try and help her.

Osram at Digi-Key Suppliers of solutions for sensor, lighting and visualization apps. www.DigiKey.com
 
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