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Anyone have fibromyalgia email this discussion to a friend?

myLot reputation of 98/100. venshida (3423)   ranked 52 out of 1,610 in general health7 months ago

I was just diagnose with this disease, and I try to explain it to my BF. He responded there is no such thing as we age we have joint pains. You need to take some vitamins, and you would not be so tired. The doctors don't know what they are talking about. I told a friend of mine and she said pretty much the same thing. Is this a normal reaction?

 
 
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melissaruth1 (3531) response was accepted on 6/3/2009.
denotes best response.
tags:  fibromyalgia, disease, illness, realationships, vitamins
 
1. myLot reputation of 92/100. melissaruth1 (3531)   ranked 288 out of 1,610 in general health   7 months ago

It is a normal reaction, unfortunately. My mother has had this for many years, though I will say I am unsure of the true diagnosis, but not because I doubt her symptoms. More because they do not know for sure what causes it, I find that odd. But anyway, whatever it is I myself am starting to show symptoms of it, and that worries me. I know for myself, if I eat a handful of cashews every day that added magnesium helps the muscle pain. Also, make sure you get at least 7 hours of sleep, every night, and avoid stress as much as possible. All of these things can help you control the illness.


myLot reputation of 98/100. venshida (3423)   ranked 52 out of 1,610 in general health  7 months ago

My biggest problem is stress and lack of sleep. I have so many stressful issues. I have increase my exercise so hopefully that helps.

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2. myLot reputation of 87/100. Sandra1952 (1474)   ranked 489 out of 1,610 in general health   7 months ago

Fibromyalgia is usually a diagnosis when patients present symptoms of arthritis, but without definition. So you may have some symptoms of Rheumatoid Arthritis, Osteoarthritis or Lupus, but not enough for a firm diagnosis. The doctor covers his bases by diagnosing you with fibromyalgia, but he does you no favours. If he came down on one form of arthritis, people would feel sorry for you and try to help. As it is, they feel you have a 'nothing' disease, and you can snap out of it if you want to.

If you suffer from excessive tiredness, I would say you have either lupus or RA, or perhaps a combination of the two. I have all 3 types of arthritis, but it took several years to get a firm diagnosis. Ask to be referred to a rheumatologist, and tell the BF and your friends that you need support, not dismissal.


myLot reputation of 98/100. venshida (3423)   ranked 52 out of 1,610 in general health  7 months ago

My mom has Rheumatoid Arthritis so that's what I was thinking I have. It's still quite possible that's what I have, and my doctor just went with the fibro.


myLot reputation of 89/100. jedopi (265)   ranked 477 out of 1,610 in general health  7 months ago

There are definite tests that can be done to rule out if you have Rheumatoid Arthritis or not. It is just a simple blood test which looks for RA Factor. This would tell your doctor if you had this or not very easily.

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3. myLot reputation of 87/100. friendship4lyfe (270)   7 months ago

Hey i maybe would have say the same thing a few days ago but there are lots of things we dont hear and know about.so trust your doctor.


myLot reputation of 98/100. venshida (3423)   ranked 52 out of 1,610 in general health  7 months ago

Yes, definitely trusting the doctor.

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4. myLot reputation of 79/100. spalladino (9027)   ranked 944 out of 1,610 in general health   7 months ago

I have a friend who was diagnosed with this over ten years ago and he received the same reactions from many people, including his wife. His symptoms became so bad that he had to take a leave of absence from his job or he would have lost it because he was in so much pain and so tired that he couldn't function. I haven't talked to him in about 8 years now so I don't know if he truly had fibromyalgia or RA or lupus.


myLot reputation of 98/100. venshida (3423)   ranked 52 out of 1,610 in general health  7 months ago

Sorry to hear about your friend, I think because the symptoms mirror so many other things that people discount the diagnosis.

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5. myLot reputation of 89/100. jedopi (265)   ranked 477 out of 1,610 in general health   7 months ago

I was diagnosed with Fibromyalgia ten years ago and yes this is the normal reaction. There are some doctors who don't even believe that it is a real condition at all, but I know that it is. It is not just pain, there are so many other symptoms to this chronic syndrome that it would take to long to list them all. I have a blog where I discuss my struggles with this condition if you would like to visit. http://jedopi.blogspot.com.

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6. 717Catalyst (12)   5 months ago

Hello venshida,

Fibromyalgia is a muscular problem. Your muscle cells are damaged, and possibly some cells in your central nervous system. But don't worry, cells know how to repair themselves. You just need to give them the opportunity to repair by taking enough rest (7-8 hours per day), have a healthy diet and free yourself from stress.

Apart from these natural methods is enzyme supplementation. You can take natural enzymes from not-so-ripe fruits such as pineapple, papaya, grapes and apples. You can also take enzyme preparations available in the market. Enzymes hasten cell repair process so you do not feel those muscle aches.

You can always visit us at www.mybioenzyme.com for more information.

Stay healthy!


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7. myLot reputation of 76/100. MAX1966 (847)   2 months ago

yes
it is
many people dont understand it
so be it
i dont like it either
but thats the way it is

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