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Anyone know of someone with Alzheimers? email this discussion to a friend?

myLot reputation of 94/100. PSmith721 (194)   ranked 5 out of 51 in alzheimers5 months ago

My father has this horrible disease. To me he is gone. I know this is a terrible thing to think, much less say, but----. He just sits in the nursing home and does nothing. He can't remember how to walk or even feed himself. I just can't make myself to go see him. He and Mom have been married 63 years and Mom goes to see him every day. I just don't know how she does it. We live 2000 miles away, but when we go home, I know that Mom is going to expect me to go see him. Am I being a terrible person? Will I be damned for feeling this way? Help, please.

 
 
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koalapenguin (1330) response was accepted on 7/25/2009.
denotes best response.
tags:  alzheimers, disease, religion question, memory loss, handles
 
1. myLot reputation of 87/100. neelianoscet (1803)   ranked 42 out of 51 in alzheimers   5 months ago

I know a friend whose mother get this kind of diseases. her mother is very sweet and endearing mother. She always ask her daughter, such things like, every times like where she is going, how is her day, where is her friends, and any sort of stuffs. This is everday scenarion that it becomes irritating and annoying to her. When her mother suffer from alzheimer. She forgot to ask her daughter, and becomes so silent. The mother forget her daughter names,and all the happy memories is totally wipes out. The daughter feel guilty as she do not gives too much attention to her mother when her memory is still active that she miss her badly. Especially those funny times and now that she is pregnant. The daughter even wish her mother mind is still well and sound good. And she could see her grandchildren and play with them. I too realize, that we need to be patience with our aging parents if we do not want to suffer like what they experience now is very difficult.

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2. myLot reputation of 99/100. lilaclady (19666)   ranked 2 out of 51 in alzheimers   5 months ago

Everyone handles things in different ways, when my mother was in a nursing home with alzheimers I was told that very same thing that she really has gone into her own little world, I looked at that she was half between two world so to speak...I was like you at first but I was surprised how strong I became, I felt a need after awhile to be there for her, help her through this as she would have done for me...then I started helping other people that came to the nursing home with theit parent that felt like I didat first, all of a sudden I felt i was doing something worthwhile, after my mother passed way I stayed and volunteered at that nursing home for six years, it was very rewarding and all very new to me as I guess you could say I had lived a very selfish life, lived for me, this whole experience made me grow up and i think I became a better person, but that does not make you a bad person for feeling the way you do, we all cope differently, but for yourself i would say go ans spend quality time with your dad, I think you will appreciarte why when he passes...I wish you well I know it is a very hard time....:)

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3. myLot reputation of 95/100. koalapenguin (1330)   ranked 51 out of 51 in alzheimers   5 months ago

My friend's grandfather experienced the same disease as your father's and she really handled the situation pretty well. Having a relative with this kind of problem takes a lot of patience and acceptance. You must accept that it's not reversible and can not be cured. You need patience to do his activities of daily living. I bet your mother really loves your father that's why she doing what she's doing right now. I think you're not a terrible person rather, you need someone who will explain to you about the disease and how to accept and live with someone like it. I salute you and your mom for still visiting your father in a nursing home. I hope that someday you could get to accept and learn to deal with our father's illness.Ü

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4. lizzrr (90)   5 months ago

I don't have anyone related to me that have alzheimers but where I work in my college placement at a nursing/care home most of the patients have dementia/alzheimers and it is hard to see them looking like that, even my self I find it hard to look at them because I get upset easily. But you just have to be strong and be there for them no matter what, they might not remember you but hey, they're still your family and as for your situation he is your dad.
I don't think you are being terrible person, some people just can't stand to see their loved ones suffering, but just try to be there for him. Wait, did you say "to me he is gone?" so I'm guessing he's still alive. So it's best to be there for him because he only have few to live and If I were you I would be there to spend time that it might be the last minute for him.

Goodluck though.

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5. jit_21390 (63)   5 months ago

no, i don't.

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6. myLot reputation of 91/100. desteny114 (707)   5 months ago

I don't think you are a teribel person I actually think that you are scared and you hate to see him that way. I think that way because that happens to me when I see my grand parents from my dads side.

They both have Alzheimers but my grandma is worst than my drandpa. I was told that she walk and eats but not that mutch so most of the time they would have the little cans that are like a diner but in liquid. She started to forget years ago and at first it was the names then she would be talking about something then another thing that has noting to do with it. And now she can't go to the restroom on her own and she will some times remember things from 30 or more years ago but she can't remeber if she took her medicen a few hours ago.

My grandpa is another story he has a little problem going to the restroom on time but not all the time. He will confuse us with other people most of the time he harly talks and he is not eating all that good either. He walks around all the time but there have been times when he gets lost and those not remember how to go back home.

My dad wanted to put them in a retirement home but one of my ants refused to because she knows people that work there and told her that they are better of at home. And since the other retirement home is far from her so she can visit and make sure that they are ok she just kept them with her.

I know it is scary to see some you love go true something like that but there is nothing we can do to stop it. All we have left to do is to be with them because a few minutes wont hurt and I know if you don't go it will hunt you because you know you care about him. Just try to go see him and if you really don't want to go back it would be ok since you atlest tried.

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7. myLot reputation of 73/100. ravirai8616561 (761)   5 months ago

First of all don't let yourself down.Here are some measures you can do to really get some sort of improvement in your father.Firstly have someone take care of his hygiene as this is a major issue in this disease.Also remember that dignity is the only important thing to own when suffering from such disease,and its only thing that is left.HOPE YOU GET ALL YOUR WISH FULFILLED.HAVE A NICE DAY

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8. myLot reputation of 78/100. Mikaela_taz25 (1053)   5 months ago

You must have felt bad about what's happening to your grand pa. you shouldn't say things like he's gone even though he's alive. spend time at least a minute or two or you might regret it. i know i did, i never forgave myself for simply thinking the way your thinking now about your grandpa.

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9. myLot reputation of 91/100. check23 (292)   5 months ago

My grandmother had an Alzheimer but she's gone. The last time i visited her she couldn't remember me. I was so sad even though we're not that close. When i got older i don't want to experience this disease. It would be very sad not to remember the people you love and the memories we shared.

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10. katty2009 (19)   5 months ago

That disease is really awfull,a person will not remember all those things he will not even know that he is a human...I have a classmate telling me that his both grandparents have this disease, he tol me that they were shocked when they saw that his grandfather was riding on his grandmother..His grandmother said that it's his horse and the grandmother was really acting really like a horse..Despite of that his family is always there to take care of them although they know that their grandparents do not know them..I guess you should visit your father once n a while before it's too late...

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