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What has helped you the most with your fibromyalgia?  email this discussion to a friend?

myLot reputation of 96/100. OOHCUTE2340 (446)   ranked 97 out of 204 in fibromyalgia 6 years ago

I found if I fast regularly and don't let "uric acid" build up in my muscle and joints I do much better. Also keeping a regular bedtime/wake up time. When I get off a sleep pattern I have a wealth of problems physically. I got a sleep number bed 2 years ago and that has helped make a difference. What helps you?

 

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wordsmith (30) response was accepted on 1/11/2007.
denotes best response, click it to go to the best response.
tags:  fibromyalgia, health, acid reflux, disease, joints
 
1. wordsmith (30)   ranked 167 out of 204 in fibromyalgia   6 years ago

Lots of deep REM sleep, which is tough because I have sleep apnea. I also use a memory foam mattress pad, since I cannot afford a sleep number bed. Also, I try to get exercise, but I am careful not to over do it.

Eating right, exercising, and getting enough sleep are the best non-pharmacological remedies I have found.

How do you keep uric acid from building up in your body? Exercise?


myLot reputation of 96/100. OOHCUTE2340 (446)   ranked 97 out of 204 in fibromyalgia  6 years ago

I just did a sleep study and found i have sleep apnea too. We were blessed when mom passed so we got the sleep # bed. I agree that eating right, excersing and sleep are big factors in helping -- I do a juice fast when I start getting a lot of pain for about 7 days to flush uric acid and a ton of other toxins from my system and imagine that exercise helps with it too. I know when I was diagnosed with fibro = I did a major extended fast and it helped immensely -- caution though before fasting read up on it research and get a health provider to help you if you fast more then 7 days. :)

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2. bmax849 (59)   ranked 168 out of 204 in fibromyalgia   6 years ago

What has helped me most was eliminating caffeine from my diet in all forms. If I eat or drink anything with caffeine in it I immediately start to have muscle spasms. Also I take Arthrotec for the pain it is an NSAID available only by prescription.


myLot reputation of 96/100. OOHCUTE2340 (446)   ranked 97 out of 204 in fibromyalgia  6 years ago

I hadn't thought of that, I really only have 1-2 cups of coffee a day. I wonder if the caffeine interrupts the ability to get quality adequate sleep -- I know the sleep cycle is big for me. I have never heard of Arthrotec - I have been prescribed 800mg Ibuprofen 3x a day - but I stopped that because I don't think its good for my body in other ways.

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3. myLot reputation of 90/100. margieanneart (16724)   6 years ago

Nothing has helped me. But, then I don't know what to do about the condition. I take a pain pill when it is out of hand. What do you do for it? I cannot exercise, as I have a foot problem recently and cannot walk.


myLot reputation of 96/100. OOHCUTE2340 (446)   ranked 97 out of 204 in fibromyalgia  6 years ago

I wonder if doing some simple stretching would ease some of the pain and discomfort for you. I know for me it's important that I stay active, the times are really painful is when I begin to ache in every small joint like my fingers and such. I do know that since I have been using a c-pap machine for my sleep apnea - I am getting better rest and don't hurt so much --- proper rest and adequate sleep is important I think. I hope your foot problem is resolved soon.

Fibromyalgia Information Suffering From Fibromyalgia? Don't Wait. Get The Help You Need Now!  AlpineValleyClinic.com
 
4. myLot reputation of 85/100. bam001 (904)   ranked 16 out of 204 in fibromyalgia   6 years ago

I have a number of medications that I take daily for my fibromyalgia. Additionally, I try to stay warm (cold temperatures tend to make me hurt). Staying adequately hydrated seems to help too.

Do You Have Fibromyalgia? Top 5 Fibromyalgia Signs. What The Doctor Is Not Telling You!  MindfulHealthNow.com
 
5. mwhisler84 (9)   ranked 169 out of 204 in fibromyalgia   6 years ago

I have had Fibromyalgia for years before I was actually diganosed, showed first symptoms at the young age of 4 (i am now 22). I also have Chronic Fatigue Syndrome as well. I am still learning how to cope, i don't eat as much meat, haven't thought of kicking the caffeine habbit. I am starting to do some gentle exercises, and I take small doses of Effexor every day and Flexiril when I can't handle it anymore. Any other advice would be great.


myLot reputation of 96/100. OOHCUTE2340 (446)   ranked 97 out of 204 in fibromyalgia  6 years ago

You know I take effexor for my bi-polar disorder - I never thought that it might be helping with the fibro.

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6. myLot reputation of 97/100. babystar1 (3253)   6 years ago

My doctor told me that I have fibromyalgia about 10 years ago. And i really dont know what you feel like when you have it. I dont take anything for it. All i know at that time he said i have a mild case of it.Its been 10 years now and I dont even no for sure I have it or not.Can you tell me what you should feel like with fibromyalgia. I just no that my back is stiff a lot and i cant never get to sleep when I go to bed, I toss and turn all night long.


myLot reputation of 98/100. patgalca (6608)   ranked 1 out of 204 in fibromyalgia  6 years ago

Check patootie's post on fibromyalgia. She has listed every possible symptom. You probably have symptoms you didn't even know were related to fibromyalgia. It has been known as the irritable everything illness because it affects the central nervous system which affects, well, everything.

About Fibromyalgia What Causes Fibromyalgia, What it Looks Like, and How to Treat it.  RheumatologyToday.net
 
7. themoneyhunter (17)   ranked 170 out of 204 in fibromyalgia   6 years ago

My sister has gotten great results with a couple of products. One is OPC3 and the other is ORAC. Both are available at
www.jemo.unfranchise.com And she has a supplement routine she follows that took her from a daily pain level of 10 to a pain level of 2. She basically got her life back. She is more than willing to talk to people about what she did.

What is Fibromyalgia Connect With Others. Read About Symptoms, Diagnosis and Treatments.  FibroSupport.org
 
8. myLot reputation of 92/100. natrlvr2 (340)   ranked 41 out of 204 in fibromyalgia   6 years ago

Vicodin helps me.LOL! I have alot of other chronic pain ailments too,so I take a handful of medications. I have done all the therapy my insurance allows and nothing worked at all.I have learned that you have to get enough sleep and pace yourself.Also you need to stay active,no matter how small.And every day is different.


myLot reputation of 96/100. OOHCUTE2340 (446)   ranked 97 out of 204 in fibromyalgia  6 years ago

Oh I am so sorry that your insurance ran out, that is awful. May some of the suggestions here will help you out. :) best wishes.

Fibromyalgia Facts Learn About Fibromyalgia and Which Treatment Options Work Best.  RheumatologyResearch.net
 
9. myLot reputation of 91/100. webduck (196)   ranked 112 out of 204 in fibromyalgia   6 years ago

I have to agree. I drink fortified orange juice to help flush the uric acid out of my muscles, and it really does help. I don't have a sleep number bed, but I do have a 5 inch memory foam on my bed. That really does help too.


myLot reputation of 98/100. patgalca (6608)   ranked 1 out of 204 in fibromyalgia  6 years ago

Now you see, I can't drink citrus juice because of the acid. I have Acid Reflux (also common with fibromites). I do take Prevacid so I have my acid reflux under control but acidic foods of any time are not really good for you. You should be taking in more alkalides than acids.

Fibromyalgia Symptoms Learn the Common Symptoms of Fibromyalgia & New Ways to Manage Them  www.knowfibro.com
 
10. myLot reputation of 98/100. patgalca (6608)   ranked 1 out of 204 in fibromyalgia   6 years ago

What has helped my fibromyalgia is Mag-Citrate. It is a combination of Magnesium and Malic Acid. Magnesium itself aids in over 300 bodily functions. It is quite necessary for fibromites. I take three Mag-Citrate a day. Our town sold out of it once and I had to go without for about a week. I certainly noticed the increased pain when I didn't have it.

I have gone from taking 6-8 Tylenol 3's a day to 1-3 Tylenol 3's a day. Weight loss has something to do with that as I can now only take one at a time where I used to take two.

Exercise helps, pacing and knowing my limitations.


myLot reputation of 96/100. OOHCUTE2340 (446)   ranked 97 out of 204 in fibromyalgia  6 years ago

Wow, thanks for the information -- I have a few friends that have it too, now I can pass some new stuff on to them. Best wishes! :)

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