My Dr. said it spread to my liver now. But it's tiny and probably won't affect

@writersedge (22563)
United States
August 28, 2012 11:47pm CST
me for a long time. I had taken the summer off from chemo. I had basically no summer last year between all the chemos and a deconstruction and reconstruction operation. This year, they started the summer with a chemo that made me sick for 15 days straight. I was supposed to not be affected by the chemo much at all. I was supposed to go for a second chemo on day 8. I was too sick to do it. I told the Dr. that he said I could take a break and I did. July I took off and August. July I went from 1 spot in the lung to 3 with the one spot bigger. Now August it has spread to my liver and the three spots are bigger. But he said it's really, really small in the liver. If it didn't grow any more than the little spots there now or spread, I could live an entire lifetime with just that little bit. I have a lot of healthy liver. If it didn't grow any more in the lungs, I could live a lifetime just fine. So I said I would try again in Septermber. But if I get sick again, forget it. During the time I had off, I did Essiac tea, pau d'arco, and a probiotic. Obviously, they didn't do much. I was hoping they would stop or slow it down so I could say stuff this chemo. So I did try alternative medicine. But it's running around my body and having a great time. Blueberries didn't stop it from spreading like they're saying either. So we will see what will happen in September. Just thought you might want to know.
5 people like this
15 responses
@deazil (4730)
• United States
29 Aug 12
I am very sorry to hear how sick you are. Since I read your post I have been researching. I am a firm believer in natural medicine. I've gotten rid of my osteoarthritis and somewhat high blood sugar using only herbal supplements. Ive found a few links that I thought would help. I hope you don't mind. The first is www.livestrong.com/article/23403-chinese-herbs-cancer/ and www.raysahelian.com/lungdisease.html I have taken or am currently taking quite a few of the supplements in these articles, mainly for general health. The second web site is by Dr. Sahelian. He is one of the world's top experts on natural supplements and he's very well known in the US for his expertise. There are other very informative sites I came across but I didn't want to overwhelm you. When I first started researching natural products about 5 years ago there was so much info and so many things I felt I should be taking that I found it quite overwhelming. If you'd like I can do research for you if you're interested but not up to doing it yourself. I've gotten fairly good at it and since I lost my job (plant closing) I'm on the computer all day looking for a job and making a little money as well. So I guess I have plenty of time. I wish there was something I could say to you but no one can know how you feel unless they've been there. I wish I could help.
3 people like this
@writersedge (22563)
• United States
30 Aug 12
Thank you. I'll have to check those out. I've tried lots of things and no matter what I try, it still keeps coming. The problem seems to be that my body doesn't understand that the rogue cells should be eliminated. Please see the discusion below with Celtic Eagle. Thanks and take care.
• Kiryat Ata, Israel
29 Aug 12
I think we can be optimistic because there are many evidences on the internet that natural treatments and alternative treatments can heal cancer. Some faith will increase the chance for a cure. Let's just hope and be sure Writersedge will live for a long time and will suffer no pain and will get cured completely. What do you think ?
1 person likes this
@deazil (4730)
• United States
29 Aug 12
I think there is much hope for cures, but do not believe it will come directly from the medical profession. I research and find new things all the time. The power of nature is amazing. Hopefully writersedge will manage to keep a positive attitude and find laughter in life even in the face of such dreadful news.
2 people like this
@jazel_juan (15745)
• Philippines
29 Aug 12
oh wow. i really do not know what to say, especially to someone going through that. But you have my prayers my friend, i have seen people go through that and in the end..it was not how they want it to be. But i really hope that small part in liver won't spread. i really will pray for you
3 people like this
@writersedge (22563)
• United States
29 Aug 12
Thank you. I feel fine right now. It was a wonderful summer and I'm looking forward to a great fall, no matter what happens. I really appreicate the prayers and the well wishes. I think that's what has kept me sane so far.
1 person likes this
@writersedge (22563)
• United States
29 Aug 12
2 people like this
@jazel_juan (15745)
• Philippines
29 Aug 12
yes somehow knowing there are people who can support you helps us have that feeling that somehow we can go through everyday..no matter what we are facing.
1 person likes this
@GardenGerty (169585)
• United States
29 Aug 12
Thanks for the update and the perspective of things being tiny. I had heard essiac tea was really effective, but evidently not for you. I still watch for your posts and hope that something will kick in and do the trick for you.
@writersedge (22563)
• United States
5 Sep 12
Someone said that natural remedies run about 65%. I was only given a 60% chance with unnatural remedies. Like you said, it's such an individual disease. I wish like when I had pneumonia, I had gotten or I hope to get some kind of a sign.
@carmelanirel (20942)
• United States
29 Aug 12
Of course I want to know and thank you for sharing, I hope it doesn't get any bigger...So you are going to start chemo again in September?
• United States
30 Aug 12
I hope so too...
@writersedge (22563)
• United States
30 Aug 12
Yes, Gem Side a Bean is what it sounds like ( sounds like introvenus Jim Bean)! I hope it stays small, too.
1 person likes this
@GreenMoo (11833)
29 Aug 12
Thanks for keeping us updated. I do appreciate knowing, as I wonder from time to time how you are doing but don't want to intrude by asking. Best of luck for the next round of chemo next month. The natural remedies may appear not to be helping, but it's impossible to know really how much they've helped (how worse things could have been had you not been using them). In your shoes I'd be sticking with it on the basis that it can't hurt. I'm personally convinced that a raw and natural diet does help with diseases such as cancer, but I do appreciate that everyone's body reacts differently to their inputs and so much depends on where they are to start with.
2 people like this
@writersedge (22563)
• United States
29 Aug 12
Yeah ,the alternative might have done some slowing down, too. It's hard to say. I am having some luck with Pau D'arco. I'm trying to do an organic diet, but the price of organic is prohibative, so I'm trying to do selective. Like stuff that's really bad unless it's organic. That is the problem, so much is so individual. Yes, I prefer that I tell you when I'm ready. Thanks for respecting that. It means a lot to me.
1 person likes this
@writersedge (22563)
• United States
30 Aug 12
Pau D'arco is an immunity builder. I was not having any luck getting rid of ring worm (which isn't a worm, it's a fungus). The medicine for that wasn't helping. So I started taking Pau D'aro and it seems to be helping me grain some ground. I'm eating greeens. Trust me. The CSA (consumer supported agriculture) has greens every week.
@GreenMoo (11833)
29 Aug 12
I appreciate the problem of cost for organic produce. It's prohibitive for most people I think, and availability can also be an issue depending on where you are. I'm very thankful that I've the space, time and knowledge to supplement my own storecupboard from the garden. My understanding, from the very small amount of research that I've done myself, is that if you can only afford to eat one thing raw, to make it green. I've no idea what Pau D'arco is, so I'll head off and do some research.
2 people like this
@SomeCowgirl (32189)
• United States
29 Aug 12
Thank you for letting us know. I've known people who have had to go through chemo and it treated each one of them different it seems. I know some people refuse the chemo saying it just makes them worse. I know I try to go with the healthier possibilities at first (natural) with anything so I don't blame you for trying that route. Green Tea is one of the things that is said to help stop cancer from even forming, have you tried it? There is a wealth of knowledge online to help with finding alternatives, and I'm sure even a natural food / vitamin store would help immensely as well. If you went back the route of the chemo could you also drink Green Tea to help from getting so sick?
2 people like this
@writersedge (22563)
• United States
29 Aug 12
I've received 31 possible cancer stoppers like asparagus and the problem is, which will actually work for me and my cancer? There are so many types? Tea is a double-edged sword. It can cause stomach cancer in some people. Especially if they don't drink it with milk. I actually hate the taste of tea. The fact that I did Essiac tells you I was despirate.
2 people like this
@SomeCowgirl (32189)
• United States
29 Aug 12
That is a lot of treatments of any kind to go through! I've not heard that tea can cause this in people, but I suppose with anything there is a double edged sword. There are different ways to receive the chemo, have you tried each way? I've heard that for some it was taken better (without much sickness) differently for different people.
2 people like this
@writersedge (22563)
• United States
30 Aug 12
I have a port and that is supposed to be the best way to receive it.
@ElicBxn (64176)
• United States
30 Aug 12
Oh, dear, spreading cancer isn't good, no matter how small. Take care of yourself and try to do what the doctor's say... I know, sometimes they seem like fools, but since the alternative isn't working either...
@ElicBxn (64176)
• United States
5 Sep 12
Right now, hun, I'd trade you for that blind roommate! She's being NO help at all!
@writersedge (22563)
• United States
5 Sep 12
I'm trying to but my friends in real life aren't helping. Eat well. They bring me on a picnic and refuse to let me bring food. What's the food at the picnic? White bread, ham. Thank good ness there was swiss cheese so I could have something low salt. Another person brought berreies. They wanted me to sit and doing nothing. Then I went canoeing. People were yelling at me to not paddle. I told them, now wait just a cotton picken second. I was told to do what I feel up to doing. Then rest. So we paddle to an island and I go to sleep . Then we paddle back. My Mylot friends aren't expecting me to be in a Nursing HOme. That picnic. Sit all day. Then the canoe trip, hey there was no way I was sitting all day. I ended up having a great day for the canoe trip. I had a terrible day for the picnic. I refused to eat the ham on the picnic. The salt expands my arteries and veins, I have to drink a gallon of water and urinate all the time to keep from feeling like my mouth is parched in the desert. She says it's lower in salt. That doesn't help much. Why wouldn't they let me bring my own food? Because I've been fighting cancer for 14 months, so I must be an invalid. My friends and family are getting on my nerves. I'm going to have to get out of here. They're trying to help is killing me.
1 person likes this
@writersedge (22563)
• United States
5 Sep 12
I'd trade you, too. At least she'd let me cook something and not think I was an invalid.
1 person likes this
@celticeagle (190011)
• Boise, Idaho
29 Aug 12
I am sorry to hear that it is spreading. Ofcourse I want to know. Have done any research on super nutrients. COQ10 for instance? These others that you said you had tried are lightweights. Have you tried the four mushrooms that are said to do so much for cancers? They are: Shitake(Lentinus edodes), Maitake(Grifola frondosa), Golden Needle(Flammulina velutipes), Agaricus Blazei(Agaricus blazei murrill), and Reishi Mushroom(Ganoderma lucidum). Four articles about them: http://herbs-herbal-supplements.knoji.com/the-shitake-mushroom/ http://herbs-herbal-supplements.knoji.com/ganoderma-mushrooms/ http://herbs-herbal-supplements.knoji.com/agaricus-blazeiagaricus-blazei-murrill-mushroom/ http://herbs-herbal-supplements.knoji.com/the-golden-needleflammulina-velutipes-mushroom/
@writersedge (22563)
• United States
29 Aug 12
The 4 mushrooms are great for white blood cells. My white blood cell count is wonderful. Thank you. The problem is that my white blood cells don't seem to recognize the invaders as anything but more cells like I already have. So yes, we've had multiple discussions about mushrooms and I've recommended them for everyone who has cancer who asks me. Their white blood cell counts tend to go up, except those with bone marrow problems because they don't seem to have any way to make white blood cells. The probiotic that I had, Protease Plus is supposed to strip the protein off the outside of the molecule of cancer so that my body can recognize it as cancer and kill it. It's not a light weight. COQ10 and Hawthorn I tried before for high blood pressure. It made my pressure worse. My blood pressure with all of this is already high enough to kill me. Pau D'arco, while not doing much with my cancer, is helping me have immunity against things. My husband was sick and so far (knock on wood) I'm not getting what he had. About once a day it tries to take hold, but I wack it with Pau D'arco and it goes away.
2 people like this
@celticeagle (190011)
• Boise, Idaho
30 Aug 12
COQ10 is for the cells, helps them be healthy. THey don't have anything to do with blood pressure and never effected mine when I took it. I heard of people having cancers of all types, taking the COQ10 and being in remission now. Another good immunity helper is Lysine. One of the ameno acids. Protease Plus sounds like good stuff. Don't forget about these super nutrients: Flaxseed oil (prostrate) Acai berrie(ah-si-ee) anti-oxidant higher than others Grape seed extract(Resveratrol) Curcumin Noni (bioinnovations.com)a juice high in anti-oxidants.
@writersedge (22563)
• United States
30 Aug 12
I've heard ot people taking 31 different things and being free of cancer now. If all this stuff worked, why is anyone doing chemo? Because like me, when they try this other stuff, it works for something but not for the cancer. Read Greenmoo about Pau D'arco and like I said about the mushrooms and white blood cells. You probably don't have high blood pressure and even if you did, it's probably not like mine. I'm not risking it. I often have a reverse reaction to things. Like sleeping pills keep me wide awake all night and hyper. So I have to go with what my body tells me. I'm putting groud flax seed in every meal with stuff that I eat. So far it's helping my eyes feel better and flax seed is for eyes according to my eye Dr. who is very into flax everything for eyes. Dr. OZ show had curcumin. I was taking tumeric that has it in, but then I heard the huge doses I'm surrposed to take on that show and I'll have to buy supplements because the amount is huge like an entire bottle worth of tumeric in one pill. I've heard that Lysine is good for the heart, too. Yes, Protease Plus is good stuff in theory. If it worked I'd be without cancer now. Grape seed, I should have never gotten cancer. My Mother used to yell at me all the time for eating them. I still do. I can only buy a couple things at a time. I have medical bills and our taxes are coming up. School tax here is September and Land Tax is January. Thanks and take care.
1 person likes this
• United States
29 Aug 12
Have you tried turmeric and garlic? Research suggests that the curcumin in turmeric may help treat cancer. Research also has shown garlic to have anti-cancer properties; half a clove of raw or 4 1/2 cloves of cooked is what has been indicated as being beneficial. There's no guarantee that adding these to your diet in high quantities will stop it, but there is no risk of harm in doing so. Eating the healthiest diet possible, loaded with foods, herbs and spices that have research showing that they are proven cancer-fighters is a good thing. Taken in conjunction with another round of chemo, it will hopefully defeat the cancer. Hopefully, you will make it through the chemo this time without getting as sick as you did before.
1 person likes this
@writersedge (22563)
• United States
5 Sep 12
Yes, I've tried tumeric and garlick. Do you know how much curcumin they said you need? I was watching Dr. Oz and the only way you could get that much is in a pill. Everything I've read says that cooked garlic negates it. I've also read that some people with ulcers have problems with it. I hope all the same things as you do. Thank you. Especially for the words of encouragment.
@writersedge (22563)
• United States
6 Sep 12
That's weird because I know lots of people that onions, garlic, and tea sets their stomack into over producing acid. Not all ulcers are H. pylori. Good research on the mg/day on the curcumin. After I finish with my bills, I 'll see if I can afford a small bottle to start. School tax right now. Thanks and you're wonderful to research for me. Take care.
• United States
5 Sep 12
From what I am seeing, it looks like the dose would be around 3,000-3,600 mg/day. That would definitely have to come in large part in capsule form. Studies have shown that people can tolerate up to 8,000 mg/day without any ill effect. Garlic is one of the foods that is actually said to inhibit the growth of H. pylori, so it is actually good for ulcers. University of Maryland Medical School (http://www.umm.edu/altmed/articles/peptic-ulcer-000125.htm) says, "Foods containing flavonoids, like apples, celery, cranberries (including cranberry juice), onions, garlic, and tea may inhibit the growth of H. pylori."
@savypat (20216)
• United States
29 Aug 12
Do not give up one your alternative medicine. by continuing these your are giving your body strength to fight with. Natural things work more slowly and it's oftenvery hard to tell how they are working. Maybe, if you hadn't tried these your illness could have spread much faster. I don't want to scare you but I do know that lung cancers the spread beyond the lung are very dangerous, so do not give up on the treatments unless you just can't stand them. The good news is that your liver is the one organ in the body that can rebuild it's self. Blessing snd prayers are sent to you.
@writersedge (22563)
• United States
30 Aug 12
I have bladder cancer that spread to my lung, my heart sack, and now my liver. It's not lung cancer. They took my bladder out, but it was already in my lymphodes. I don't think you can scare me any more than the Drs. Well I can't afford slow moving medicine. The cancer if fast moving. In 6 weeks without treatment, it's all through most people. I have gone 8 weeks and about to go three more before I start up again. So it may be slowing it down, but it certainly isn't curing it. I will keep trying natural remedies, but opertions - 3, chemos, multiple kinds and multiple times, natural remedies, all kinds, and nothing is stopping it. Thanks and take care.
@marguicha (230365)
• Chile
29 Aug 12
Fornunatly my body acceptedchemo a lot better than many other people do. I was given R-CHOP for a lymphoma that has no cue, but is on remission right now thanks to it. I also followed a very strict diet given to me by the doctor, but you never know how much that helped. I have heard about apricot seeds and vitamin 17. You could check that online. Now I`m having a follow up with monoclonal antibodies every 3 months. Check that too. Take care.
1 person likes this
@writersedge (22563)
• United States
30 Aug 12
Well I've already got 31 suggestions to try plus a half dozen more above. We get no help diet wise from Drs here and conflicting info on the internet. Glad you're in remission. That's wonderful! I had 4 chemos 4xs and did OK with it. It didn't kill the cancer, it just shrunk it. I had one chemo and that made me tired. then the two that made me ill. I'd been fighting for 14 months with operations and chemos. It just keeps on coming. Glad yours worked. Take care.
@marguicha (230365)
• Chile
20 Sep 12
I´m very sorry to hear that you have had such a bad time with chemo. I think that it depends on the kind of cancer you have and the type of chemo you get. I have not had terrible side effects with chemo until now ( I have a lymphoma and got R-CHOP chemo). I don´t have much trust in natural things although I do think that your health in general could be better if you eat well. Luck!!!
1 person likes this
@writersedge (22563)
• United States
22 Sep 12
I think unnatural things are what's making us have more cancer now. Some blood pressure meds create cancer, they're finding. Many meds they're finding the side effects are worse than what they're curing. Sorry to hear your current chemo is bothering you. Someone said spirolina helps with side-effects of chem. I'm allergic to spirolina, so you can't prove it by me!
@NailTech (6874)
• United States
29 Aug 12
Hi and thanks for checking in with us. I have known you had some health problems going on but not the extent as I have a bad memory problem at times. I think it might not be as much what you're eating such as the blueberries and other things that are supposed to help But are you also staying away from sugar, white flour, chocolate and dairy? Those things are what makes cancer cells most thrive. I just want to make sure that if you do stay away from those things you do get the vitamins you're supposed to get from them in some other way in a healthier form, such as the calcium, etc too. I'm just hoping and praying things won't get worse for you. Cancer is not a good thing to go through. My dad has had it twice now and I'm fearing he has it again but still has to wait to get checked out til mid Sept. He has lost too much weight.
1 person likes this
@writersedge (22563)
• United States
30 Aug 12
I stayed away from all that for one month and the cancer tripled. Chocolate, depends on who you listen to. Some say it stops cancer or prevents it and some say it doesn't. Besides, there's sugar in blueberries and everything. I was told not to even eat fruit or wheat at all. I had to take vitamin c and potassium to keep from dying on my no sugar diet that I was given. All it did was constipate the daylights out of me. I'm back to dairy, that's organic. Lactose in dairy is sugar. But if your read about your body, it breaks everything down to the smallest molecules so it can get into the cells and that's sugar. Even if you eat meat, it's broken down to sugar. I don't tend to loose much wait, knock on wood, so far. Take care.
@writersedge (22563)
• United States
5 Sep 12
The cancer is living on my iron cells. I can't quit eating stuff with iron. I've seen it. The blood is dark going into the cancer cellls and lighter coming out .I'm anemic a lot. The chemo makes me anemic a lot, too. I hope your Dad doesn't have it again. If he does, I hope he's able to get over it. Peace and love, thanks for trying to help.
@vipline (134)
• Greece
29 Aug 12
Well the good news is that you inform us! Now i just wanna say to you that you need to have will and mental power to really succeed!I wanna wish goodluck to you and i bet that this tiny part will go away! Cheers!
1 person likes this
@writersedge (22563)
• United States
5 Sep 12
I've been fighting for 14 months and I've been trying to be consistant in willpower. It's not that easy, but I'm trying. Thanks and take care.
@Hatley (163772)
• Garden Grove, California
30 Aug 12
hi writersedge I hope it never gets any bigger and that you doctor is really right.so hope September brings some really great news.'You are handling this remarkably well too.,I am hoping that this time chemo will not really make you ill again.Thanks for telling us and I am going to send prayers that all those spots to suddenly shrink and you are well.my lot prayers really do have power if others join me here and now.
@writersedge (22563)
• United States
5 Sep 12
Wonderful prayers. Wonderful words of hope and courage. Thanks and take care.