Joining a Long-Term Dementia Study
@DeborahDiane (40849)
Laguna Woods, California
March 10, 2018 2:13pm CST
As part of the brain health class I am taking, a researcher from the University of California in Irvine MIND program encouraged us to sign up for a long-term study on dementia.
UCI MIND is one of 30 Alzheimer's Research Projects across the United States which are funded by the National Institute on Aging, part of the National Institutes of Health. This means that millions of other people in the United States may also live near an Alzheimer's Research Project and be eligible to get annual cognitive assessments, brain scans and blood tests which the researchers will use to see if they can find markers for Alzheimer's and other forms of dementia.
I filled in the online registration form and will be interested to see if I get chosen. They asked a lot of questions about family background (my mother died of Alzheimer's), my health, and my willingness to take experimental medications and get brain scans.
I said yes to the scans, but no to the medications.
They also asked if I was willing to have my brain autopsied after my death, looking for signs of the plaques and tangles they think cause Alzheimer's Disease. I said no to that, but I might change my mind in the future.
At the top of this page, I posted a photo of the map of where the Alzheimer's Research Centers are located. This map came from the National Institutes of Health website, so you can see if you might live near one of the Research Centers and find out if you qualify for a study, too.
I think the information will be interesting and could help other people, someday.
8 people like this
7 responses
@Blondie2222 (28610)
• United States
10 Mar 18
Yes I live close to rochester and here about this often. Good luck to you and I hope you get picked. I for one would not do it as i have alot of medical issues already and take enough medications.
2 people like this
@DeborahDiane (40849)
• Laguna Woods, California
10 Mar 18
@Blondie2222 - I understand. The idea of taking medications make me hesitant, too.
2 people like this
@Blondie2222 (28610)
• United States
11 Mar 18
@DeborahDiane Yeah, i think it would to anyone.
1 person likes this
@changjiangzhibin89 (17243)
• China
11 Mar 18
If it were me,I would also refuse to take experimental medications that might do harm to my health.
2 people like this
@DeborahDiane (40849)
• Laguna Woods, California
11 Mar 18
I agree. There are some aspects of the study which I rejected. It will be interesting to see if they still ask me to participate.
1 person likes this
@DeborahDiane (40849)
• Laguna Woods, California
10 Mar 18
@jstory07 - I agree. I think they could make a real difference to a lot of people.
1 person likes this
@DeborahDiane (40849)
• Laguna Woods, California
11 Mar 18
@sallypup - Thank you. Let's see what happens with the study. I'm curious about how it goes.
1 person likes this
@Starmaiden (9308)
• Canada
10 Mar 18
Unless I was already diagnosed with early signs of dementia I would not participate. Being subjected to radiation unnecessarily could create other health problems or even contribute to the cause of dementia or Alzheimer's. They shouldn't offer medication to anyone who may not need it.
2 people like this
@DeborahDiane (40849)
• Laguna Woods, California
10 Mar 18
@Starmaiden - You have made good points. I think I will ask a lot of questions before I get too involved in the research study, but I want to help if I can, without injuring myself.
1 person likes this
@dnatureofdtrain (5273)
• Janesville, Wisconsin
11 Mar 18
Wow, glad to see these studies i would say no though... but i know some that would say yes if they could to help many. They are making many break throughts with new treatmens to remove plaguesand reversing dimentia i hope this reaches mainstream too when they do it. i have an old relative with dimentia in my family and it just is unreal the difference day to day.. i keep all who have it in my healing thoughts and prayers.
1 person likes this
@DeborahDiane (40849)
• Laguna Woods, California
11 Mar 18
Yes, I understand. My mother had dementia and it was hard to watch her decline. She was so confused, it was very sad. I have concerns about the study, but we'll see how it goes.
1 person likes this









