I have not shared this
June 10, 2019 2:27pm CST
I have not shared this, but it is on my mind. My first husband died of ALS, also known as Lou Gehrig's disease. Their maternal grandfather also did. Because of this family pattern, there is a potential for either of my kids, or the other brothers to develop the same disease. My youngest brother-in-law , his brother, passed away from the disease on Friday. They will bury him this week, on what would have been his sixtieth birthday.
16 people like this
• United Kingdom
That is sad, I am sorry to hear that. I can imagine it will be weighing on your mind but try not to let it get you down because there is nothing you can change, so no benefit in worrying. Everyone just has to make the best of the hand life deals them and cope with whatever problems come up, if and when they do.
• United States
@BarBaraPrz No, not that I have heard. My hubby was given quite a bit of vitamin therapy. At the time they were testing gabapentin for pain issues and it is now on the market. EJ did not seem to lose ground as much or as quickly as Larry did, but I am not sure if he actually had some treatments or not.
• United States
I do not think they have determined it to have a specific gene. Rather than call it "hereditary": the doctors call it "familial" but I do not know the difference. Neurologists say that it also occurs sporadically in the general population. Interesting facts are that there is a Pacific Island where it has been very high incidence ever since the area was used for bombing practice, and also ALS occurs twice as often in veterans of Desert Storm than in the general population. Over all it is diagnosed with the same frequency as MS, but average life expectancy after diagnosis is three years. Steven Hawking was totally beyond that, of course. My husband lived one year after being diagnosed, and that is about how long EJ lived after diagnosis.