I have not shared this

@GardenGerty (111959)
United States
June 10, 2019 2:27pm CST
I have not shared this, but it is on my mind. My first husband died of ALS, also known as Lou Gehrig's disease. Their maternal grandfather also did. Because of this family pattern, there is a potential for either of my kids, or the other brothers to develop the same disease. My youngest brother-in-law , his brother, passed away from the disease on Friday. They will bury him this week, on what would have been his sixtieth birthday.
Elmer James “EJ” Hagar, Jr., 59, of Mustang, OK passed away on June 8, 2019. Born on June 12, 1959 to Viola Mae and Elmer James Hagar of Okarche, OK, EJ married Brenda Millsap of Spencer, OK
16 people like this
15 responses
@jstory07 (79505)
• Roseburg, Oregon
10 Jun
I hope your children do not get ALS.
3 people like this
@GardenGerty (111959)
• United States
11 Jun
We do hang on to hope. I cannot remember if they said it was 50% or 25% chance.
@DianneN (120559)
• United States
10 Jun
I’m so sorry to hear this. Hopefully a cure will be found soon.
2 people like this
@GardenGerty (111959)
• United States
11 Jun
It is one of those many puzzles we see in science.
2 people like this
@DianneN (120559)
• United States
11 Jun
2 people like this
@GardenGerty (111959)
• United States
12 Jun
1 person likes this
@Fleura (9693)
• United Kingdom
10 Jun
That is sad, I am sorry to hear that. I can imagine it will be weighing on your mind but try not to let it get you down because there is nothing you can change, so no benefit in worrying. Everyone just has to make the best of the hand life deals them and cope with whatever problems come up, if and when they do.
2 people like this
@GardenGerty (111959)
• United States
11 Jun
They managed well after his diagnosis and they made lots of good memories. They were married nearly forty years.
1 person likes this
@Fleura (9693)
• United Kingdom
11 Jun
@GardenGerty Wow that's impressive given that he was only 59! I'm glad they had many good times to remember. It's true that we should all live each day to the full because you never know what the next day will bring.
@GardenGerty (111959)
• United States
12 Jun
@Fleura Yes, it is.
1 person likes this
@BarBaraPrz (23219)
• St. Catharines, Ontario
10 Jun
Sorry for your loss. How old are your children?
1 person likes this
@BarBaraPrz (23219)
• St. Catharines, Ontario
11 Jun
@GardenGerty So the clock is ticking... Has there been any new developments in research for, if not a cure, at least slowing down the progression?
1 person likes this
@GardenGerty (111959)
• United States
12 Jun
@BarBaraPrz No, not that I have heard. My hubby was given quite a bit of vitamin therapy. At the time they were testing gabapentin for pain issues and it is now on the market. EJ did not seem to lose ground as much or as quickly as Larry did, but I am not sure if he actually had some treatments or not.
1 person likes this
@jerzgirl (8101)
• Gloucester City, New Jersey
20 Jun
Ugly disease. Like a time bomb waiting for its opportunity. Sorry for your loss.
1 person likes this
@LadyDuck (224927)
• Switzerland
11 Jun
I am so sorry for this sad news. I hope your children will not have this problem.
1 person likes this
@GardenGerty (111959)
• United States
12 Jun
There is a good chance it will skip them, or it could. Some people randomly get it, with no inheritable tendency. It actually is diagnosed as often as MS is diagnosed but it progresses much more quickly.
1 person likes this
@LadyDuck (224927)
• Switzerland
12 Jun
@GardenGerty Let's hope for the best for your children.
• United States
11 Jun
how awful to carry 'round that fear, hon. my deepest condolences'n the loss 'f this sweet fella.
1 person likes this
@GardenGerty (111959)
• United States
12 Jun
He was a good kid, I got to know him from the time he was eleven or twelve years old.
1 person likes this
• United States
12 Jun
@BelleStarr (45175)
• United States
11 Jun
I didn't realize that ALS is hereditary, that is surely scary for your kids. Is there a test they can do or is it better not to know you have the gene for it?
1 person likes this
@GardenGerty (111959)
• United States
12 Jun
I do not think they have determined it to have a specific gene. Rather than call it "hereditary": the doctors call it "familial" but I do not know the difference. Neurologists say that it also occurs sporadically in the general population. Interesting facts are that there is a Pacific Island where it has been very high incidence ever since the area was used for bombing practice, and also ALS occurs twice as often in veterans of Desert Storm than in the general population. Over all it is diagnosed with the same frequency as MS, but average life expectancy after diagnosis is three years. Steven Hawking was totally beyond that, of course. My husband lived one year after being diagnosed, and that is about how long EJ lived after diagnosis.
1 person likes this
@BelleStarr (45175)
• United States
13 Jun
@GardenGerty It does seem to have gotten much more common in the last 10 or 20 years.
@didinedhia (7584)
• Algeria
10 Jun
Rest in peace
1 person likes this
@GardenGerty (111959)
• United States
11 Jun
Thank you.
1 person likes this
• Algeria
11 Jun
@GardenGerty you r welcome
1 person likes this
@spiderdust (8187)
• San Jose, California
17 Jun
I'm sorry about your loss. I now understand your last post a little better.
1 person likes this
@GardenGerty (111959)
• United States
17 Jun
I think with many posts there is always a huge back story. Thanks.
1 person likes this
@Courtlynn (61609)
• United States
12 Jun
This is all so sad. Im so sorry
1 person likes this
@GardenGerty (111959)
• United States
12 Jun
Thank you @Courtlynn . It is sad, but they at least knew that it was a possibility when seeking a diagnosis.They knew what to ask.
1 person likes this
@allknowing (83095)
• India
11 Jun
That indeed is a worrying thought
1 person likes this
@GardenGerty (111959)
• United States
12 Jun
It can be. As my daughter says, she will take what God gives her, though.
1 person likes this
@wolfgirl569 (16318)
• Marion, Ohio
10 Jun
So sorry.
1 person likes this
@GardenGerty (111959)
• United States
11 Jun
Thank you.
1 person likes this
@1creekgirl (16350)
• United States
10 Jun
I'm so sorry, what a horrible disease for you and your family to cope with. I can't imagine the heartache.
1 person likes this
@GardenGerty (111959)
• United States
11 Jun
We only hope that they begin to find treatments.
1 person likes this
@Corbin5 (146193)
• United States
10 Jun
I am so sorry for the loss of your brother-in-law. It is such a worry when a deadly disease impacts future generations.
1 person likes this
@GardenGerty (111959)
• United States
11 Jun
The neurologist we saw commented that we have a percentage to look at but that it also occurs spontaneously and sporadically in the general population and people do not even know what to look for.
1 person likes this