Hair today....Gone Tommorrow!

United States
June 3, 2008 10:48am CST
Some of you may have been noticing a decrease in my comments on your discussions and I apologize. I'm not dead just getting myself ready to embark on the insanity I call my summer. My big 3-0 birthday is fast approaching and then I have a dozen other things to get ready for over the next 3 months. But all of this has taken a back burner to my oldest daughters major problem at the moment and I am looking for some guidance. Recently, I'd say in the past 4-5 weeks, I began noticing my daughter was losing major amounts of hair when she showered. First thing I did was change her shampoo. The results weren't great. In fact she now has 2 tennis ball sized bald spots on the top of her head. I took her to the doctor and they tested her for diabetes and for a thyroid disorder both of which came back normal so I took her to a dermatologist. My 12 year old is suffering from Alopecia Areata. For those of you lucky enough to not know what that is...basically her immune system is attacking her hair follicals thus making her hair fall out and stopping more from growing. There is a 15% chance that all of her hair will fall out and never grow back. Also if it does grow back it could grow back pure white. Treatment. Either she massages this solution into her head every night or she gets the solution directly injected into her hair follicals. She is traumatized by her hair loss but not enough to want to endure the "pain" of needles so she opted for the solution. I have gotten bandannas for her and a baseball cap and just last night we say down and looked at wigs for her because we both understand that this condition is going to get worse before it ever thinks of getting better. I've done all I could to make her feel better about this, short of shaving my own head which I just can't do especially with a wedding coming up. Do you have any suggestions on how I can make her feel better? What would you do for your own preteen daughter if this happened to her?
1 person likes this
7 responses
@Hatley (164506)
• Garden Grove, California
4 Jun 08
I would do just what you have been doing, and also tell her that you love her no matter what, and this is not the end of her life. she will win out and get most of her hair back in time. a wig is a great idea too. and if there are any solutions to her problems keep an eye out on the internet for more info about Alopecia being sure of course its a valid site.good luck and God bless.
1 person likes this
@mummymo (23707)
3 Jun 08
Oh cyn your poor baby! I know this is a terrible shock for any one but for a 12 year old girl it is even worse as she is at an age where she will really be taking her appearance seriously and her self esteem is all wrapped up in how she looks and hair is an exceptionally big part of that! It sounds as though you are doing everything you can. I so wish I could do more to help - I think the hair pieces are a fantastic idea - I have a brother in law who used to have a business in fitting and styling wigs and hairpieces so that they looked very natural but that is a very expensive business - I guess I am lucky as if my daughter was in that situation I know he would do anything he could for her. I was just wondering if this has anything to do with hormone changes as she is just at that age where things are starting to go haywire hormone wise? My bil is very hard to get a hold of at the moment but if I can get him and he can tell me anything I will let you know! Hugs to youxxxxx
@mummymo (23707)
4 Jun 08
What fantastic practical advice Mooch! I do hope that there is something that can be done! xxx
@theprogamer (10539)
• United States
7 Jun 08
...Hmm... Its 2 tennis ball sized spots on the top of the head? That almost certainly means its Alopecia Areata multilocularis. Its happening in more than one place, but hopefully not permanent. Yes there is a chance the hair could grow back pure white, but about half of the cases the hair grows back naturally. If the hair loss has been going on for months then the chance of regrowth diminishes. http://www.medicinenet.com/alopecia_areata Minoxidil/Rogaine might be an option for countering this. Someone else mentioned HSN-W... to help with this I'll include a few online vendors by lower price as well as site scrutiny (Nature'sCart/natrcart.com) - $11.25 http://www.natrcart.com/index.asp?PageAction=VIEWPROD&ProdID=175 (H4B sales/h4bsales.com) - $13.00 http://www.h4bsales.com/935-4.html (Blessed Nutrition) - $15.95 http://www.blessednutrition.com/ns933-2.html On the nutritional side, add more vitamin A, C and E to the diet along with biotin(but this shouldn't be much of an issue). Carrots, Oranges, Eggs, Rice, Green Vegetables and Whole Grains can help on this end. A good vitamin supplement is an option/addition to this as well. There is also a possiblity of stress causing the situation or a least playing a part in it. Even for me its a stretch to fully acknowledge this with someone this young, but its still a possibility. Cyni, this also comes to mind too, its possible other autoimmune diseases could occur. Please be aware and careful of this. Suggestions on what to do to make your daughter feel better? Take two trips to a local fun depot (mall,arcade,family center), One hot cup of tea, One hot bath, and call this doctor in ze morning. But so far you are well on the right track. Keep reassuring her too. Its still possible the hair will come back. Make sure to help your eldest relax a bit, there might be something else that is stressing her a bit... but proceed at your discretion of course. And finally what if this happened to my daughter... it'd be tough to accomplish but I'd be doing everything in my power to make her feel better and invest in options to correct the physical problem. If things did turn out for the worse (complete Alopecia) I'd still do what I can to reassure and comfort her. There is also the trumph card that women are still attractive even bald. One example is Persis Khambatta http://en.wikipedia.org/wiki/Persis_Khambatta
@bellaofchaos (11550)
• United States
7 Jun 08
Hmmm a while back you said that if you were in pain she was happy LOL!! but that isn't something that you can do everyday. Maybe help her find a group of people that also have this problem that they all can get together and talk over thier feeling or just hang out with eachothers company so that she nows that she is not alone. If my daughter came down with this I would do what ever I could stop short of shaving my head. LOL!!I think you're doing all you can hun. This isn't something that is going to be easy and you know that just be there for her that is all you can do.
@22angel22 (451)
• United States
4 Jun 08
I feel like my soon to be niece has this problem. Her family is full of people who have the best hair I have ever seen, just full and thick and grows super fast. She is 3 and has hair always falling out and breaking. She may not have the same condition, but I did find something that helped her start growing hair. Its called H.N.S.-W It is all natural and it just stimulates your hair and helps it grow. My father has also been using this. He is a leukemia patient and has had 3 rounds of chemo which havent done anything other than make him lose his hair. This stuff has helped him have new hair growth and its bringing back his self confidence. If you're not sure if you want to try it, its all natural so it couldn't hurt. I'd call around to your local natural food/health stores to find it. Its from a brand name call pure herbs. I'm extremely sorry for your daughter. I couldnt even imagine this heppening to me. Like other people have said, get her mind off of it. Try starting her in a new activity. Something that will give her confidence. Anything that involves self defence I feel like would help. Or swimming. The only thing I don't suggest is pulling what hair she has up or putting any heat to it. This can be very damaging to hair and could make the hair she has break and fall out.
@laydee (12814)
• Philippines
4 Jun 08
I could really relate. I am 28 years old and I have thinning hair. People do take notice especially if my hair is wet. And it's really taking a large toll to my self-esteem. But I can't do anything about it. It comes along my hormonal imbalance over the years. But I've come to deal with it. It's tough but it can't kill. Try to find the root cause. They say this comes when a person is stressed. Try to help by doing exercise with her. Plus, make her hair longer so that it can cover the bald spots. Try to tie it up so that it won't be noticed that much. Good luck!
@skinnychick (6907)
• United States
3 Jun 08
Listen to me hard....I have this! I just got it awhile ago. I was losing my hair on the back of my head, luckily it wasn't that noticeable. For 6 months, I got a bunch of shots of something, they thought they were going to treat me for a year but it was only 6 months- shots every 2 weeks in the head. I know it doesn't sound pleasant but it doesn't really hurt that much at first. Then you get used to it. Anyway, while that was going on I started to use Jason Naturals Lavender Shampoo at the advice of my derm. My hair stopped falling out. If it starts again I have to go back for more shots but I have been lucky. Just keep sulfates off of her head, they make the problem worse and the Jason shampoo doesn't have any in it. I'm not saying it will work but it can't hurt. Good luck and let me know if you decide to try it. Hugsssssssssssssssssssssssssssssss!