May have been a wrong diagnosis

I am so sorry to hear about your husband sometimes these doctors are determined to find something to blame a disease on it must be the diet ,it must be the lifestyle,they don't look beyond the end of their noses.May be it is just bad luck eh.Sometimes no matter how you live your life it still happens anyway,we had a man a few years back did not smoke,did not drink and exercised everyday fit as fiddle.ran upstairs one day and did not make it to the top,heart attack,I stick with the attitude do what you want within reason and live your life how you want to,because in the end what difference does it make.I just send my love to you and hope when the end comes you have enough support and he has a peaceful end.God Bless.

My wife had dealt with pain since her childhood. The doctors ran all kinds of tests and she went through several surgeries and none of them worked. Then when we received a diagnosis on our daughter about a brain disorder we researched it more and found out that my wife had it as well. So 2 years ago she was able to have the surgery to help calm the symptoms but by now there was a lot of nerve damage that can only be healed by God Himself (which is what we expect). Sorry that you and your husband have to go through this as well. I will be praying for you both. Pastor G

DOnt know why but even these so called specialists make BIG time mistakes. and give the wrong treatment to the wrong things. Did you other Doctor not get MRIs and al thoses test done on yuor hubby with out just guessing about it. That makes me so mad when they dont go into depth when sopmeone comes ill.

It seems to be quite often these days, unfortunately. My mom is trying to have back surgery and they had her scheduled for her implant. They said she was a test patient though and the insurance cancelled it. She has waited for 11 months to have this procedure doen and now she has to be scheduled again because they did not have her scheduled as a patient to needs medical treatment.

I worked for many years with a woman who was diagnoised with MS. The doctor had her on medication for MS for many years. She had a drivers licence and was able to work for years although you could see it in her walk that something just wasn't quite right. Eventually she was vertually unable to get around she passed out in her bathroom and her young grandson was living with her and when he couldn't get her up he ran next door for help. From there she was hospitalized and things happened fast, she was unable to hold her bladder or even walk. After many hours of testing the real problem was discovered. She did not have MS at all. For many years she had a non cancerious brain tumor and it grew so large finally that this is what happened. They operated removing the tumor which brought on a stroke. She lost her drivers licence of course and she can not walk at all, but yet she lives in an idepentant appartment living appartment building and she has a power scooter she travels all over the place in. She goes to her doctors appointments, to the mall and goodness knows where all on her scooter. She appears happy. Good luck to your husband with his health issues and May God Bless You Both!!!

not only wrong diagnosis...but sometimes doctors who have to make money rather than satisfying the patients...purposely go the wrong way...i was myself told wrong things..though the doctor knows exactly what it was...there is one famous surgeon in my city...but i didnt knew that he is after money so much...i went to him to show a small lump formed in my neck...which was due to Thyroid (low secretion of iodine) and he told me that it can be cancer and need to be taken out and sent for Biopsy, or it can be fatal...i asked him many times that is there any way by which i can know from outside ..without getting it cut, whether its cancereous or not...but he didnt tell me the proper way..he got all the tests done and i was about to be operated the next day...the tests costs me about 5,000/- INR and the surgery he told would cost about 15,000.....at night we were thinking about all the situation..and my hubby told me to meet some other doctor...i went next day..and the other kind lady...told me to get FNAC done...whcih detected that it was harmless.....i am not so beauty concious that for just a small lump...i will spend 15,000....i am absolutelt normal now..and my 15,000...also saved

Oh, my..I think it is in everyones best interest to get second and maybe even third opinions so that mistakes like that aren't made..I am sorry to hear that it can be something totally different then what they thought..seems it is more scarier thinking it is ALS or Lou Gehrig's Disease then a stroke. Well I do hope that things gets fixed and someone will know what is what.

I am so sorry that you had the wrong diagnosis, but you cannot dwell on that now. You have to do what you can to help your husband be comfortable and bearable. It will be a hard road, but not much has changed. Just take one day at a time, don't dwell on what is coming. That is what I have to do with my son. I will be praying for you guys. Don't let it get you guys down. If the diagnosis was way off, I might even check with a lawyer.

My husband had Lou Gehrig's disease, and it in no way mimicked a stroke, could not have been mistaken for a stroke. It did not have a sudden onset. Diagnosis was NOT made by an MRI but was through the test where they put needles in all of your muscles and send an electric current through. It includes your tongue. Maybe husband had both a stroke and Lou Gehrig's disease. It is a VERY difficult disease to diagnose and not something to blame a physician for. My husband's grandfather had a mis diagnosis when he had it. There is no effective treatment for ALS, only palliative care.

Oh no, that is a horrible thing for you to deal with. I'm so sorry they may have misdiagnosed your husband. I do hope everything gets straightened out for you!

So sorry to hear about your situation, suspenseful. I'm aware that you've been asking people here if we know how long a stroke victim has left to live, and I'd wondered why you kept wanting to know. No one can tell you that, not even a doctor, because it varies from person to person. But I didn't know his condition is more likely ALS, which is very different and degenerative. With strokes, if given prompt medical treatment, prognosis for recovery is good. Stroke victims get better. With ALS, intervention is focused on the comfort of the patient, not recovery. Tell me about it. I've been seeing doctors here and there for over a decade, trying to get a definite diagnosis for my ailment. I've had several diagnosis ranging from the simple - "allergies" to a possible "multiple sclerosis." Test results/diagnoses varied with different doctors, and I'm still waiting for a truly reliable one. One doctor came very close when he said I had fibromyalgia. (Actually, the symptoms were closer to chronic fatigue syndrome, and I've known for years that I had this). But there is/are something else they've missed. It's very disconcerting to be in this situation for so long, and not be getting proper treatment. And to tell the truth, I'm worried about the state of health care in this country. I've met other people whose conditions are like mine, and they're in the same boat. So, despite technological advancements made in the medical arena, the actual practice of it is deplorable. God forbid an epidemic spreads, as I'm not at all too confident in the expertise of most these doctors.

That it hard to have to deal with. I hope the MRI goes well, and keeps still long enough, something men seem to have a lot of trouble with. When I was pregnant with my 4th child, i went for my usual check up only to be told that I wasn't pregnant at all. I just needed to go on a diet and start a heavy exercise programe. Well, I already knew I was pregnant, and it isn't like you can hide the protruding 8months along belly. But no, he was insistant I was just fat, even while he was watching my belly doing the mexican wave. Needless to say, Ive never been back to that doctor.