Thyroid level is off the charts :(

@koalatbs (2233)
United States
December 10, 2009 2:25pm CST
Got my thyroid checked Tuesday and the nurse from my doctor's office called me yesterday to tell me my results. Normal TSH (thyroid stimulating hormone) level is supposed to be between 0.5 - 5.0 Mine is at 84! Can't believe I'm still standing! :(((((
3 people like this
8 responses
@cher913 (25902)
• Canada
10 Dec 09
wow! what will they do for you? by having it so high, it makes you tired right? i got checked for thyroid but i think my tiredness is due to not getting a deep sleep. hope they can help you!
2 people like this
@koalatbs (2233)
• United States
10 Dec 09
Well, I heard from the nurse of the doctor who is filling in for my doctor (who is on vacation - of course) and she said he is increasing my dosage of Levothyroxine from 50 mcg per day to 100 mcg. Hopefully that will help. I just hope it doesn't take too long for me to start feeling better because, yes, I have been extremely tired & irritable, gaining weight, etc. etc. I hate it. I was diagnosed with thyroid problems a few months after my son was born 15 years ago so I've had problems on & off ever since with my dosage. But, I've never had my TSH level go THAT high before. The nurse said it was off the charts. What did they say about your thyroid? You might not be getting a deep sleep due to your level not being right. Be sure to check into it. I alwayssss get copies of my lab work results for my records. I had big time problems more than once of not being notified of irregular readings. Not fun. Take care cher913!
3 people like this
@cher913 (25902)
• Canada
14 Dec 09
well i found out that my thyroid is low so i have to go get pills for it. keep me posted!
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@koalatbs (2233)
• United States
28 Dec 09
Hope you are feeling better. My doctor increased my dosage, actually she doubled it so hopefully I will be feeling better soon too. Unfortunately it takes about 4-6 weeks to get regulated once your medication is altered. I get mine checked again in February.
@jesssp (2743)
• Canada
10 Dec 09
Wow, that is insanely high. But 100 mg doesn't really sound like a very high dose, although I guess it is still double what you were on before. I know when my thyroid first messed up my TSH was in the high 20's and I thought that way high. I think they started me off at something like 180 mgs. They've since lowered it but I still take 130 and I think my level is around 7. I think thyroid disease is one of those things where the levels and doses vary a lot between individuals and doctors really have deferring opinions.
1 person likes this
@koalatbs (2233)
• United States
10 Dec 09
It is a real pain sometimes, isn't it?! What medication are you on? I'm sure the dosage also depends on which one you are taking. I was taking 60mg of Armour thyroid medication + 25mcg (micro-grams) of the Lexothyroxine. But they aren't making Armour anymore hence I was switched to 50mcg about 3 weeks ago. That is when my TSH level went crazy on me again. Starting today I am supposed to take the 100mcg a day. I'm really pissed though about the Armour not being manufactured anymore. Back when my thyroid problems were first diagnosed (15 yrs ago), no matter what dosage of synthetic thyroid hormone they put me on, my levels continued to fluctuate up & down with horrible fatigue, confusion, forgetfulness, weight gain, etc. for years. Then finally, I was put on the Armour and it made all of the difference in the world. I hope this doesn't mean all my problems are going to come back again. I don't think I could handle it.
2 people like this
@jesssp (2743)
• Canada
11 Dec 09
I'm on Levothyroxine as well and even when I was taking a higher dose I never found that I was a ball of energy and I didn't experience much weight lose. I have read that a lot of people do better on Armour and I was thinking I should ask my docot about it, although not much point now I guess! I've also ready that some people need both a T4 and a T3 replacement because even if the levels show as fine with just T4 treatment some people still don't feel right. It is a really annoying and finicky condition, isn't it?
1 person likes this
@Hatley (107466)
• Garden Grove, California
10 Dec 09
hi koalaths that is really high. I am glad you went and had it checked. now the doctor can help you with whatever medications you will need. always a good idea to have a check up when you feel something is wrong.
1 person likes this
@koalatbs (2233)
• United States
10 Dec 09
The doctor's nurse called me a little while ago and said the doctor is uping my medication, actually doubling the dosage. So, hopefully I will start to feel better pretty soon. Unfortunately though, with the thyroid it takes 4-6 weeks usually before you will notice much of a difference. I hope I'm the exception to that rule.
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@BarBaraPrz (14231)
• Hamilton, Ontario
12 Dec 09
I think I have a sluggish thyroid: I have brittle nails and hair, am overweight and get tired a lot. I do have a prominent thyroid and the last ultrasound showed some nodes... However, my TSH levels fall into the "normal" range. Hope your levels get down soon.
@koalatbs (2233)
• United States
28 Dec 09
Could very well BarBaraPrz. When was the last time you had your TSH checked? What was your level when it was checked last? I always always get copies of my lab results because more than once my level was off and I was not informed by "former" doctors. Needless to say they are not my doctors anymore.
1 person likes this
@BarBaraPrz (14231)
• Hamilton, Ontario
28 Dec 09
About a year ago, I guess. Don't remember what the number was other than it was in the middle of the range. How are your levels doing now?
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@Eskimo (2329)
20 Jul 12
There are a few other thyroid conditions which don't show up on the TSH test, could be a lack of T3 (thyroxine is T4).
@callarse1 (4809)
• United States
11 Dec 09
How did you find that you had a problem? That's terrible that you have such a high level! Well, hopefully you feel better. Keep taking that medicine and go to your doctor's office like you should. Are they watching you to see if your levels go down?
@koalatbs (2233)
• United States
28 Dec 09
I guess because of different symptoms I was having my doctor decided to check my thyroid again. I have had thyroid disease for 15 years but my level became high due to one of my medications being taken off the market. My doctor had to increase the dosage of my other thyroid meds but obviously she didn't increase it enough to compensate for the discontinuation of the other medicine.
@DoctorDidi (7037)
• India
14 Jun 12
It shows that you are victim of hypothyroidism for long. So you must not make further delay in starting your treatment. Have you developed any swelling in front of your neck?
@adnileb (5022)
• Philippines
8 Feb 11
Whoah! Mine was 14 and I thought that was already high.. Yours is actually scary 'coz you have to really focus if you want to bring it back to normal. After a year, hope it was already lessened.
• India
15 Jan 10
hi sorry for the late response....its nice to hear that u ve withstand the situation....u should start with ELTROXIN 100mg once daily for 6 months and then reduce the dosage...