Young Survival Coalition

Canada
January 28, 2007 11:15am CST
I am new to MyLot today but have already found 2 other young women who are also affected by breast cancer. I was diagnosed in the summer of 2005 at the age of 24. I had a mastectomy, 6 FEC chemo treatments and now take tamoxifen daily for prevention. A common theme I found in the profiles of the 2 girls is that they are young and are looking for others to connect with that are dealing with the same issues. Rather than message to both gals I though I would post a new discussion and hopefully other looking for this info as well will be helped. Young Survival Coalition is the place that I found really helped me during my breast cancer journey. On their website they have message boards that are divided up into topics like treatment, reconstruction, fertility, excercise, and even a metastatic board. Everyone there is really welcoming and it is all girls who have been through it or are going through it. It was a source of inspiration for me to read about how they got through some rough times and I learned some tips too about parenting and relationship issues that are relevant to us undergoing treatment and illness. I always felt confident that I would recieve helpful answers when I posted a question. Every year YSC hosts conference for young women and their caregivers, Last year it was in Denver and I was still in treatment and could not attend. This year I am going to it in Arlington Virginia in February. I am really excited to meet some of the girtls taht I corresponded with on the boards and learning about the newest in advocacy, treatments and reconstruction. www.youngsurvival.org To find the boards go to the community link on the left hand side, under community choose bulletin board. You can create a user account and post messages and paste pictures. I hope you ladies check it out and find it helpful. Let me know what you think of it. I know it was a great place for me to connect with other young women and to get information from girls who had been through what I was just beginning. I have reposted this discussion because the first time I posted it i misspelled breast cancer in the tag section and the discussion was then not visble to people searching breast cancer. I hope this does not cause a problem, but I was unable to find where to delete my original discussion or edit the tags.
6 people like this
8 responses
@lilaclady (28207)
• Australia
28 Jan 07
What an inspiration you are, I think talking about things really does help some people and being able to talk to someone who has been through it is so much better...I think some people out there will find answers to questions they may have been to scared to ask...good on you...
• Canada
18 Feb 07
Thanks...It is nice to meet you, and Im glad you commented. Networking with others has been a big help for me.
@vivasuzi (4127)
• United States
28 Jan 07
Hi Cascogirl. This is great that you are sharing this for anyone who may have gone through what you went through. I'm sure many people will be grateful to get involved with this site. There is no way to delete discussions :( I know it stinks, no way to edit either! However just FYI, you can add more tags to a discussion after it is posted. You'll see a "tag this discussion box" under your discussion topic and you can add as many as you'd like :)
3 people like this
• Canada
28 Jan 07
Thanks Suzi, Im glad you got my freind request. I remember you saying you were on here so looked for you. So I suppose I could have added the correct spelling for the tag instead. Thanks for your comments, see you around the site! ~Sarah
2 people like this
• United States
24 Feb 07
What a great site. Thank you for posting this. I am a Certified Mastectomy fitter and this site would have been wonderful to share with my former clients who were diagnosed at an early age. Most of my clients were older but I had a few that were young. Hope you are doing well with your journey. Huggers to you.
@anne_143god (5387)
• Philippines
29 Jan 07
That will be nice of you to share that to some who also have same problem you can also help them to fight and survive and I think it is good for those who have same disease to always talk to each other and enourage one another for they are the one who will more understand their own situation more than anybody else..
• United States
30 Jan 07
Thank you so much for sharing this website! I'm going to go check it out. I'm 31 and was diagnosed in October with Invasive Ductal Carcinoma. There's a link to my blog website on my home page, if you're interested. Huge hugs!!!! ~Jeepster
@pd_davies (149)
• India
29 Jan 07
i feel sorry for u that u are suffering with this illness but at the same time feel happy for u that u are facing the situation with such courage, my grandma had liver cancer and i know it is very hard to face it. hats off to u and i pray u get well soon!
1 person likes this
@seabreeze (659)
• China
29 Jan 07
I am greet you.Your optimism is great.When Everybody have difficulty,any should learning you!
@lisalock (49)
• United States
9 Feb 07
I have to agree with you, the Young Survival Coalition is a wonderful organization. I was diagnosed in Sept. 2001 at the age of 34, nice to meet you. :)