Do you know anyone with Multiple Sclerosis?

My husband has MS and was just diagnosed last year. He walks with a cane all the time but cannot walk for more than 2 minutes at a time without stopping to take a break. If we go out anywhere we have to take a wheelchair with us as he tires very easily. He is currently taking Rebif. His case is a serious one and what also makes it difficult on him is the fact that he has had several knee surgeries and knee replacements so of course the MS is wearing on his joints. Hopefully, they will come out with a cure soon, he's going stir crazy sitting in the house all day because he can't work. We actually have a disability hearing for him today so we'll see how that goes. Wish us luck!

Yes I knew a boy with it he was about 10 and not in a wheelchair we would got to the river and hee would fall on the rocks and wouldnt let you help getting him up for he said he had to live with it His brother had it to later I found out he married Dont know what happened after that but I felt he had great courage to do what he did never complained . I dont know what meds he was on either but his part seemed to be heriditary

My sister has MS. She is no longer using a wheelchair or cane! I have watched this disease take advantage of her body, and it's saddening and maddening. It not only takes over the body, it puts extreme stress on the mind. I believe that when she found out, she went through all the stages of grief...if that makes sense. Disbelief, anxiety, denial, anger, depression, and adaptation. Thank God she is now at the adaptation stage. It was very hard to watch her go through all of these stages, and not be able to help her more than by lending an ear, when she could even talk about it. I'm just glad that I still have her!!!!!

I had a good friend who's mother had M.S. and was confined to a wheelchair. She was a strong woman with a powerful spirit. Unfortunately, she lost her battle to the disease a few years ago.

I have ms. Was diagnosed in 2000 but my first attack was in 1995. Sadly I've had to quit working and now use a cain or a walker most of the time. The fatigue is really bad. I use Rebif 44 but would like to try Tysabri, they say it's twice as effective as Rebif. Unfortunately only the worst cases are treated with Tysabri in Denmark where I live. It really sucks when you know there's a better medicine than the one you're getting and you are just not allowed to get it!

Okay uhm, please don't laugh at me... I know this may be silly and I can't tell you the whole story because that would be way to much to write. I got "in touch" with MS in 2002 when a friend of mine and I found out that a teacher has it. (as I said, it's a long story and I really keep everything short..) It was a very special time because we had something like a relationship with that teacher. She did talk to us about several things private and so on. After that I got to know some other people while looking for more informations about MS and now I can say that I have some friends who have MS.

Yes, my cousin and one of good friends daughters has MS. I'm sorry you are struggling with this disability.

Hi I have had multiple slrosis for over 5 years myself. I'm not in a wheelchair yet but I had to quit work and I have to use a cain or a walker my gait isn't good. Nice meeting you :)

I have MS was diagnosed 15 years a go. No I am not in a wheelchair and I take rebif. Surprisingly enough I meet people all time, at work, at bowling, at the super market with the illness and it always surprises me for some reason. I don't know why I think like that.

I was diagnosed with MS 9 years ago next month and I am not in a wheel chair. I have taken Avonex and Rebif, but am doing much better off of them. I know quite a few people with MS and the vast majority of them have little to no side effects at all (I know of one in a wheelchair or bedridden, a former classmate; and my mom's 2nd cousin who just passed away--she had it for 20+ years and was bedridden). I know mostly women, but know of at least 3 men (the former classmate, my cousin's paternal uncle (I forget which one of the ABCs he uses) and the guy that works at my post office) who uses Betaseron. Most of the women I currently know are not taking medication, although one is on Rebif and is considering stopping it. MS is believed to be an autoimmune disorder, though the reason for the body attacking the myelin sheath is unknown. There are four major types: primary progressive, where the body is constantly in a state of attack and there is little or no recovery from attacks: secondary progressive (where it begins as relapsing-remitting, then moves to primary progressive); relapsing-remitting, where the body is under attack for a period of time but then the person gains almost all of their previous functions back; and last is benign relapsing-remitting, with few to no attacks and little evidence of decline. I had one attack (how I was diagnosed) in 1998, but now the only way they know I have it is through the use of MRI (my neuro sees the plaques in the pictures, but little to no other evidence). My previous neuro diagnosed me as having benign RR, but now there is a long-term study that I read about--if you go 10 years without a major exacaberation (I think I spelled that right), you can be considered in remission. I am just over 13 months from that date and you can imagine I am counting the days! My current neuro said that a relapse lasts longer than a couple of days, so I've had a few incidents of very short-term symptoms, but nothing serious. I cannot wait until they find a cure! Good luck!

My Mom has "MS" and has had it a little over 10 yrs now and she is currently in her mid 40's. When she was diagnosed with MS it was such a shock and confused us all because we we're so unaware of what MS really was. It is not cancer but is a disease and no there is no cure and does not run in your family and you can not catch it. I did my research on it yuears ago and stil my Mother days that I know more about it then she does, but at the time when she first shared the news with her kids(me) I was very concerned and so I did look into it and found so much about it and also helped her to know that I understood even though she was dealing with it. She was in and out of the hospital a lot and the MS is on the right side of her and after about 4 yrs or so after being diagnosed she then went into remission and has been since and for several yrs now my Mother has seriously going down hill and I don't blame the MS, I blame her because she is in a horrible situation and refuses to get out and smokes pot, smokes cigs and is a drunk!, it is making her life much worse and she is highly stressed because of her surroundings and as of right now I am not speaking to her and isn't only because of what she is doing to herself but so much more and I am just tired of having to pick her up! I was there for her when she first was diagnosed with the MS and continued to be there for her as her daughter but right now she is just asking for it and I can not help her until she helps herself, which will probab;y never happen and she is just doing the damage to herself! -Lora